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Fibromyalgia Action UK
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Cramps and spasms

I know it is not uncommon to get cramps in the legs from time to time, particularly in the calves, but these last few days, I have had such noticeable spasms all over the body as well, even in the stomach, causing much pain. Nothing seems to ease them. They are just everywhere. I wonder if this is another symptom of Fibromyalgia, together with M.E. and IBS, of course, all on top of everything else we may suffer. Does anyone else have these symptoms? They are not just isolated cramps and spasms, but seem to be with me all the day. sincerely, Roselil

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Hi

I really feel for you. Is there anything your Dr/consultant can do for you?

Yes, I have them all over, my lower back is the worst today. I'm due to have a pain injection in my side as consultant thinks nerves were cut during surgery 5 years ago!! Hopefully I won't be in more pain after. The rest of me will still be in pain cos like you I have many more conditions!! Lots of love Lynne xxxx

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So sorry, Oldham 12 (MY husband/carer comes from Oldham) that you are having all these pains. I have not yet been to see my Dr., about these spasms and cramps and inward shakes. I know there is a drug which they can give, namely Flexeril, but I seem to be allergic to most drugs so am rather reluctant to take them. I try always desperately to find a herbal alternative. Hope you can get some ease from our nerve pain. I also have had an exposed nerve in my mouth due to receding gums, after some dental surgery. Love Roselil

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healthunlocked.com/fibromya... hello there, I do seem to be getting more and more cramps in different parts of my legs ,feet lately not sure why though but painful when they come on, I think stomach cramps /Ibs seem related to fibro from what I read here from many members , we really do get a mixture, I too have ME, but doc tends to label it cfs now,Medication can also make you constipated which I find is hard to define which is which that or the ibs, I do find a hot water bottle handy for stomach. Take care

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Thank you, Yasmintina, for responding. Yes, a hot water bottle helps a bit, but you cannot put it everywhere! I also have a neck collar which is helpful too heated in the microwave. I dislike Drs. calling M.E. CFS, for a believe there is quite a difference between the two. make sure you drink a lot of water to keep hydrated. I have found Senocalm quite helpful for IBS but not all the time. Beside the cramps and spasms all over the body, I also get a shaking inside, like nerves. Well, we have to cope with it all. I had severe M.E first and confined to bed for 3 years, then added Fibro. Been disabled for more than 30 years. But so thankful, my brain is still active. Keep going. Love Roselil

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I m pretty sure the Cfs came before the fibro but getting it diagnosed was hard as the doctor at the time was not helpful till I changed, the doctor I have now is brilliant and diagnosed both, I have treated sleep apnea as well but I will thank myself lucky that I am not Bed bound, I did have a bad patch just over a year ago where bed was where I spent most of my time, things have improved somewhat but I do have days when I cannot get up. I am resting at moment beside my beautiful little grand boy who is fast asleep he is one of the things that keeps me smiling, my husband took early retirement so always someone to help, he is 2years we watched Snow White and the seven dwarfs on Saturday with his brother who will be 5 this week, Disney films are lovely . What has happened to the weather very chilly here in Suffolk and rain again,I am in a bungalow so on nice days if I’m laid up I can see out of the window much nicer , glad we get to chat here so much understanding/empathy for each other as if anybody gets it we do. Roselil is a lovely name (Roses are my favourite flower 🌹)

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Glad you are in a bungalow. We are too. So glad we never went for a house. So glad there are no stairs. I am a Rose Lilian, so you see where I got it from. It is very chilly here today with some heavy rain, in Dorset. I am also able to look out of my bedroom window at the front garden, which is now so overgrown. My poor husband has been my full-time carer for so many years, and has to do so much. We need to get someone in soon to cut back all the hedges. I have no grand-children of my own, but have 5 step-grands. I only have one daughter, whose marriage broke up. yes, how we can understand the suffering of another, and can have prayer and empathy for them. it is good to have communications like this, to know that we are not alone. Hope you can get some help regarding that sleep apnea. I know someone who got help with that, and he is a different person. Take care. Love Roselil

