Medication

[Pink-tiger]

How long was it for people to get medication and any form of help after diagnosis?

[Hidden]

Hi

How are you doing tonight?

The rheumatologist who diagnosed me just referred me back to my Gp who saw me straight away. Fortunately she is the best one at the practice!! She is lovely. I know it does depend on who you see. Take care Lynne

[Pink-tiger in reply to Hidden]

Hi lynne I’m Emma, Thankyou for answeing all my questions the rheumatologist I saw said somthing about referring me to pain management but that was a few weeks ago and I havnt heared anything I have a appointment with my doctor or the 15th and I’m hoping she will be able to help. I been stuggling for a long time but this past week has been really hard I havnt been sleeping takes hours for me to fall asleep then I keep waking up and my pain is just everywhere and my pain meds don’t seem to be touching it very well, just feeling Abit drained and fed up I think. Work has been really hard recently so maybe that isn’t helping, Thankyou for listening feels good to talk x

[Hidden in reply to Pink-tiger]

You are very welcome. Sleep, what's that?!? I did go to pain management but that particular one wasn't very good. I've been referred to one by my gastro and another that deals with orthopaedics, will wait and see, both are injections. Please take care. Love and hugs Lynne xxxx

[MichelleButterfly]

After I was diagnosed the Rheumatologist wrote to my doctor to suggest referring me to the pain management clinic and starting me on a certain medication. There was a wait for the clinic. I actually found it quite helpful. Although it didn't help with the pain as such, it helped me understand why we feel pain. What goes on within our bodies.

[grandmama16]

My Dr. started right away with different things, a Fibro class of exercises, therapy, and meds. The antinfammitory ones bothered by stomact, even the Vicoprofen which worked well for pain but had to switch to Norco that has tylenol. It works ok. At 75 I figure that's as good as I'm going to get. It started when taking care of grandkids...tho I had some symptoms before that.....coupled with depression, I take Cymbalta too.

[Hidden]

Rheumatologist wrote to my GP but to be honest I’ve no faith or trust in the practice I’m with. Having been misdiagnosed twice in a year ( told my headaches were another type of migraine when in fact I had a displaced bone in my neck— chiropractor spotted it in 30 seconds. Second time I was told a UTI was antibiotic resistant, just drink lots of water. After another 3 weeks of pain I saw a dr privately, antibiotics immediately, cleared up within a week) I’ve not bothered seeing them for fibro.

Did self refer to a physio who wrote to the GP saying I should be sent to pain management but because I attended a free Tai Chi course at the local hospital, pain consultant wrote there was no need to see me. I can only assume he has a crystal ball as has never met me.

If anyone has a GP who understands fibro, listens and treats them like a human being, hang onto him/her, put them on your Christmas card list, put them in your will if necessary !!!

[Lottiecolourpoint]

I went 2 agonising years before I was properly diagnosed 2018.

There seems such a little known or even recognised about fibromyalgia

Especially if you have rheumatoid arthritis it can muddy the water.

I did a lot of research myself with hubbies help and found out about

Pregabalin which is often used in the treatment of epileptic seizures. As fibromyalgia has a lot to do with the pain signals/pathways not switching off to put it simply,

It took a bit of persuading with my specialist but they agreed to me going on a lowish dose of this drug and it has helped a great deal it’s not gone altogether but has made it a bit more manageable which is great before this medication I was screaming and crying in agony and I have quite a high pain threshold!!

This quite a long post but you might like to do some reading up on it and see if it might help you.

I did try other things and homeopathic remedies but they didn’t work.

It is also important to try eat and well and get plenty of rest.

My sleep is still not great but nowhere as bad as it once was.

I know this is a long post but hope it will help you and others I wish you well and hope you get the help you need soon!

Karen

[Pink-tiger]

Thankyou so much everyone..... I have a appointment finally with my doctor on the 15th I’m hoping then can give me somthing to help..... I am only 27, I have 2 kids 8 and under and life is just really hard right now. My job as a room attendant isn’t easy and I’m doseing myself up on 60mg of codine and 500mg of naproxen just to get through the day when I come hope I am so tired and in so much pain I can barely function, not sure I can keep going on like this much longer. 1 more day at work and I’m off on holiday hoping the rest and hot tub for a week will help x

[Silmarillion]

My doctor is useless

[Debbs73]

Over 20 yrs. 😥