Chronic Fatigue

[singingtheblues]

Does anyone with fibromyalgia get severe weakness, chronic fatigue to the extent that your so weak you struggle to sit up straight, affects your speech and you actually feel like your dying. One GP told me this was caused by fibromyalgia and another told me this was neuropathy due to being diabetic. This got worse from 2015 after my 6th spinal operation.

[Lunaloves]

Hi there,

Sorry to hear you are struggling so much. Yes I get like that - frequently. I was told I had fibromyalgia late last year after years of problems. I was told it was a diagnosis of exclusion until they tested for other things. My speech gets worse the more fatigued I feel. Sometimes it’s a slur/stutter and other times I just can’t get the words out at all. I lose feeling/weakness down one side and need to just sleep it off. Sometimes it’s a few hours, other times it’s days. Before Covid, I was waiting to see a neurologist regarding MS.

Have you been given anything to help?

A few things I’ve found that help are removing gluten from my diet and all caffeine were possible, no alcohol. A weighted blanket helps when I feel terrible - could just be the comfort of it but I do feel a benefit. In terms of the speech, I usually put on an audiobook or podcast as it helps take my mind of the frustration of not being able to speak; I just lay down (with blanket) and listen.

Sorry you feel so rubbish. I hope you get sorted soon. Hugs x

[singingtheblues in reply to Lunaloves]

Hi thank you for your reply. I will take your advice and try and cut out gluten, I don't indulge in much caffeine or alcohol. I take amitriptyline and a heap of painkillers for other health issues. I was warned by surgeons in 2015 not to have any more spinal intervention because with having fibromyalgia this could put me in a wheelchair but the pain in my back and legs was so severe I took that chance. In a way I made the right choice because the metal work that had been put into my back to fuse it had been trapping nerves for 20 years but that last operation has made the fibro worse and left me with horrible debilitating attacks of weakness and fatigue.

[Hidden in reply to singingtheblues]

Hi

I'm so sorry you are in so much pain, you've had a rotten time of it.

I have pain 24/7 and an hour or less sleep per night due to pain. I do have many conditions causing pain.

I use my trusty hot water bottle, electric blanket and my fan so I don't get too hot!! Goodness knows what I look like in the middle of Summer 🤣

Love and hugs Lynne 🤗🌈

[Golfer15]

Yes I suffer badly with fatigue. The hardest thing is getting others to understand, even family.

[Hidden in reply to Golfer15]

Hi

Just a thought, could you show your family this forum and what everyone goes through? Take care and stay safe Lynne

[Golfer15 in reply to Hidden]

Thanks for the reply. I have shown them this but it hasnt really helped. They just think I

am lazy.

[Hidden in reply to Golfer15]

That's a shame. You certainly aren't lazy. I wonder how they'd feel if they had a day in your shoes. It does annoy me when people won't take the trouble to find out what people are going through.

I'm feel so lucky to have a great support network of family and friends and all of you on here.

Please take care and stay safe Lynne

[Hidden]

Hi there, yes I get terrible fatigue and weakness.

I've had fibro for so many years but diagnosed only for past couple of years.

I've noticed my fibro getting worse almost week by week now, it's effecting my speech, I stutter and can't remember the words I want to say. It's so embarrassing at times. You are not alone, I hope you coping with the pain. X

[singingtheblues]

Hi no I've not tried magnesium so thanks for that I'll give this ago.

[M0AL61 Moderator Volunteer]

Yes, I suffer terribly with fatigue, but I am also diabetic too x

[YASMINTINA FMA UK Volunteer]

I have a combination of fibro , cfs, so I do find life frustrating , the chronic fatigue that can send you to bed and sleep constantly and have no choice in the matter and then the aches and pains of chronic fatigue, speech well my husband has to try and interrupt finishing my sentences and sometimes I go blank and can get the sentence fully out, or it’s like a fog appears and in the moment I lose the last few seconds, good we can chat here ,differently helps us, so two doctors saying different things doesn’t help your cause,☹️

[singingtheblues in reply to YASMINTINA]

Hi thanks for your reply it a horrible illness and difficult for people to understand. I wish you all the very best take care.