Legs

[Chance15]

Hi folks does anybody suffer with legs that feel like lead heavy.Ive had this for about 4weeks now it’s not nice.All my doctor says it’s ur fibromyalgia causing it.I just get the impression that they can’t be bothered with us everythink is fibromyalgia related 😡

[Hidden]

Yes, I get this too sometimes but I do have other conditions so it could be a mix of them all. Take care Lynne

[rubycheshire]

I have had very heavy legs for about 4 years now. My feet feel like I am wearing very tight divers boots. Just lately though mine have changed. I am now getting a lot of big bruises on them. I am trying to get an appointment with a different GP to see if they can shed any light on it. Like you I have been told it is all down to Fibro just like anything else.

[aprille2150]

I have this but I also get what I can only describe as iced water going inside my legs then the heaviness starts xx

[Bemoresquirrel]

I’ve had this since early 2013, it’s like wading through very deep mud where your wellies are being sucked down. It means I have to keep stopping for a rest and can’t walk very far.

[Jenlovesnails]

Me too. I have a tendency to end up dragging my toes. More so my left foot. My brain thinks I've lifted them high enough but then I scuff them when walking. I have to also remember to do my own pace as I try to keep up with others who forget (I just found out I have fibro a few weeks ago but was diagnosed in 2009, long story) and then I suffer or trip. Take care

[Patdoyle in reply to Jenlovesnails]

Yes I get this too. I am always tripping over my own feet. Can’t keep up with others so I just plod along at my own pace.

[YASMINTINA FMA UK Volunteer]

With me its the tightening all the time with my calf muscles so that tends to make my legs feel heavier, don’t think I could be without a bath in my house as I buy products to put in and have a soak , Could you try another doc at your surgery or even practioner nurse they do seem to be quite understanding at my surgery and have a lot of empathy. I do find sitting out in the Spring Sunshine for alittle while did help ,differently warming up feels better than the Winter cold. Hope you get some help .x

[Chance15 in reply to YASMINTINA]

Yes I will try another doc or nurse also thanks for ur reply and others.

[Sue_64]

Yes I have that. I once tried to explain to my doctor it was like ploughing through mud, especially later in the day as I get more tired, he said I had had a good imagination, made me feel like I was making it up he doesn't believe the condition exsists , thank goodness he's retired now, my new doctor is more supportive. One of my Neighbours diagnosed with Fybro last year also suffers the same, if we meet up walking up the road (we live on a hill) we must look a right pair dragging ourselves up the hill, we have our stopping points to rest & lean on a lamppost or wall she says it feels like sinking in quicksand. I like a soak with Epsom Salts in the bath it really helps relax the muscles. Take care Sue xx

[Marz]

Could it be Iron Deficiency or LOW B12 ? Do you know your levels ? Iron transports Oxygen around the body - in the red blood cells - so LOW Iron = LOW Oxygen. All our cells need Oxygen

[Chance15]

I av positive intrinsic factor antibodies also pernicious.I av b12 injections every 8 weeks.Yes I av low b12 but just in range.

[Marz in reply to Chance15]

Just spotted your reply as you inadvertently forgot to click Reply below my post - so I did not receive an alert No Problem - easily done. If you are having B12 injections then I am wondering if you are taking B9/Folate/Folic Acid daily. Folic Acid works with B12 in an important way in the body.

As you have PA which is auto-immune I think it is important you also check Folate - Ferritin and VitD as they could be LOW too and contributing to your symptoms. Also rule out Hashimotos with the correct testing - Auto-immune Thyroid is often present in PA sufferers. Maybe you need B12 injections more often too. How long have you been diagnosed with PA ? Are you a member of the PAS - Pernicious Anaemia Society ? There is also a Forum here on HU for PA and B12 Deficiency ...

[Chance15 in reply to Marz]

Sorry about late reply Marx

I didn’t know I ad pa I only found out by checking my online medical record it was positive for intrinsic factor antibodies also positive for Pedicle cell as well excuse bad spelling.I had been backward and forward to doctors not feeling well tiredness no energy so and so I just put it down to Mu underactive thyroid.I had my vitamin d done last year it’s was very good.

Any way cut a long story short I had to fight for them vitamin b12 injections every 8 weeks.When it come to my 3rd injections I was told it was every 3 months.I made it quite clear it’s neurological so every 8 weeks

I also have fibromyalgia I take 3x5mg folic acid every day.

A big thank you for ur help and time.

[Marz in reply to Chance15]

Glad you have managed to have your B12 injections increased ! Do you know your level of T3 ? -perhaps your GP does not request it when you are having tests done. You could check on-line to see which Thyroid tests have been done and what are the results. TSH is good around 1 or under when taking Levo - T4 and T3 are good in the upper part of the range. Have you had Thyroid anti-bodies tested ? - PA is as you know an auto-immune condition and many PA people also have Hashimotos. Re the heavy legs - have your had Ferritin ( stored Iron ) checked ? Or had a Full Iron Profile done ? How much Levo are you taking ?

[Chance15 in reply to Marz]

That was a quick response Marz

No docs don’t do t3

My tsh is good as from 6 months ago 00.2 t4 can’t remember now.throid 150 mg.no ferritin or full ion test done.

Not showing Hashimoto they are low.

[Marz in reply to Chance15]

The T4/Levo you are taking needs to convert into T3 - a hormone needed in every one of the trillions and trillions of cells. So when low - things begin to go wrong and can be one of the causes linked to Fibro as I eventually discovered ... If Ferritin is low it can affect coversion of T4 into T3 ... 😊

[Chance15 in reply to Marz]

Marz I noticed medichecks have a 20per cent discount on wud u be able to give me a link please.What checks wud be best for me.😀

[Marz in reply to Chance15]

thyroiduk.org

Click onto the link above and then onto - About Testing - where you will see the various companies and their test packages under Private Testing. I live in Crete so don't have to use them but thousands on the Thyroid UK Forum do as its the only way to have the correct testing done. TSH - FT4 - FT3 - ANTI TPO - ANTI TG. Folate - Ferritin - VitD. The bundle also includes B12 which in your case will be off the scale 😊

When you have your results you may wish to post them for helpful comments on the TUK Forum.

Happy to help. ...

[Chance15 in reply to Marz]

Thanks for that Marz I will do that now.

[MariLiz]

Mine were like this before I got diagnosed with low B12. Now I have regular injections and they are much better.

It may not be the fibromyalgia.

[Kitten-whiskers]

I used to suffer with that, i noticed that I only seemed to get that on my most fatiqued days now, i personally put it down to my thyroid as they are also freezing cold, even in hot water. Doctors aren't really interested in my opinion, they have never done anything to help me, ever