Cant seem to give into using a wheel ... - Fibromyalgia Acti...

Fibromyalgia Action UK

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Cant seem to give into using a wheel chair


So I am 22 years old, I was having a service dog trained but she just passed from a freak accident, my mobility comes and goes there is days I can walk miles. Then there is days I can barely walk a few feet. I have EB so I am affected externally and internally from this condition. From a young age I was told I would be wheelchair bound, a lot of people with my condition are. My whole life ive tried making sure I can be independent, my boyfriend is supportive of a wheel chair. I just cant seem to get around to using ome, in fear that im going to need to be dependant on it, Ive never even let the thought cross my mind, but having my dog pass two days ago, has made me realize how difficult it is for me not have some kind of support, I had to crawl into my bedroom because of my left knee. Even though I was able to walk fine all day today. Im scared what people might say, or my family. I do not do well being stared at because people have always stared at me for all my wounds and scars, I am just to self conscious to get a wheel chair.

4 Replies

The following is an extract from a post I put up several months ago...the 5 stages....


Acceptance is often confused with the notion of being “all right” or “OK” with what has happened. This is not the case. Many people don’t ever feel OK or all right about having to live with pain or an illness for the rest of their lives. This stage is about accepting the reality of your situation and recognizing that this new reality is the permanent reality. We will never like this reality or make it OK, but eventually we accept it. We learn to live life with it. It is the new norm with which we must learn to live. We must make adaptations and alterations to our lives. We must find new things that bring us joy.

Example: “I’m not going to let this define me. I will learn to deal with this the best I can”.

Pat x

If you need a wheelchair you should use one regardless of other peoples opinion, it will help you to maintain dignity and some independence, go for it xx


Hi there , sorry to hear about your dog, the best piece of advice I could give you is if it gives you much more independent go for it, and on the plus side your boyfriend is very supportive so that’s a good start, as for people staring it shows complete ignorance, Is there any chance of a new dog being trained for you ?? Can always pop on the forum for a chat or advice, I always feel better for sharing how I’m feeling and we have some really understanding people on the forum young and old who can generally relate. If you would like to lock your posts it normally generates more privacy for you and other members so here’s the link. , take care x

Being able to get around safely is the most important thing,,so sorry to hear about your service dog,,she would have been a great support for you,,there are wheelchairs you self propel, get pushed in and then there is the motorised ones, and the the scooters, all of which get up about in comfort. Your boyfriend is a precious person, and he wants you to be safe, think about getting another dog,,they are so comforting, and choose your mobility wheels and feel comfort in using them, and nobody's opinion matters.

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