So upset! GP doesn’t listen or understand me I’m a Fibro and migraine sufferer

[Kathy63]

GP’s just don’t listen or care and keep trying to fob me off with more tablets that I have to pay prescription charge for, for a few tablets that don’t work or have horrible side effects and that I don’t want to take anyway for the cluster migraines i suffer from, I was in tears yesterday after a 2 week wait for my GP to do a telephone consultation I asked if I could have injections or oxygen treatment and be referred to a specialist all of which he dismissed bluntly, I had to agree to more tablets I don’t want just to get him to refer me to a specialist in the end. Why is it other people get help from their doctor but I don’t and I have even changed GP practice to see if that would help but no! Feel so let down angry and upset! 😥

[LoneEra]

Sorry to hear this, Kathy. You could try putting all of this in writing to the GP. Clearly explain what fibro symptoms you are suffering from and what help you are seeking. Then explain that the migraines also need addressing. Alternatively, you could call 111 and see if they will assist you - and maybe book you in for an appointment at one of their local care centres. Good luck xx

[Kathy63 in reply to LoneEra]

Thanks, I will reread all these later when not at work

[Beachcomber53]

Hi Kathy63, I am so sorry to hear of your experience. I had a similar experience with my GP .In January 2020 I had been on Pregabalin, Venlafaxine, Propanalol, Zapain, Vit D3 and Statins for a few years. At first the meds worked well but my pain and associated panic attacks crept back up until I was hardly coping. Then I had problems getting a repeat prescription and was passed to and thro between the Chemist and the GP finally having to make an appointment with the GP for 2 weeks time leaving me without meds for 2 weeks..................I was worried sick.

As the days went on I distracted myself from the pain as best I could and rested and my neighbours kindly walking my dog.

After my GP appointment I collected the meds and sat in my car about to start the cycle again but I realised I didn’t want to: I didn’t want to be that panicked or out of control ever again.......I didn’t want to be held to ransom by the GP or the Chemist ever again.........I didn’t want the side effects that came with the drugs......I didn’t want

the worry over the long term effects........

What I realised is that I was NOW in control of my body again.......my pain, my aches, my stiffness and my exhaustion and for the first time in ages I wasn’t panicking about it. I accepted fibromyalgia into my life.

A year later and I am getting better at managing it every day. Yes I still have the same pain, aches, stiffness and exhaustion but I’m good at listening to my body - I rest a lot, I avoid foods that aggravate it, I occasionally take pain meds which now seem to work much better and I am relaxed. I can honestly say my pain is no worse than it was a year ago on meds but I feel much better and more in control. My quality of life has improved and I can now do some things I want to do......not everything and it takes longer but I have a life back......and it’s My Life!

[Kathy63 in reply to Beachcomber53]

Thank you x

[Kathy63]

Thank you for your response x

[Taylored]

Just a brief addition to let you know I had oxygen therapy in hyperbaric chambers for 6 weeks every day. It didn't help at all and can cause changes in your eyesight. So don't stress about this as even if you got it it probably wouldn't help. Good luck with your GP. Don't give up.