Hi all I was am experiencing all of this and was also thinking I was loosing it. My grandchildren have fits of laughing when it comes out funny and makes no sense at all. Making me feel useless and stupid. The time I was at a hospital appointment they went to say hello and shake my hand and I said good bye and shook they hand. Felt like an idot and wanted the ground to open up and swallow me. It gives me lack of confidence.
face changing words.: Hi all I was am... - Fibromyalgia Acti...
face changing words.
I too have cognitive problems. It can make you feel sad and like you are going crazy. You are not the only one I assure you.
I have been like it few years and at first it really upset me but I find it easier to laugh along.Its harder when I cant get a word out but am relieved it's not start of dementia.
Hi
I have learnt to laugh about it instead of getting upset
To be honest its the funniest thing that happens in my house and has my son and myself in fits for hours .
I was trying to think of Aliens the other night and have to think of other words before I get to the one I mean .So out popped marsh mellows good thing we where watching Project Blue on TV so he knew what I was trying to get at .
15 min later after floods of laughter I explained the process behind my thinking
I meant Martian
This would eventually get to Aliens .
Ii wanted some tomatoes the other day and wanted to ask my Mum if she had any and I asked for potatoes.
Then had to do a word game
Thay are round
Red
You grow them
Have with salads
And so on and so on
So like you another nutty nan and Mum
I've found that you just need to learn to laugh at the daft things fibro fog causes you to say or do. It can be like a have of charades with me sometimes, trying to find the name of something xxd
I'm sorry your confidence is knocked. It can be embarassing, especially with strangers or in social situations but I try not to dwell on it and also try to see the funny side of it. It's not our fault after all and we can't change it xx
How great it is to know your not the only one suffering this, I too was thinking dementia, so I asked Dr about it and he said make a double appointment and we can do a test. Once I got home and thought about it I went into panic mode π± deciding if it was dementia, Iβd rather not know. So like everything else itβs thrown under the Fibromyalgia umbrella ππ as we all know Fibro mimics a lot of other ailments. I once said to grandkids on a really hot day, Omgoodness my face is as red as a banana, well you can imagine the kids πππ and they havenβt let me forget it.
Well I hope you all have a lovely and as painfree weekend as you possibly can.
π€π€π€ xx
did you do your test?
Like you I mentioned it to a consultant I was seeing about an head and neck MRI right away she took out a test sheet I could have cried but I calmed down and did as much as I could, I couldn't remember the three words that she gave me at the beginning but I don't think I failed, I did think I had but when I asked her she said that I had done alright, I still use silly words and for some reason when I'm doing a capital l turn it into the number four lol sorry for the long reply but I hope some of it helps
Rosie xx πΉ
It wasnβt a long reply ππ it makes you wonder how so many of us do suffer with the loss of memory, I try doing crosswords ( not hard ones) I used to be a good at spelling π± not anymore, so I take twice as long, I get annoyed at myself as I know I know the answer but itβs just lost. Lol π
π€π€xx
That really has made me laugh out load which I haven't done for some time. Thankyou feel like a complete idiot when I go out I can't remember anything and my anxiety is extreme. I feel like such an idiot.. I become manic in my conversations - hyper and ramble on bout rubbish it just comes out and then i don't even know what I was talking about in the fist place I just forget. It's getting to the point where I dread having to go out. So thankyou for my smile!
Haha, Iβm glad you had a laugh, itβs good to laugh or weβd end up always crying. Iβve got a few more stories I can tell like all of us can. I too do the things that you do, and I bet the majority of us on here are in the same boat, what I hate most is when your in deep conversation and all of a sudden I say why was I telling you that, Iβve lost all train of thought, and itβs all gone blank, so your not alone. I hope you have a lovely smiling day. :):):).
ππ xx
I experience getting my words wrong to at times now and again. I think if you have fibro and especially the fatigue with it and on top of that medication it is quite common. When it does happen with me at times my son will repeat what I've said and we all laugh. I just tell my grandchildren I haven't got my working head on today. Try not to take it too seriously if you can. If I come out with the wrong word etc I just laugh and say oh Im so sorry my heads not working right today! I remember my family had a surprise 40th birthday for me that's 25 years ago. I was taken out for a meal but didn't realise I was going back to a packed house. I got such a shock when I opened the door and everyone was cuddling me saying happy birthday and I kept saying happy birthday to you to! We were in stitches lol. I had no excuse then! I hear people all the time complaining about this with fibro and fatigue. If your family love you as I'm sure they do then laugh with them. You have no idea how many families would love grandparents ,they have years of experience to pass on and lots of wisdom and good advice. hugs x
I turned up to 2 appointments this month, the first I was a week early for and the second 3 hours early! Unfortunately they were at the same place and I felt like a total idiot. It happens to us all, just try to laugh about it. Xx
Hi Nuttynan
I know how you feel I come out with the strangest words at times, and I think why, I laugh at myself, but deep down its not really funny, then again I think oh what the hell thats me now.
Stray
It's hard, but try not to let it get you down.
I do it all the time. Everything seems to speed up, and the words come tumbling out. I've started saying things backward, e.g. "table kitchen" instead of kitchen table. The worst is either forgetting a word, forgetting what I've just said, or what I was going to do...
The doctor says its a mixture of brain fog, my meds, and just overall fatigue. My nephews are always laughing at me too. At least it gives them a bit of free entertainment
It is really scary how many parts of your body can be affected by this debilitating condition.
I get my words mixed up, sometimes I cannot say the word I want to use, I just stammer stuck on the word. I have to describe things to my family, mainly my husband, so they can tell me the word I need. My mind goes blank when I have to spell a word. I used to be really eloquent, and really good at spelling, gone are the days. The only thing to do is laugh in the face of adversity. I describe myself as having my marshmallow head on. Self deprecation is definitely the way to go. I just wish they could get to the bottom of what causes this condition so that doctorβs would not be so dismissive of it. You go and see a rheumatologist and they tell you you have fibromyalgia, and you are then left entirely on your own to deal with it. I would gladly take part in clinical trials.
Hi I too have cognitive problems too I have done exactly the same as you and my language can come out normally or all jumbled up especially with people I have never met but happens at home too,I also have lost confidence not around my family as they laugh with me not at me but people outside the home itβs very embarrassing as I donβt know whatβs going to come out even said swear words and meant something completely different it is a another symptom of fibromyalgia sending best wishes your way x