Morning all. I am diagnosed with Fibromyalgia, ME/CFS, Central sensitivity, CKD, Asthma etc etc.....
Was finished at work 18 months since due to ill health. Been having help from exhaustion clinic learning to cope.Lost 3 stone but pain not improving any. Due to sensitivity not been able to find anything I can tolerate for the pain.
20th January my partner had a bad heart attack. This I have found very stressful. Never been able to talk to anyone at hospital on his condition. My poor partner was so confused and frightened. They discharged him with no aftercare. GP was no help just told receptionist to tell me to take him back to hospital. Finally after 12 days a cardiology nurse from our local hospital has called and apologised that we were not refered to our locala nurses who should of been visiting. We will hopefully have some one to answer our questions once they do get in touch. What I'm finding difficult now is changing from the cared for to the care giver. I have so much pain in my right arm from finger tips to shoulder, having to do all the featching and carrying is making it worse. I feel so bad when he has done so good at looking after me and I cannot give him 100% care he deserves.
Sorry for the long rant but I feel so helpless st the moment
Written by
Suehad
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I'm so sorry to hear everything you're going through. I don't have any practical advice to offer as I'm new to all of this but I hope things improve for you and your partner very soon. X
Hi hon. Can really understand. Been going through hell on the arm front. Recently old I need 2 new shoulders so get your arm checked out. I have had fibro for 23 years now. 2 yrs ago my husband of 44 yrs had a heart attack. I did cpr for 40 minutes. We were in a caravan in a field in France. Pompiers had trouble finding us. They could not get him back either. Believe me, much better to struggle with a live one!I miss him every single day.
Sometimes the only way to survive ridiculously difficult situations is to identify positives and thank God for them every day. Does wonders for the positivity bone!
Keep trucking. You will get through this. So long as you can still hug each other and you have a shoulder to rest your head on, you are in the good zone. Pain is the very devil. Manage mine with Palexia and paracetamol. Used to take just the Palexia but found adding 500mg of paracetamol works wonders.
Have patience with both of you! Do what you can for your partner. He loves you and knows you. He will be grateful for what you can manage. Don't sweat the small stuff - only do what has to be done! Use your left hand as much as you can if your right is being such a pest.
If you cannot tolerate morphine, try the Palexia. Morphine gave me problems too, but Palexia is surprisingly easy on the system.
Good luck hon. Don't waste energy you don't have on guilt and regret.
It does nothing positive and positive can be hard enough for fibros.
I keep an energy budget in my head and when something is a waste of precious energy, I tell it I cannot afford it!
Better to spend it on laughter and warm hugs than negative emotion...
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Looking after my Disabled Brother
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