face changing words.

[nuttynan]

Hi all I was am experiencing all of this and was also thinking I was loosing it. My grandchildren have fits of laughing when it comes out funny and makes no sense at all. Making me feel useless and stupid. The time I was at a hospital appointment they went to say hello and shake my hand and I said good bye and shook they hand. Felt like an idot and wanted the ground to open up and swallow me. It gives me lack of confidence.

[MichelleButterfly]

I too have cognitive problems. It can make you feel sad and like you are going crazy. You are not the only one I assure you.

[Fra22-57]

I have been like it few years and at first it really upset me but I find it easier to laugh along.Its harder when I cant get a word out but am relieved it's not start of dementia.

[Rose54]

Hi

I have learnt to laugh about it instead of getting upset

To be honest its the funniest thing that happens in my house and has my son and myself in fits for hours .

I was trying to think of Aliens the other night and have to think of other words before I get to the one I mean .So out popped marsh mellows good thing we where watching Project Blue on TV so he knew what I was trying to get at .

15 min later after floods of laughter I explained the process behind my thinking

I meant Martian

This would eventually get to Aliens .

Ii wanted some tomatoes the other day and wanted to ask my Mum if she had any and I asked for potatoes.

Then had to do a word game

Thay are round

Red

You grow them

Have with salads

And so on and so on

So like you another nutty nan and Mum

[Hazel_Angelstar Administrator FMA UK Staff]

I've found that you just need to learn to laugh at the daft things fibro fog causes you to say or do. It can be like a have of charades with me sometimes, trying to find the name of something xxd

[doxie1 in reply to Hazel_Angelstar]

I know what you mean Hazel and makes you feel worse when your family don't understand this condition

[Hidden]

I'm sorry your confidence is knocked. It can be embarassing, especially with strangers or in social situations but I try not to dwell on it and also try to see the funny side of it. It's not our fault after all and we can't change it xx

[Robbie138]

How great it is to know your not the only one suffering this, I too was thinking dementia, so I asked Dr about it and he said make a double appointment and we can do a test. Once I got home and thought about it I went into panic mode 😱 deciding if it was dementia, I’d rather not know. So like everything else it’s thrown under the Fibromyalgia umbrella 😂😂 as we all know Fibro mimics a lot of other ailments. I once said to grandkids on a really hot day, Omgoodness my face is as red as a banana, well you can imagine the kids 😂😂😂 and they haven’t let me forget it.

Well I hope you all have a lovely and as painfree weekend as you possibly can.

🤗🤗🤗 xx

[Deni52 in reply to Robbie138]

did you do your test?

[Robbie138 in reply to Deni52]

No, because I’d rather not know 😂 I just blame everything on Fibro.

🤗🤗

[Deni52 in reply to Robbie138]

😂😂 I think you are thinking logically so I wouldn't worry about it lol

[Robbie138 in reply to Deni52]

😂😂 thank you 😊

[rosie-2015 in reply to Robbie138]

Like you I mentioned it to a consultant I was seeing about an head and neck MRI right away she took out a test sheet I could have cried but I calmed down and did as much as I could, I couldn't remember the three words that she gave me at the beginning but I don't think I failed, I did think I had but when I asked her she said that I had done alright, I still use silly words and for some reason when I'm doing a capital l turn it into the number four lol sorry for the long reply but I hope some of it helps

Rosie xx 🌹

[Robbie138 in reply to rosie-2015]

It wasn’t a long reply 😂😂 it makes you wonder how so many of us do suffer with the loss of memory, I try doing crosswords ( not hard ones) I used to be a good at spelling 😱 not anymore, so I take twice as long, I get annoyed at myself as I know I know the answer but it’s just lost. Lol 😝

🤗🤗xx

[rosie-2015 in reply to Robbie138]

Try not to let this pull you down, I know it's hard to laugh it off all the, I think it's one of our worst fears. It's worse when you're on the phone, I try to make a joke of it and say I've had the filters taken out of my brain haha, I hope you have as pain free a weekend as possible

Rosie xx 🌹

[perseverance01 in reply to Robbie138]

That really has made me laugh out load which I haven't done for some time. Thankyou feel like a complete idiot when I go out I can't remember anything and my anxiety is extreme. I feel like such an idiot.. I become manic in my conversations - hyper and ramble on bout rubbish it just comes out and then i don't even know what I was talking about in the fist place I just forget. It's getting to the point where I dread having to go out. So thankyou for my smile!

