D'you see GMB?: Dr Ellie Cannon was on... - Fibromyalgia Acti...

Fibromyalgia Action UK

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D'you see GMB?

trudym
trudym

Dr Ellie Cannon was on Good Morning Britain 6.30am talking about fibromyalgia & spoke a lot of truths, especially how some dr's don't believe in it only because they don't really understand the illness. It was being talked about due to Kirtsie Young (Desert Island Discs) having to give up some work with the fatigue & fibro fog making it impossible.

Hopefully with her fame & status, more people will start believing us ordinary folk...?🤞🏻

30 Replies
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We can but hope but somehow I feel it will all be forgotten about as soon as the next item about a reality "star" is discussed! Wish I knew the answer to making fibro more high profile. The locum rheumatologist I saw didn't even believe in it so what hope have we got when medics dont believe it exists :( Onwards and upwards though!

Never seen it al need to catch it , x

let's hope people do start to understand. it gets me so depressed and I feel 20 years older than I am. aching, soreness, fatigue, all chronic. The list is endless for symptoms. the smallest of everyday tasks is painful and exhausting.

I have downloaded it on catch up. I am in so much pain and discomfort. been in Tears 3 days this week. fatigue is awful.

You poor soul, I know how you feel & wish there was a magic cure for us. One thing Dr Ellie Cannon said earlier was getting help via pain clinic with exercise & mindfulness, not just meds. It hurts too much to exercise & I don't have the energy either!?😶 As for mindfulness... I don't think I could change my mindset to think more positively coz my symptoms & pain constantly increase. Maybe hypnosis could make me believe I'm fit, thinner & healthy again...🤔

Scarlett7
Scarlett7 in reply to trudym

hi there. Lady Gaga also suffers from fibro. theres a documentary on netflix called five foot two. x

Mdaisy
Mdaisy in reply to Scarlett7

yes you're right there is if members are interested. I've watched it and posted on the community here for people's opinions of it when it first came out. :)

Scarlett7
Scarlett7 in reply to Mdaisy

did you see that one on bbc?

Sorry im trying sort out this privacy issues of which i had no idea whatsoever....xx

Mdaisy
Mdaisy in reply to Scarlett7

No netflix :)

Scarlett7
Scarlett7 in reply to Mdaisy

sorry, that should've read"did you see the documentary on bbc with that lady, Louise from Illuminate freedom"?

i'm getting all worked up and tangled up with worries about this disciplinary meeting on Monday...

Mdaisy
Mdaisy in reply to Scarlett7

No I haven't but this wasn't spoken about above, it was the Lady Gaga one you mentioned :) Is the one you mentioned been on BBC then? Is it on catchup? :)

Ajay575
Ajay575 in reply to Mdaisy

Been on local radio phone inns at my area as well and about fibromyalgia and lots of people phoned in with issues about diagnosis etc and struggles . looks like finally there may be changes at docs funny feeling they will be diagnosing fibromyalgia a lot more soon maybe

Mdaisy
Mdaisy in reply to Scarlett7

Ah I see people have posted about it, you mean this one bbc.co.uk/news/av/stories-4...

Scarlett7
Scarlett7 in reply to Mdaisy

that's the one :)

Illuminate freedom is a group on facebook

Hidden
Hidden

Yes I bet her gp.and consultants don,t tell her or lady gaga they don't believe them...

Mandypandy1969
Mandypandy1969 in reply to Hidden

I bet they don't either.

