Round in circles

[Cheshiredog]

I’ve been able to manage my pain for years had it since I was 16 I’m now 31 n now it’s getting to the point of booming and busting no Matter what I work I’ve been in and out of jobs for a while now as the business people only care if I work or not and that makes my anxiety worse which is something I’ve only troubled with in recent years I’ve done alsorts to help like the pain management program which has helped in ways but not in other ways like working with people that don’t take in consideration that your disabled but dont look it and few don't care as they only care if your working

I feel stuck as I’m not on disability I work what I can to pay the bills and feel I get no help from no one but close few who can where they can

Just writing this I have pins and needles in my hands now

I feel lost hopeless alone scared n I’m not a weak willed person

I’m a grafter but all that doesn’t change what pain I’m in

Can anyone help me

[Dizzytwo Moderator]

Hi there, let me wish you a warm welcome to the group I am sorry it sounds like your really struggling right now.

May I ask do you take medication for your Fibro? When was the last time you spoke with your GP it maybe time to let them know your health issues have progressed so they can re assess your needs.

Have you looked into any kind of monetary help that may be available to help you cut your working ours?

It's hard I do understand I've suffered for 35 years and remember when I was 30 two kids running a home and part time jobs not easy at all with Fibro that's for sure.

I see your post is unlocked. You may like to think about locking it for privacy reasons. You don't have to but it is advisable. If you wish to lock your post this link will show you how.

healthunlocked.com/fibromya...

Momo

[calliejx]

Hi x I could have written your post a couple of years ago. I have several health probs and was working - I've always worked - diagnosed in 2015 with Fibro..my works occupational health guy wouldn't allow me to work more than 6 hours as by balancing work/rest he felt I'd be more able to attend. Pride, money, not listening to my body and wanting to feel normal made me keep trying .. to my detriment. I didn't get PIP even though I appealed so carried on. Eventually I had a spinal OP so absolutely couldn't go back to work. I was lucky to get lower rate both then my SSP turned to contribution based ESA. I think I so tried to be as I was before these probs and the fear of no money, feeling useless drove me on.

My advice now is to not try to be as you were, apply for PIP and try and accept your limitations. It's so very hard when you've always worked - I had 5 children worked nights days afternoons but now I'm having to accept I'm not the woman I was. Be honest try and get some money help. Good luck, I do hear you. X