Just curious 
What is your worst pain?: Just curious... - Fibromyalgia Acti...
What is your worst pain?
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FibroLee
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45 Replies
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My legs, especially at night, wakes me up.
Neck shoulders pelvis.
Back of ribcage, hips and pain in the cervical and thoracic area of my spine. Really bad, makes me want to cry.
Coccyx, lower back, pelvis,hips ,knees. And costochondria in my chest xx
in reply to KateMaguire
Hi kate do u get fast heart with costhiondritis and stabbing pain in ches it's scares the hell out of me xxx🙁
Frogge in reply to
I do! It's awful! I haven't ever known anyone else who had the costochondritis with it! I'm so sorry you guys do!
Head to toe 🤭😪
Stabbing chest pain feels like heart attack x
My cat...
Sorry but she is being a right needy git and is moulting so bad clouds of fur just fly off her every time she moves.
My worst pain is round my rib cage and across my shoulders.
Yesterday and today I feel like I've got two severely sprained wrists - it's a new one.
Good day to you all xx
Yes, when I first got it I thought I was having a heart attack or something! Luckily I had an appointment with the pain clinic the day after my first experience of it and they were great, they arranged for me to be checked out by the heart department to make sure that there was nothing happening there and then prescribed Lidocaine patches for the pain. I find a heat pad or hot water bottle helpful too. I would go to your GP or pain clinic for some info and pain relief. Hope you get some help soon, it's an awful feeling when every breath feels like your being stabbed! xx
Mine is my legs and every joint. Sheena
My lower back and legs are what drive me insane with pain, but my neck, shoulders & arms right down to my finger tips must be a close second
in reply to
My legs hips lower back shoulders hands and neck are my most painful particularly late at night xx
Thanks for your responses guys... sometimes I feel like I'm going crazy. I get the pains that remain and just increase or decrease in pain and then I get these pains that come and go in different places.
My neck, lower back, knees, shoulders, fingers, left elbow hurt all of the time. My right ankle started hurting a couple weeks back, i have carpal tunnel in my right wrist and headaches come and go.
Feel stressed most days xx
The burning sensation I get on hands, arms, feet and sometimes upper back. It's not pain, I know, but it's worse than pain, because nothing seems to relieve it.
in reply to
Yes, I know what you mean. I have pain everywhere , it never seems to let up. A new one has just started , my stomach hurts when I'm hungry or have eaten. I'm just sat with hot water bottle now, it does make me feel quite sickly. That's one way to lose weight but not a good one as I'm eating less and less, just don't feel like eating so I'm going to try and eat little and often. Sorry for going on. Love and hugs to you all Lynne xxxx
in reply to
Stomach pain should be investigated, not every pain is related to Fibromyalgia. I don't know if the skin burning is, tbh. It's so confusing because I have overlapping menopause symptoms.
Overall pain, with episodes of severe chest and back pain, feel like a heart attack, like the other's had it checked out and it's Fibro pain. x
in reply to bobbybobb
Hi Bobbybob I did my research and that stabbing chest pain is muscle not heart it puts my mind at ease when I educate my self xxxx and fast heart is because we're constantly in pain and don't sleep properly xx
bobbybobb in reply to
I don't get a fast heart rate but the pain starts between my shoulder blades and upper part of my back then moves into the chest, I'm use to it now but it's very painful. xx
in reply to bobbybobb
If I had one symptom I could eliminate from this condition it would definitely be the stabbing chest one xxxx
in reply to bobbybobb
Hi
I went to my Dr re pain needed strong tablet for my stomach. How's you tonight? love and hugs Lynne xxxx
bobbybobb in reply to
I'm ok just chilling watching TV. XX
in reply to
Hi Lyne I get really bad stomach aches burning and just painful could it be ibs related to fibro my stools are loose and light coloured and when I need to go boy I need to go mornings are worst xx
in reply to
Hi
I really feel for you.. my Dr said mine was to do with one one of meds so he he gave stronger omeprazole.
My IBS goes from one to the other. I'm constipated at the moment but I do also have compensated cirrhosis of the liver,(my liver disease was caused by meds from my drs over the years) which liver nurse said can also cause constipation!! I've got many conditions which can mess with digestive system. Please take care. Love and hugs Lynne xxxx
in reply to
I'm sorry to hear that I do worry about meds and livers do they no what meds caused you to get liver problems xx?sending u a massive cyber hug 😘😘😘😘
in reply to
Thank you. They didn't actually say at the time. My own Dr has given me codeine instead of co-codamol because of the paracetamol in it. She said I was better speaking with consultant about vtge rest of them . How are you feeling tonight? Love and hugs Lynne xxxx
My Legs and Thighs, but for the first time, its changed to my back
Costochondritis, such a horrible feeling.
Shoulders and neck which seems to then cause headaches.
dannyxox in reply to
I just got diagnosed with it last week can it clear up xx
in reply to dannyxox
I don’t know, as no one seems to know what causes it, or what caused fibro. I can go weeks without it and then it’ll suddenly flare up from nowhere. I find direct heat helps. I put one hot water bottle on my chest, another against my back. Ok if you’re at home but no good anywhere else!
in reply to
Yes, it's horrible, I feel for anyone who has it. Love and hugs Lynne xxxx
Stabbing, shooting, burning pains around the ribs absolutely awful. I know others suffer the same and we would all say we would not wish it on our worst enemy.x
in reply to rosewine
Stabbing pains the worst for me then my knees burn them go back to normal x
Thank you. My Dr said I needed a stronger tablet for my stomach cos if one if the other meds I'm on. How's you tonight? Love and hugs Lynne xxxx
Thanks for sharing all... it's helpful to know we are all in similar situation and could talk about what works for us which might be worth a try for someone else.
I'm still trying to find what works for me about to start taking a muscle relaxant at night to see if that helps and I've started taking CBD again to see if that makes any difference.
Hope you're all having an enjoyable night... Lee xx
Shoulders, some of it is osteo arthritis but I know that pain and some of it is different, between the shoulder blades and making movement agony. None the less the steroid shots I'm getting for the osteo really help it all and I'm due another in three weeks - never thought I would look forward to such a thing!
Also if I 'overdo' it (and that's not a lot) I often get agonising cramps in my legs in bed at night. Just about to start gentle stretches to see if that helps.
xx
Shoulder pain radiating around upper ribs and into breast. I’ve seen ortho who have said arthritis and bursitis and have offered arthroscopy but looking at June/July. Lower back and groin the list goes on but the shoulder pain is the worst for me 😥
Shoulders, neck, then to head, arms and hands. My neck just locks cannot move. So stay at home when it is really bad. Having massage next week and Biomagnetic treatment in May. My legs are fine until I spend too long shopping or walking then I do suffer and knocked out the following day.
Well I have it every where I had pain in my back once end off work for a month cos it comes and goes arms are annoying ace I had it pain in my knee once worst it every been almost past out the pain was worst then my labour pains when I had my boys in groin cause me to walk like I dont want explain that part lol well it ent wining cos I am a fighter with theses pain feels like you in a boxing ring fighting all the nasty pains and dull aces and pins and needles every day x
The constant burning pain in both arms frm top to bottom n my muscles being tight as rocks
Defo the burning sensation particularly in my knees it can be brutal sometimes! Stabbing pains come a close second. One which really bothers me is the pain in my fingers and wrists🖐 this makes daily tasks torture! 💄💅✍⌨
Sending everyone peace and love and hope your pain gets a good d kick in the butt! ✌💕🌈keep up the good fight fellow fibro warriors 🤗🦸♀️
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