Face twitching : Hi to all haven't been... - Fibromyalgia Acti...

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Face twitching

Dod79 profile image
7 Replies

Hi to all haven't been on for a while hope your all doing as well as you can be. Over the past few months I've had a lot of face twitching people look at me like I'm out my face on drugs that doctors haven't given me. My jaw also mores without me even noticing I'm doing it happens all the time now just wondered if anyone else's has these symptoms. Family members have accused me of taking cokecanne whitch is why my face is moving I haven't a clue never tried it bad enough taking the meds the doctor gives me let alone these sort of drugs. My weight lose is becoming a problem for me now I'm now weighing only 7st 8lb but doctors don't see it a problem the first thing they say is do you eat. Of course I bloody do I love my food my IBS is playing a role with this I think but doctors don't seem to care my consultant said to me you not skinny just thin better than being fat. Really is that the answer I'm wasting away you can see ever bone in my body my myscle well what muscle they are just lumps now days please does anyone else have the same symptoms of me really could do with so advise. sending gentle hugs to everyone

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Dod79 profile image
Dod79
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7 Replies
TheAuthor profile image
TheAuthor

Hi Dod79

I have read your post with so much pain and sorrow for what you are having to endure, and I sincerely hope that you can find some resolution to these issues. You do not say what medications you are taking but I would seriously discuss alternatives with your GP as soon as possible. If they will not listen then I would be tempted to go to your local walk-in centre or A&E department and explain everything as this sounds quite serious to me! It could be that you need something simple such as an IBS drug? But please do talk to a medical professional about what is happening for you.

Please take care of yourself.

All my hopes and dreams for you

Ken

Dod79 profile image
Dod79 in reply toTheAuthor

Hi thanks for the reply I've been taking my medication for over a year now and have no change of medication that could be a cause for this I take gabapentin amitriptyline cerazette omperazole Quinine Senna mebervine tranexamic ibuprofen have fibro IBS and a lot of lady's problems but the twitching is now driving me mad sending gentle hugs

Treewade profile image
Treewade

Have you been tested for celiac hunny my cuz has it and she ways 7stone 6 ish and eats so much crap but because of the celiac she doesn't gain but loses weight xxxxx

Dod79 profile image
Dod79 in reply toTreewade

Hi thanks for reply not that I know of just had full blood count done its border line what ever that means and have high white blood cells but that's all the doctor told me repeat blood in 2 weeks sending gentle hugs

Treewade profile image
Treewade

Celiac doesn't always show in bloods but think that could be a common thing for our condition crap blood results I haven't passed a single test but it's not always the same ones that let me down well except liver function my bloods fluctuate sooo much xxxxxx hope they sort you hunny xx.

Dod79 profile image
Dod79

Thanks again for your reply I'm at the doctors again this week so I will see what they say but already no the answer they just say it fibromyalgia just get on with it if only doctors actually did something so many people wouldn't be suffering my doctors seem to brush me of with everything I have going on its all fibro thanks again sending gentle hugs

MariLiz profile image
MariLiz

Have you ever had your levels of B12, ferritin, folate and VitD tested? Twitching is certainly linked to low B12, once I began the injections my twitching eased very quickly. Alternatively you could ask to be referred to a neurologist. Do hope you find a solution soon. Best wishes MariLiz

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