Mobility issues

[Phoenix-Warrior]

How does everybody else deal with mobility issues? I'm having severe pains in my hips/groin and back so going upstairs or just walking is agony today.

[Hidden]

You seem to have a busy schedule even suffering I hope you manage to keep going although pacing is recommended with fibro..as for those weary legs maybe try going to a Jacuzzi for a while and try to do some stretching ,in warm water it can seem so easy..I have had hydrotherapy for many years to keep some mobility,,I find my local hospital a bit disorganized and the sessions are scanty thus causing ups n downs on keeping mobility good.

[Phoenix-Warrior in reply to Hidden]

Thank you - I've just gotten a swimming membership for my local pool (as a fibro friend of mine was referred for hydro but never received the therapy so I'm skeptical of what I'll be offered next month) I'm a little hesitant to try it but if hydrotherapy works it might be a good idea... just the push I could use. I'll start looking for a swimming cap!

[Mandypandy1969]

Luckily I live in a bungalow. I don't get out much due to chronic fatigue and pain. UF I go anywhere I don't walk far. I have osteoarthritis in my ankles and feet plus plantar fascilitis. UF I decide to go for a bit longer walk I use my walking pole/poles. It's all so hard. So debilitating with all the pain, aching and soreness/sunburn (nerve pain). I get really depressed. X

[Phoenix-Warrior in reply to Mandypandy1969]

I'm thinking of moving soon, I might suggest a bungalow to my new partner (but as he's the wage-earner it feels wrong to make suggestions). I'm so sorry it causes you so much pain to walk. I don't know if you've tried it, but Red Tiger Balm ointment really helps my joints when they flare up (I used to use it on my back too until I developed a slight intolerance and got red itchy patched) so that's around three to five pounds a tub online, I don't know if it might relieve it for you a bit. Sensitivity to day light is horrible. It's no wonder all of this affects our mental health. I hope things pick up for you x

[Mandypandy1969 in reply to Phoenix-Warrior]

It's all awful what we have to suffer with everyday. Why us? Xx

[YASMINTINA FMA UK Volunteer]

healthunlocked.com/fibromya..., I do find stretching like member zonnie has said helpful especially before I get up in mornings , warm Epsom salts bath I find great at the end of the day, wouldn’t be without those in the bathroom cabinet. I do use a bio freeze gel for knees, back when pain goes up a gear from walking. If you can pace with rest when you can ,easy said than done if you are busy but differently works for me , weekends is much easier I find to recharge . Xx

[Phoenix-Warrior in reply to YASMINTINA]

Baths are great! I've only had one occurrance where a bath didn't help, but my muscles siezed up and I couldn't get myself out of the damn thing, but you're right about the salts. What's the bio freeze gel like? I'll have to look into that. I'm not working at the moment since losing my job, I'm a part time student so I basically have everyday to recharge but somehow my battery pack has broken lol xx

[YASMINTINA FMA UK Volunteer in reply to Phoenix-Warrior]

Yes that helps and normally order that off amazon, went to get up today and bang painful aching body and sleeping, my bodies way today to say it’s not playing ball so I am resting it out and hoping Saturday will be better. Sorry to hear about the job but with this condition every day can be different, what are you studying x

[Hidden]

Hi

I have trouble too. I have a walking stick but invested in a 3 wheeled walker with seat which is great, if I'm out I can sit whenever I need to and then carry on. Please take care of yourself Lynne

[Phoenix-Warrior in reply to Hidden]

I've decorated my walking stick because I get so many confused looks and people always ask if I've hurt my leg or what's wrong with it! I'm glad you've found a walker that works for you. I'm starting to learn how important rest and pace is for fibro. Thanks Lynne

[Hidden in reply to Phoenix-Warrior]

Thank you. Love and hugs Lynne xxxx

[Phoenix-Warrior]

Hi Zoonie - with walking, is it the pace or distance you find that helps the most? I've always had a bad habit of rushing everywhere and find myself causing more harm than good, but I'm wondering if I slow it down if that will work... I might try walking to the bank today but I'll definitely look at Ask Dr Jo's stretches this morning, it might even coax me back into yoga.... thank you xx

[Daisy55]

Yes I have exactly the same problems in the same area and always my right side . I use a walking stick or take my shopping sholley to help my mobility . I use my tens machine a lot too . I find too that after a flare , the area affected always feels more fibrous , adding to needing to keep moving . I cannot walk far , and keep moving around the house as much as possible . I go for short walks to post a letter or to a local shop .