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I suffer the same, I suffer with cramps on a lot of places, worse in my thighs which causes unbelievable pain, if sit on hard seating for a long time I end up doubled up with it, embarrassing in public! We used to love the theatre but I can't risk it now, the cramp in my thighs ends up causing severe agonising spasms down my spine. I also get the spasms in my side to under my ribs, feels like I'm tied in knots, GP not interested says just a stitch everybody gets it, but is it normal to get it throughout the day? I too have IBS, I find Senocalm is good but I do get heartburn from it. Have you tried any supplements that's out there for cramp from online supplement suppliers, Crampeze is one but it doesn't work for me. I am looking to pay for Acupuncture treatment, I used to have private physio some years ago and the clinic off we Acupuncture so I'm hoping it will help some of my symptoms such as the spasms, and pain. My GP is giving me Zomorph for Arthritis pain but nothing else, says he can't help the Fybromyalgia, nothing will help, that is not very helpful, I am seeing another GP in the practice t.morrow for a second opinion on everything that I'm going through as at the I feel like I've hit rock bottom and coming to a standstill. I hope you feel better soon, sending virtual hugs 🤗🤗🤗 Sue

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Hi I am in hospital at the minute started to get pain in my neck though it was the usual fibromyalgia pain as I get it all the time then the spasms started the pain is indescribable eventually on Sunday evening I gave in to demands from my loved ones and called the 111 service for a doctor to see if I could get any more pain relief and was rushed straight into hospital Where I still remain just waiting on scans and spinal team so I would say to get checked out and don’t just assume it is the fibromyalgia I even had the paramedics having a go that they where not contacted sooner so get checked out better to be safe than sorry

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Have you looked at the work of Dr Coimbra and fibromyalgia, among other things?

This is a very strange thing but a client told me about how to cure cramps, which I sometimes get at night, rarely, in my legs. She said to hold a cork next to the area and the cramp will go. Well, I thought this very odd but it works, goodness knows how, and I now keep a cork by the bed.

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WoW! Never heard of that, but thanks anyway. Trouble is the cramps and spasms are all over the body.

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I have cramps throughout my body all the time, but the most debilitating thing is cfs, I fall asleep without warning, sometimes fall over because I lose my coordination, my speech becomes slurry and I feel like my body is shaking. It's got its amusing moments like when my OH woke me up for dinner and I was falling asleep when I was eating, but sadly have been told that there is no help for cfs 😠 gentle hugs 🙏 xx

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Oh dear, gothicmum, I understand that fully, having had M.E and Fibro and IBS etc. etc. for years. I can sleep during the day and go off very deep too. It is like a drugged sleep, even if one has not taken any drugs. I lost my speech altogether years ago, being told that my muscles are too weak to operate the vocal chords, but I do just get some weak sound back some days now if I rest plenty. I can emphasis with all you have written and feel so sorry for you. it is hard to come to terms with. Just make sure you drink plenty of water, keeping hydrated, and also take vitamins and minerals, particularly magnesium and B.12 Just hope you will get some improvement. I have tried so many things for the bodily pain, but am managing now just on the soluble Panadol Extra, less sde effects altogether. Take care dear.

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Thankyou Roselil, sorry you lost your voice, I'll definitely try vitamin b12 already taking magnesium gentle hugs 🙏 xx 💐

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Yes, Vitamin B12 will help with your tiredness. My voice loss started back in the 1960's when my daughter was young. I took an evening job of demonstrating merchandise and I found I just could not project my voice even then! I was also a Manager in a company in about 1968, and had to take meetings, but my voice was so weak, I could not cope, so eventually had to leave. Been quite a struggle all these years, and now elderly, have had to deal with deafness for the last 25 years, and disability for some 33 years. gentle hugs to you too.

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It must have been so difficult being a mum and trying to work with losing your voice, and then to lose your hearing on top of all that, how have you coped with everything? MS and Fibromyalgia are not kind conditions and I think that only people who are going through either or both of these understand. Sending you big gentle hugs 🙏 xx

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dear friend, I have had far more sufferings, being in a wheelchair after 3 years confined to bed. The difference is that I am a Christian, and I know suffering works for my good. It keeps my more humble and caring towards others.

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You are very caring and brave, you have gone through so much, but still reach out another person to offer comfort and advise, would love to chat again, prayers blessing and gentle hugs 🙏 xx

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Anytime, dear, that I might be able to help you, please write. Love from Roselil

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Hi, exactly same for me. Spasms, twitches and cramps randomly all over the body.

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So very sorry, Fibro786, you have my deepest empathy. Love Roselil

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I get them in my left side/back, the spasms are painful and if I have a full blown one it'll be really sore for days after, I have asked a GP about them she just said it's probably your muscle which really is of no help lol.

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So very sorry, WF2k, you are also a sufferer. May things get better for you. Not much can be done for such painful muscles. I cannot have my BP taken on the arm due to horrendous pain, and they will not accept a wrist monitor as being accurate. it is always too high anyway. Love Roselil The best I know is aloe vera rubbed in, which cools.

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