Have you heard of this?

[Hcharles]

I have had me for thirty years and fibro for at least ten years. The pain clinic told me that they experienced people either plateau at a stage or - wait for it - “grow out of it”. Have you ever heard the like ? I have never heard of this before.

[AllthatGlitters]

I have never heard that either 🤔

[desquinn Partner Volunteer FMAUK Trustee]

I have heard this claim before although it is infrequent. There are people that through activity drastically change their ability but they do not escape all symptoms. Pregnancy can give some people "complete" remission during the pregnancy. And there are some unconfirmed reports of children diagnosed and then free from it.

Add in a bit of misdiagnosis and it is a very murky conclusion for anyone to come to.

[Hazel_Angelstar Administrator FMA UK Staff]

I remember rheumatologist telling my daughter she would grow it of it, because she was only 18 when diagnosed. When I asked him what evidence there was too back this up - his answer was it was in the text books from their training. He also didn't have any answers as to how long it would take her to grow out of it

[Margiehibbo62 in reply to Hazel_Angelstar]

Please dont mind me asking. But has she grown out of it? And how many years did it take herto be free of fibro?

[Hazel_Angelstar Administrator FMA UK Staff in reply to Margiehibbo62]

Sadly no ... She's almost 27 and it still affects her just as much

[Tory]

Or we give up going to the GP because the lack of help and support!

[Hidden in reply to Tory]

Fact! Because they have been told not to excerbate our dilemma and basically ignore. We are not allowed to be served by the same Doctor no more as well here in Wales. Also appointments with Psychiatric departments get cancelled without you knowing as well. So, completely ignored here in Wales. There's gonna be a backlash to the NHS and Doctors at some point!

C.F.S. Sufferers will say at some point enough is enough...

Just wondering when that will be! Possibly when 20% of the Nation will be suffering from it! Which is now coming closer as Covid-19 sufferers are left in the same condition as us C.F.S sufferers. Haha! Boris will now suffer with C.F.S. Watch him moan in 20 years time!

[alison84230]

Never heard that!

[Sosbach]

..yeah, we just learn strategies to cope so they think we’ve gotten better. There are colleagues at work who think I’ve gotten better because I just don’t talk about it anymore...

[Hidden in reply to Sosbach]

They are living in ignorance.

[harmony2 in reply to Sosbach]

Can be so isolating when people don’t “get” it

Keep taking good care of yourself and doing the strategies that enable you to stay in work. It’s a gift.

[Hidden]

I've heard of it but it's a ruse... It's bull crap!

Their trying to get you to cheer up... And not look at it so negatively..

Idiots don't realise your such a positive thinking person that you would never have lasted this long if you weren't.

[harmony2 in reply to Hidden]

#MrBee, So true!

[Midori]

I seem to have plateaud, I no longer get the crippling pain I used to, and I am off all but occasional medication.

I personally put it down to 1.Acceptance. 2. experimenting with my diet. 3. sheer bloodymindedness.

Ok, I have not got better, but I can cope with it.

Cheers, Midori

[Hidden]

Hi,..when I was diagnosed the consultant told me that since the fibromyalgia seemed to have been triggered by a specific event (an accident coinciding with a family trauma) that there was every chance it would diminish if not vanish. And it’s true for me that although it’s not vanished the pain is much more low level and manageable generally, and whilst stress and upset trigger exhaustion days, again it’s more manageable. Which is all a long winded way of saying yes I’ve been told a similar thing, and while it’s not true for everyone it’s been sort of true for me. And hopefully for others.

[Allsaints49 in reply to Hidden]

I think that your consultant only had some of the facts about the triggering of Fibromyalgia.

I suffer with this diagnosis without an obvious family trauma or accident. Mine is triggered by a chaotic upbringing, which left me unsafe and anxious. However it was years and years of trauma rather than a one off event. My mother and one of my 2 sisters also have very similar symptoms as me although neither have been diagnosed with FB. So I feel that there could be a genetic predisposition towards it as well.

[leione in reply to Allsaints49]

I too believe that a person is predisposed based on family genes. Your childhood was your trauma. I think that kind of trauma brings on some kind of body response which truns into FM. God Bless you and your family members.

[Hidden in reply to Allsaints49]

Hi..sorry I didn’t mean to say that everyone’s condition is brought on by the same factors mine was. Just that in my case, and so maybe some others, it was a particular set of circumstances that triggered it. And I was encouraged to think that in that case it might ease. I do realise it’s not that simple for all. And that I am lucky that my symptoms seem to have eased over time.

[Hcharles]

It’s so hard to definitively say what is getting better or plateau as we do get flares and things do ebb & flow.

Thank you x

[Gollymissmolly]

Me neither, what utter rubbish! This is why we stop going to see the doctor. Until they see the light that these things we experience are very real and that their ignorance is of no help to patients, ergo people in pain and at times very low. It's a vicious circle. Hope today is a good day for you. Good luck x

[Hcharles in reply to Gollymissmolly]

When I heard this at first I was so excited. I’m 57 and not through menopause yet so I am hoping when I do go through it, something will change but then again my prescriptions have increased, my activity has decreased so the physical facts are not tallying with what I’m hearing. ☹️

[Cape_Cod_Sharon in reply to Hcharles]

Nothing changes with fibro when you go through menopause [poor dear 57 and not gone through the change yet] I went through menopause at 45 due to cancer surgery/treatment and my fibro kicked in to high gear. So for me there was no improvement, but we are all individual cases so it could be a Godsend for you.

[KnackeredKaty]

I've never been to a pain clinic, but I think that's a weird thing for a professional to say. I think when they don't have a clue, they just say what's in their head without realising what it means to us! There are so many questions we may never have the answers for!

[Cape_Cod_Sharon]

that is BS and I would stop going to a place that held that opinion.

[Hcharles in reply to Cape_Cod_Sharon]

It was the hospital pain clinic