Scream

[Zmcq]

I could scream and cry with the pain in in at the moment it's in my shoulders arms and all over my back. I've been taking ibuprofen and cocodomol but these are not helping, I also take duloxetine for fibro pain. My shoulder pain is a separate problem from fibro and I've had lots of operations on them. My Dr does not seem to want to help as he has said they have exhausted all options. I'm at my wits end and don't know where to turn.

[Painny]

My own doctor has become useless too! I am sorry about your struggle, thank goodness there is a site like this

Have you thought of talking to your MP

I hope you get better soon 🦋

[Zmcq in reply to Painny]

Yes thank goodness. I've got a telephone appointment tomorrow with Dr but I'm not holding out any hope. I've never thought about speaking to my MP, what can they do ?

[Painny in reply to Zmcq]

It’s one possible Avenue for hearing what patients go through at the time of crises. I spoke to my GP today and she said keep ringing 999 if you have breathing difficulty. I have been in and out of hospital for COVID but I still have severe breathing problem. A & E did all the tests and they can’t find anything so I am in Limbo. But they did say my GP needs to make a referral to hospital for putting camera down my throat but she is not interested 🤯

Glad you have got an appointment tomorrow.

Take care

[Zmcq in reply to Painny]

I'm sorry to hear about the problems you are having. Hope you start to feel better soon. Thanks for the advice too. I will wait and see what the Dr says tomorrow.

Take care x

[Painny in reply to Zmcq]

🤞🤞🦋🦋

[ShelWhitt in reply to Painny]

Hi Painny. Missed seeing your chats and so sorry you are having such a hard time. I'm not sure but think the processes docs work with have changed during the last 12 months. I have been having a really rough time over the last couple of years and asked for a brain scan (longstanding head pain, but getting worse and nothing helping). Also requested X ray for chronic lower right abdominal pain, nausea, constipation and swollen abdomen. Also longstanding. Doc said neither were necessary. End of story. So here we are. I'm still suffering. Reluctant to go back o doc as not much chance of a different outcome and dread the thought of having to go to hospital at the present time anyway. . Not good as in the midst of all this, I have paid to have (ecxema) removed from my scalp. Two years treating it with cream. Eventually paid as it was getting worse and told was a 28 week waiting list for referral. Biopsy revealed cancer. Had it cut out as it was deeper than they initially thought. so now just waiting for nasty head wound to heal and hopefully it has all gone. Sorry to harp on , just thought it might help to know you are not alone. We all care for one another on here, no matter what. Sending hugs. xx

[Painny in reply to ShelWhitt]

Thank you ShelWhitt

Means a lot for taking the time to write. I am really sorry about your struggle, I definitely know what you mean as things have changed a lot since the pandemic. On the other hand I know how lucky we are to have NHS since they have saved my life. They worked round the clock for my Covid hospitalisation and to date at home. But GPS don’t want you to go near their surgeries or keen on making new referrals to hospital. Their advice to me has been if you are really sick call 999 !!

I hope you are getting better following your private treatment and please try to keep very well. 🤗🤗

[ShelWhitt in reply to Painny]

Thank you Painny. I am so glad you have come through the other side of Covid, it must have been horrendous, and from what you say you still have a long journey ahead of you. You are right we all owe the nurses and medical staff an enormous debt of gratitude for the work they are doing under the most difficult circumstances. Wishing you luck with you continuing fight! Unfortunately it is not over yet, and none of know what is yet to come. All we can do is try to remain positive. Take care and stay safe., xx

[Painny in reply to ShelWhitt]

🙏🏻🙏🏻🥀🥀😍

[ShelWhitt in reply to Painny]

xx

[Hidden in reply to Painny]

Oh Painny

I was glad to see your name pop up have been thinking of you and the fact that you have had this terrible virus, have missed you.

