Hi it's a long post about so many different things I hope that's okay to share as I've never ever had any relief ever.
Back in 1999 new years eve I had my first ever pill ( ecstasy) and also cocaine at the same time .
I had a terrible terrible bad experience from the drugs withing 30 mins I left the rave in London and got mugged by 4 guys with knives I had this bolt of lightning feeling rush through my body and I never felt the same ever since .
6 months following that day I had a tattoo on my 18th birthday on the bottom of my neck ( I already had 4 big tattos and this was not even big) .
Withing 5 minutes a had a terrible feeling like I was gonna be sick and felt faint and had bad chest pains I felt so horrible and scared from that intense and all of a sudden shock to the system I could not continue the tattoo and 5 mins was enough.
Ever since new years eve and my 18th bday in june 2000 I have had pains in my head all over any movement any touch on my head neck and the bump at the top of the spine bottom of the neck and it soo tender and sore and the pain never let's up Ever!! A simple touch .
My head feels so tight and feels like my brain is pushing through my skull .I've had anti depressants specialist appointments scans everything and never found What it is and no medication takes the pain away .
Now my back . It started in 2013 I had no pain in my back but the first month before I was always complaining to work mates my left leg and arm are numb and feel dead like I was having a stroke or heart attack, and then a month later my back pain started and pinching a nerve was agony and couldn't move incase I did it again.
So I had to quit work inn December 2013 and move up north and live with my parents while I saw gps and then doctors and mri scans etc.
So I went to see a orthopaedic and spine specialist and he said I need to have l5s1 fusion surgery.
So I had the op 18 months after I moved up north and I just knew my luck that it wouldn't work and it didn't. If I sit up or stand up I'm in agony .
If I lean or twist or hoover lean over the bath to wash the dog same again. My leg and arm are so numb and walking hurts and now my fatigue is so bad and my whole legs ache I can't do anything for too long it's so hard to deal with this and my other problems .
My specialist who did the op called me in 6 months after the op and said I'm fine I'm fit for work and I told him everything and he said there is nothing wrong with me .I was so lost and confused .
Now I'm waiting for my rheaumotolohy appointment is it fibromyalgia and arthritis? I have no idea and my mum understands me and always has but others think because I can go up and down the stairs or walk the dogs for 20 minutes ( still in pain of course) they think I'm fine and have no idea how I feel .
If I had to sit or move about for 8 hours a day or even 4 I would be finished after a day of work .
I'm 37 now and really struggling with what to do . No pain meds work for either problems.
Also when I touch spots around my spine and bottom of me neck it is incredibly painful are they spurs does anyone else have this . Sorry for such a long post I've never talked about this before thanks Craig
Ps I quit smoking and alcohol 3 years ago even going up the stairs makes my legs so tired and dead is that the fatigue I go dizzy and feel very strange I used to have panic attacks and anxiety. Is it fibro or arthritis any help would be so useful while I wait for my rheaumotolohy appointment ( 3 months and counting)
Fibro newby
Fibro?
Fibro?
Fibro or what ?
Where what how your fibro started??