I hope you find a way to ease things and manage this awful condition and have fun in life too

[Phoenix-Warrior in reply to Daisy55]

I might try out a tens machine, had no idea what one was so googled it and very intrigued. I'm sorry to hear you're having the same issue, hopefully it improves for us both soon, stay strong x

[SLM23]

It’s horrible. No other way to put it really other than that. But since I’ve gotten a four wheel walker with the seat on it, it’s made it a bit easier to get about. If you need a break you can sit down then go on and you can just do what you are comfortable with. I’ve only had mine since April but the difference it’s made, it’s given me the chance to get out and do more. I’d definitely recommend one. I’m 24 so I can understand not wanting to have walking aids but at the end of the day, if it gives you a bit of relief and improves your quality of life then it’s worth it. Hope you find things to help soon

[Phoenix-Warrior in reply to SLM23]

Thanks, it's nice to know there's someone in the same boat! I might look into a walker if it gets much worse for really bad days. I'm finding I'm going out less and I'd like to get out and do more. I'm glad to hear it's improved things for you! Thanks again!

[Midori]

Yes, stairs are an issue when there are Mobility problems. A handrail on both sides helps. Have you thought of sleeping downstairs? is it possible to move to a disability enabled bungalow or flat? Is it possible to have a stairlift fitted?

I have moved to a disabled adapted bungalow; no bathroom, unfortunately, but a wheelchair shower room, which helps me immensely. I was lucky as I owned my house outright, and I moved to a cheaper part of the country, but If you are renting it could be problematic.

Social Services may be able to help with aids and adaptions to help you get about your home. They can come out and check your home for you.

[Phoenix-Warrior in reply to Midori]

I live with my mother currently who has the downstairs bedroom with her partner, I'm upstairs at the moment but am looking to move out and in with my own partner soon so it could be possible to look into stairlifts or potentially a bungalow (fingers crossed I'm going to suggest it - but he's a kind soul who would most likely carry me up the stairs whenever I needed!) or having a downstairs bedroom. We'll probably be renting so too many adaptations might be an issue. But if we asked social services that might change! Thanks for the advice.

[jessiegirl]

I have bursitis hipsand get cortisone shots every 12-14 weeks it helps me .then wears off .the dr. says ice it or heat what ever works

[MrsNezza]

Hi, this is my biggest problem, this is were my journey to being diagnosed with Fibro started & the fatigue. They have done an MRI was told slight damage but nothing that should be affecting my legs or giving me pain. I have been going to acupuncture now for 4 weeks. When i first went i was depressed & in pain all over, although im not cured i feel so much better to the point were its only my walking that is affected right now. When i went today & told him about the pain still when walking, he asked me about my back & is convinced there is a problem with my back. So he did more treatment on my back today. Dont know if it will make a difference but im not ready to lose faith yet. I get so fustrated going from an active independent person to someone who cant even walk up our street without being in agony so i've been housebound quite a lot lately as i dont drive. Hope you find something that helps.

[Phoenix-Warrior in reply to MrsNezza]

Wow - I'm glad to hear the accupunture has been effective for you. I'm visiting the pain clinic next month so will be trying everything they offer.

[MrsNezza in reply to Phoenix-Warrior]

Hi, well today i went to the musculoskeletal clinic today & im still in shock & cant believe how lucky i am. It turns out after 6wks of going through an emotional rollercoaster, which you have all been very supportive & helpful with, & will be forever grateful, i have been told i havent got Fibro after all, the problem is in my hip muscles, which can be treated & i should recover from with physio & a lot of hard work on my behalf. All i can say is i wasnt convinced after reading some of the things that people go through on here. Dont always trust the G.P's. Im just so glad i didnt take all the meds they wanted me to go on & didnt just accept what they told me. Good luck & best wishes to you all xx