Panda

🐼🥰❤️

[Painny in reply to Hidden]

Hi Panda

Actually I was thinking about you, reading your kind messages to everyone kept me going in hospital along with your sense of humour 😘

Yes I did die but about 20 doctors and nurses brought me back to life, missed you too. When I am better I need to go back to my communication with the members 💌🥀

[Hidden in reply to Painny]

Hi honey

Oh my goodness, no, how terrible this must have been, I am so glad, see it really wasn’t your time to go we need you here!

I am so glad you were reading my ditties you know me always find a bit humour in everything.

Please rest up and look after yourself and I am sending you so much love and energy (well not too much coz I need some energy 🤣) you will be in my positivity meditation tonight sending you love and light honey.

Love Panda

🐼🥰💜❤️🌈💜

[Painny in reply to Hidden]

🙏🏻🙏🏻🙏🏻🙏🏻🙏🏻😍😍😍😍🤣🤣🤣🤣🤣🤣🦋🦋🦋🥀🥀🥀🥀🤞

[Hidden]

My doctor is terrible too! They don’t understand or know what to do with fibro sufferers! Have you been to a pain clinic? I’ve just bought some lidocaine roll on cream and it’s really helping with back pain! I also use an electric head pad for my back.

[Zmcq in reply to Hidden]

I might try that I've never heard of it. Thankyou so much

[Zmcq in reply to Hidden]

Hi please could you tell me where you bought it from, I can only find them in America. Thanks in advance.

[Hidden in reply to Zmcq]

I got mine on eBay! It’s called Aspercreme. You can also get lidocaine patches. X

[Zmcq in reply to Hidden]

Ok thanks. I will have a look now.

[Hidden in reply to Hidden]

Big Cat do you mean lidocaine that they use in anesthetiser?

Panda

🐼💜

[Hidden in reply to Hidden]

It helps to numb the pain x

[Hidden in reply to Hidden]

I need a bucket of that stuff 😳 x

[Hidden in reply to Hidden]

Could do with a bath tub full of it! X

[Painny in reply to Hidden]

😂😂😂😂😂😂

[Hidden]

I no this pain I describe it like glass in my shoulder blades x

[Zmcq in reply to Hidden]

Yes that's what it's like.

[ShelWhitt]

Hi. It seems to be a common moan. I too have exhausted trying the medication doc has to offer. Didn't suit me , had horrendous side effects or simply were of no help.We were at the back of the queue before and now Covid has taken over we have even less chance of getting help.Take care. xx

[Hidden]

Hi Zmcq

Sorry to hear about your situation. There is still so much you can do to relieve the pain. Just don’t be in a hurry but do persevere.

Sounds like your body needs some TLC.

I’ve had Fibro for over 12 years and with a combination of therapies life is enjoyable.

I’ve not found meds of much use except Paracetamol to take the edge off.

Pacing strictly, heated wheat bags and rest work very well. Also a twice monthly trip to my Osteopath is v good. Find one who is sympathetic. Most are. Happy to talk more but time is short right now.

Blessings, Sonie

[Horse12345]

Hi same with me and my dr just about useless to be honest, they seem to just put everything down to fibromyalgia, if had all the normal fibro meds and all they do is make me feel like a zombie. Iv had just about had enough of this horrible pain. Take care

[Danniava]

Hi so sorry your I so much pain. Iv been taking

Naproxen for back arms and shoulders it dose help me a little bit. Hope you feel a bit better soon

[Yassytina FMA UK Volunteer]

Hi there, yes I can understand wanting to scream out loud, constant pain is so wearing, how much duloxtene are you on ?? I do have codiene from doc but not too use all the time, does kick in and lasts about 2hour with me , can help me go off to sleep, I am now trying cbd Jacob hooy from H and Barrett, also bio freeze I get from Boots /Amazon , my worst areas are neck , shoulder blades, lower back and now arthritis and damaged cartilage in knee, 😂, just been to stock up on some Epsom salts for my bath , cannot do without my early evening soak , that does help somewhat. Xx