That's the horrible truth. It happens in the USA too. I have had to fight and fight. When I manage to see a Dr who believes than something happens and she goes some where else. Than I'm stuck with non believers. I'm like every one with fibro no where to turn. Its going to get worse they are cdc,fda. And others with the government decided to take away the. Pain meds because the addicts are on other illegal drugs. There is nothing to prove they died from just opoids .there are meth,cocaine, and heroin, Xanax . there are more and more in addiction. Who are taking strong meds that can and will kill you. So you can't say it was one thing or several other . Because they could have died from any of the others or addicts will take anything they can get there hand. So why punish the the ones with chronic pain that don't abuse the opoids. I've heard others say if they had to live in this pain the rest of there life's they won't be able to live. Love susie jo1948

Was this early or late in the programme as trying to watch on catchup and want to skip some of it? :) If you can let me know roughly I'll see if I can find it to watch the segment :)

I'm downloading it now. 😁

Mdaisy
Mdaisy in reply to KnackeredKaty

Do you know where it starts please ? :)

Found it ! If you are watching on catch up here's the link starts at 29.35 :)

itv.com/hub/good-morning-br...

clifetta
clifetta in reply to Mdaisy

thanks for putting the link up. very interesting

Mdaisy
Mdaisy in reply to clifetta

No problem :) Your welcome

KnackeredKaty
KnackeredKaty in reply to Mdaisy

I didn't think Dr Ellie said anything useful for me or any other sufferers of fibro. More funding into research would be useful and educating doctors to recognise symptoms would be a start. I don't see any of that happening any time soon.

Mdaisy
Mdaisy in reply to KnackeredKaty

Yes might be stuff we know but the general public joe bloggs doesn’t know how we are dismissed. An employer may have watched or a family member who realised its real! This if helps just one is good but yes to us more research is needed and key to moving forward to help treatment or hopefully cure for the next generation.

KnackeredKaty
KnackeredKaty in reply to Mdaisy

That's true. I hadn't thought of it like that. If a relative, friend or employer has seen it and it educates them, that's always a good thing. Someone with money and influence might start fundraising for research etc. You never know. 😁

Mdaisy
Mdaisy in reply to KnackeredKaty

Wouldn’t that be good 🤞🏻🤞🏻🤞🏻🤞🏻

We can all dream but I fear as many on here that any interest will just fade away. From my latest experience with pain clinics and GPs today I have just about come to the end of the road. I have no confidence in any of them anymore its hard enough to live with the constant pain and changing symptoms never knowing how you are going to be from one day to the next let alone having to constantly battle a system that doesn't believe you. Whether it be medics, employers, family, friends, the DWP or just people you meet at the corner shop (if you can get that far) its always a barrage of questions that they don't really want the answer to.

Sorry if I appear to be ranting but its just been a really bad day. Its a long story but basically GP refused my repeat prescription on the grounds it was only filled 10 days ago but last time I saw a GP two weeks ago my meds were doubled but the amount on my prescription remained the same which I did point out to them at the time in writing but nothing was done this now means I have 4 painkillers left (I take 8 dyhydracodine a day) till at least Thursday as they don't deem it to be urgent . Next this afternoons pain clinic nightmare the consultant who I have never met and didn't even have my note or know my name informs me my only options left are another facet block which I've had 3 times and it failed to help just made matters worse or a lumber epidural treatment which will numb pain in my spine and legs or they can't/won't be able to help me anymore. I wouldn't mind but I loose sensation in they legs already without warning sometimes for minutes sometimes for hours causing me to fall over or not be able to get around at all but she just wouldn't listen to me. So now I sit here unable to sleep in constant pain not knowing which way to turn can't help feeling angry and frustrated.

Bless you. I feel I am not being listened to either. I am on gabapentin which do nothing but all the g.p. dies is up the dose. Why if not helping. so fed up as widespread pain and fatigue never eases much or for long. sending hugs. xx

Hi I really didn't think the daily 2700mg (!) gabapentin was doing anything for me coz of the pain I was still suffering from. That was until I gradually cut down to 900mg a day & as I did the pain got steadily worse & hard to live with, even though I'm taking up to 480mg codeine. .. The only good thing is I've lost some weight, proving gabapentin had a weight gaining side effect for me. I saw my Dr armed with notes on other meds I could try & was hopeful of swapping from some of my usual meds for others, but the internet was down during my appointment & so she couldn't check what I could/couldn't take & I can't get seen for for several weeks ... 😶

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