[Robbie138 in reply to perseverance01]

Haha, I’m glad you had a laugh, it’s good to laugh or we’d end up always crying. I’ve got a few more stories I can tell like all of us can. I too do the things that you do, and I bet the majority of us on here are in the same boat, what I hate most is when your in deep conversation and all of a sudden I say why was I telling you that, I’ve lost all train of thought, and it’s all gone blank, so your not alone. I hope you have a lovely smiling day. :):):).

😂😘 xx

[perseverance01 in reply to Robbie138]

You too! X

[1499]

I experience getting my words wrong to at times now and again. I think if you have fibro and especially the fatigue with it and on top of that medication it is quite common. When it does happen with me at times my son will repeat what I've said and we all laugh. I just tell my grandchildren I haven't got my working head on today. Try not to take it too seriously if you can. If I come out with the wrong word etc I just laugh and say oh Im so sorry my heads not working right today! I remember my family had a surprise 40th birthday for me that's 25 years ago. I was taken out for a meal but didn't realise I was going back to a packed house. I got such a shock when I opened the door and everyone was cuddling me saying happy birthday and I kept saying happy birthday to you to! We were in stitches lol. I had no excuse then! I hear people all the time complaining about this with fibro and fatigue. If your family love you as I'm sure they do then laugh with them. You have no idea how many families would love grandparents ,they have years of experience to pass on and lots of wisdom and good advice. hugs x

[KateMaguire]

I turned up to 2 appointments this month, the first I was a week early for and the second 3 hours early! Unfortunately they were at the same place and I felt like a total idiot. It happens to us all, just try to laugh about it. Xx

[Robbie138]

😂😂😂 Omgoodness I’ve done that too,

🤗🤗 xx

[Strayspark]

Hi Nuttynan

I know how you feel I come out with the strangest words at times, and I think why, I laugh at myself, but deep down its not really funny, then again I think oh what the hell thats me now.

Stray

[2pods]

It's hard, but try not to let it get you down.

I do it all the time. Everything seems to speed up, and the words come tumbling out. I've started saying things backward, e.g. "table kitchen" instead of kitchen table. The worst is either forgetting a word, forgetting what I've just said, or what I was going to do...

The doctor says its a mixture of brain fog, my meds, and just overall fatigue. My nephews are always laughing at me too. At least it gives them a bit of free entertainment

[doxie1]

It is really scary how many parts of your body can be affected by this debilitating condition.

[jools495]

I get my words mixed up, sometimes I cannot say the word I want to use, I just stammer stuck on the word. I have to describe things to my family, mainly my husband, so they can tell me the word I need. My mind goes blank when I have to spell a word. I used to be really eloquent, and really good at spelling, gone are the days. The only thing to do is laugh in the face of adversity. I describe myself as having my marshmallow head on. Self deprecation is definitely the way to go. I just wish they could get to the bottom of what causes this condition so that doctor’s would not be so dismissive of it. You go and see a rheumatologist and they tell you you have fibromyalgia, and you are then left entirely on your own to deal with it. I would gladly take part in clinical trials.

[Seconds]

Hi I too have cognitive problems too I have done exactly the same as you and my language can come out normally or all jumbled up especially with people I have never met but happens at home too,I also have lost confidence not around my family as they laugh with me not at me but people outside the home it’s very embarrassing as I don’t know what’s going to come out even said swear words and meant something completely different it is a another symptom of fibromyalgia sending best wishes your way x