How to recognise what is not fibro pain?

[Amelie201]

I am worried that some symptoms could be brushed off as fibro pain when in fact they are not.

Am I the only one worrying?

[Hidden]

just mesg the forum with anything you are unsure of but dont ignore thiings if they are mega painful make g.p appt.

[RayB]

Amelie,

It's a grey area,, and in reality I think it is always going to be a grey area,,, but then again a Dr's diagnosis is often seen as solid but again it's usualy an opinion based on experiance.

Ray

[Jemcc22]

im going through this atm, for the past 2 years I keep getting new symptoms and past 4 months have become extremely unwell. The doctors aren't interested in doing anything, they keep blaming my fibro and refusing to do tests or look at other possibilities. wish u all the best

[Mandypandy1969]

No you are not. I feel you can't blame everything on fibromyalgia. X

[Hidden]

No I think most have same worries, I had to keep going back and still seem to be getting diagnosed with more and more things,like carpal tunnel,arthritis, ..list goes on,so if you feel you have something on top of what you have then keep going back its your body,you live with it not the drs alright?don't be worrying about them being offended or can't be bothered. Best of luck to you,keep us updated please??😷😵😱😁😄

[Jamie1965]

Unfortunately I had a doctor that blamed everything on my fibromyalgia until I was rushed into hospital last year with sceptic arthritis which I was advised at the time as life threatening the pain was unbearable and totally different to any flare up I have ever had but the doctor at the time would not listen then the next day my partner said enough was enough and called the ambulance the lady on the phone decided it was my fibromyalgia and other half lost his temper with her and I ended up in hospital very ill for 11 days since then any issues with me the doctor now checks out with an open mind and do t just blame fibromyalgia for it cause if this they have found I have narrowing of the vertebrae through my whole neck multiple level of disc degeneration and tissue in the base of my spine that should not be there but to risky to remove if you have a doctor that blames everything on fibromyalgia I would surgest you change doctor or insist they check you for other issues a lot of us have most than one diagnoses but you know your own body and you know when somthing is different trust yourself

[Maz68]

The problem is fibromyalgia is such a broad term used for many symptoms. I was diagnosed in 2009. I have so many aches n pains, and several times I’ve been brushed off by Drs when I get new symptoms. But on 2 occasions, I suffered extreme pain, first was 2 years ago when I kept getting extreme pain under my rib, twice i was admitted to hospital, and second time a sympathetic Dr took the time to do lots of tests, and diagnosed me with several gallstones. After surgery to remove gallbladder and stones, I felt so much better. I was angry my gp had let me suffer for 18 months and kept brushing me off by blaming fibromyalgia and indigestion, then 3 weeks ago I had sharp pains in my chest, after a few days I woke early one morning with tightness across my chest. I felt dizzy, had palpitations and sweating! I was reluctant to go to gp or hospital as knew fibromyalgia would be blamed. But the tightness didn’t ease so I had no choice but go to my GP. Was told I had vertigo and palpitations was down to anxiety!! Then 5 days ago, the chest pain came back much worse than before, I couldn’t breathe and was taken to hospital. Within an hour of arrival I had an ecg, chest X-ray and ct scan. I was admitted to coronary care, and after having an angiogram I was diagnosed with Angina. The Drs said I was lucky it didn’t escalate to a heart attack. Those 3 days in CCU made me realise just how easy it is for any new symptoms to be brushed aside as Fibro. I’m sorry for the long post, just felt I needed to share my experience, and to stress how important it is for everyone to be persistent with new symptoms and not to made to feel ashamed or embarrassed to push for answers. Take care everyone ❤️

[Nessie87 in reply to Maz68]

It’s amazing that this happens! I feel such a whinged sometimes, going to doctors with pain that they try to brush off as the fibro!

A year ago I slipped and broke my hip, had to have a total hip replacement! There was nothing wrong before. Now I’m in chronic pain from the hip replacement which they say is being caused by trochanteric bursa, I’m waitin for a steroid injection for that! Meanwhile, think the hip replacement started off a chain reaction as the knee on the same leg developed a torn meniscus and end stage arthritis! I had knee arthroscopy to trim the meniscus but still in pain, they gave me a steroid injection, but it’s made no difference. They said I need a knee replacement but want to keep giving me the injections. Maybe they don’t like to do replacement before 60? (I shall be 60 in September this year though!).

[Mdaisy]

Hello Amelie201

This is the question isn't it? So we all have concerns about this sometimes. The Drs seem to think we can distinguish between what is Fibro pain and what is something else. I would say any new symptoms you are concerned about you can post on here for others opinions and experiences however this does not replace the information and diagnosis from your own HCP.

If you are concerned today (weekend) you should ring 111 out of hours to speak to someone or if severe go to your local A&E. If it can wait until next week you can make an urgent or non urgent appointment with you GP.

I've noticed this post isn't locked to this community only, so if you wish to do this the link below will show you how;

healthunlocked.com/fibromya...

Please try not to worry to much as the stress and anxiety could possibly be making your Fibro pain worse which will then make other new symptoms worse maybe.

Hope this helps

Emma