Hello everyone,
Im new here and would just like to introduce myself. I have fibromyalgia and it's starting to play up again. I take a shed load of vitamins which help me to get up at least. I take gabapentin and cocodamol 30/500 four times a day.
Enough with the essay. Nice to join this community ☺️☺️☺️ xx
Hello Syren. Welcome to the club nobody wanted to join!
Saying that - you will get lots of help and advice from the experts on here. No - not professionals - just the people who really understand how you feel and what you are going through.
Like you, I’m a bit of a vitamin junkie. I’ve been forced down that route because my cantankerous system refuses to tolerate any of the prescribed medication. But I figure - if my fibro doesn’t protest at a certain vitamin - it’s probably ok to take it. Mind you - the cost of the little pills and capsules keeps my intake pretty moderate.
Otherwise - I find eating a real natural diet with low sugar/no alcohol/no additives really helps. I do try to pace myself and not get too tired, whilst trying to get some exercise. That’s always a tricky act to get right.
So good luck and best wishes.
Xxx
You seem to be managing your diet really well. I'm trying to wean myself off energy drinks and fizzy drinks which I drink loads of. I think we as sufferers help each other as much if not more than the professionals, lol xx
Hello Syren. I try to tell myself that fibromyalgia has forced me down the road of healthy eating (sometimes kicking and screaming) but I have got used to it.
But - this is just my opinion - fizzy drinks and sugar laden anything is not going to help your body to recover. Whereas natural unadulterated food has got to help. Likewise alcohol and coffee - they make me feel awful.
So I eat like a caveman (who drinks decaff tea and has the occasional chocolate digestive). Well nobody’s perfect!
Keep going - best wishes - xxx
I can’t give up coffee, either!! I’m down to 2 a day now and the rest is herbal tea but it’s sooooooo hard to give up the magic potion 😂 xxx
Nope not giving up my 1-2 cups fresh coffee that is my treat in life and I will kick and scream all the way................................
Lol. Well done to you. It is certainly challenging. My biggest hurdle will be the energy drinks xx
Hi Syren. I do understand - we all self medicate with whatever helps don’t we? But I suppose giving up energy drinks must be a bit like giving up cigarettes or vodka (or coffee!)
Take it very slowly and give your body time to adjust. But I think once you decide to do it - you are half way there. That’s just my experience though.
Xxx
Hello Syren , welcome to our little community. There are lots of lovely people here, who will be able to help you with any queries you may have. 😊
Hello Welsh cat lady. Thank you, I found this site by accident and I'm so glad I did xx
Welcome to the group xx
Thank you xx
I live in Gatley Manchester have fibromyalgia keep going do my best.Xx
Hi basically on the same stuff, it reduces things to were I can just about function. That is not an essay I have had a few moany episodes on here and boy does it feel good to get things off your chest. Also from reading other people's posts I have a few other things to try. Today I have been the victim of a runaway combine harvester driven by an insane goblin armed with a military tazer. Keep taking the tablets!
Lol. I called my doctor yesterday to ask them about taking ambroxol but it's not being used for fibromyalgia currently. I'm always on the lookout for new remedies so I'll keep my eyes peeled xx
Hi welcome to the club .How do you find the co codomol. I'm on Deloxitine and I take paracetamol or ibrofen has a top up when needed .which can be most days with this changeable weather causing more pain every day and flare ups .I've got a migraine today .I suffer them also .Just take each day has it comes and hope you get some good days .
I was first of all put on '30mg Codeine/500mg Paracetamol' aka co-codomol by may doctor about 20 years ago by my doctor for stabbing pain in my hands and feet as they got worse they added in gabapentin, The co-codomol reduces the severity of the pain and the gabapentin the number of stings.I know they have an effect and I know what they withdrawal effect are when I stop taking them and I don't mind or even really notice the withdrawal. What I do notice is the grizzly bear that attacks me with a chain saw and her (had to be female for the context, nothing against ladies) cubs that start chewing my limbs off along side the Nile Malaria that rages in me. take a couple of tablets and I can manage toast.So if you talk to your doctor they may add in the co-codomol.
However there is a move to remove pain relief, especially opiate based medicines, that is deemed unnecessary from people in pain in favour of more fanciful ideas of pain control and that do not cost the NHS in the same way as chronic pain medication does.
As I have said, these decisions are being made by people (NICE) who have no idea or in reality just do not want to know as long as it saves money. They need to be subjected to the same level of pain as me and when they have spent a week flailing around in agony then they can review their decision. They would soon change their minds or would they. Kerching!
Yes Makie-Uppie I have had problems in the past getting my cocodomal. A swift email to the doctor's put an end to that. Sorry about all of your pain, hugs xx
Just had a distant memory of being on 12.5/500 Co-codomol at the start but that just tickled the problem. Thanyou for your good wishes and the same to you and everybody else in the world who is suffering a lot of who are much worse off than me.
We definitely need the stronger stuff xx
Hi Taylor68, I take fluoxetine also, I was on duloxetine but it made me very tired and I couldn't stop eating. The cocodamol works for me as I really notice when I miss a dose. I'm a bit worried about the effect all these medications have on my liver though. I get some good days but going through a period of only bad days at the moment. I don't get migraines, that must be very painful, hugs xx
Welcome aboard Syren!! I have fibro amongst other things?? This site is brilliant, like a extended family, just type anything an someone will hopefully respond! X
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