Struggling dizzy spells

[Bradders1969]

Hi I was diagnosed end off last year with fibromalyia after years of living with pain and test after test I'm still getting my head around it and what my body is screaming at me day in day out , its mad how I've been living with this pain for over 10 years. now I have got a diagnosis I'm struggling but I will keep on going anybody else get dizzy spells been getting them a lot over the last few months? take care off yourself debs

[Lovemyfamily89]

Hi Bradders 1969,

Yes, I suffer with dizziness & vertigo and have done for several years. My Fibro diagnosis was last March, just before lockdown, although like most people, I had suffered for years. My doctor prescribed betahistamine for the dizziness about 7 years ago. I only take them when it’s really bad, I try to manage without when the symptoms are mild/moderate. A bad attack can leave me in bed for a few days. The last bad one was caused by looking up to the sky at the stars can you believe? Just turning around too fast can trigger it and once I was in bed for days after a trip to the cinema, just because the cinema chairs ‘floated’ to allow you to get comfortable. Haven’t been to that cinema since 😂😂😂 it’s just another horrible symptom to live with unfortunately. I hope your dizziness eases soon. If not, I would recommend you speak to your doctor for some help with it.

[CarolineMKR in reply to Lovemyfamily89]

I also suffer from dizzy spells but have not been to Dr as when they see Fibro diagnosis you can see them switch off. Has your Dr or consultant ever advised what causes the dizziness with fibro? Thanks and stay safe x

[Lovemyfamily89 in reply to CarolineMKR]

Hi,

My dizziness was diagnosed as vertigo, before fibromyalgia was diagnosed. I have heard that once Fibromyalgia is diagnosed, it’s hard to get new symptoms considered as being anything else though 😕

[Bradders1969 in reply to Lovemyfamily89]

Hi Julie ty for replying that is so wrong take care stay safe debs xxx

[Bradders1969 in reply to Lovemyfamily89]

Hi Julie bless you mine can be off balance but not as bad as yourself wow I do have to sit stop are even when I'm sat down you take are bless you stay safe x debs xx

[Nettiemac]

Hi there. I have only had this pain for just going on 18 months. I pushed and pushed to see a rheumatologist and got my diagnosis last week. I get regular dizzy spells to the point where I lose my balance. I have mentioned it to my GP and of course it was dismissed.

It's horrible when it happens as I fear one day I will be home alone and will fall. It scares me.

Hope you will have a good day very soon. Xx

[Bradders1969 in reply to Nettiemac]

Hi bless you ty for replying I was just wondering as this is a new one and I just feel like yourself that the doctors have done what the they can x I wish you the best stay safe xxxx debs

[ALKT in reply to Nettiemac]

it could be pots another thing that many gps are not up to date on . likewise disautomnia as you can tell difficulty in spelling lol .

[LisaSnow FMA UK Volunteer]

Are you on any medication that could cause dizziness? When I first start on pregabalin, dizziness and blurry vision were very obvious side effects. It took a lower dose for them to become manageable. It is important to find out what causes the symptoms for you. Hope you feel better soon.

[Bradders1969 in reply to LisaSnow]

Hi Lisa ty for replying I am on tramadol for pain and topiramate for migraines they have given me gabapentin 300mg but I'm really not sure off them I have taken 1 tablet the other night as the pins and needles feeling was out of control and it helped x have been on tramadol for years so don't think it's them the migrine tablets maybe ty think a talk with the doctor x take care stay safe debs xx