Nortriptyline

Hello,

Wondered if anyone can help me!

I have been taking 10mg of Nortriptyline for the past 4 months with great effect. I have been sleeping well and therefore my daily fatigue and pain struggles have been manageable until recently.

Over the past week, I have been unable to get to sleep, when I do eventually fall asleep I constantly wake up in pain and when I then get out of bed in he early hours of the morning as I can’t lie there anymore as I have the most awful headache. A lot of the pain I have is in my neck and shoulders.

I was wondering if anyone has taken this for their Fibro and had the same problems and if increased to 15mg did it help?

I will be making an appointment with my GP Monday. My Rhuematologist did say when first diagnosed it may need to be increased. I just don’t want to have to keep increasing every few months!

Thank you,

Jo.

[Hidden]

Are you on ANY pain relief at all hun? the nori I believe are to make you sleep but like you they can become less effective, in the beginning of fibro I had muscle injection of a sterois called Kenalog, its marvelous and it gives you a lease of life pus pain relief, maybe ask your gp if that road is a possibility, I find normal herbal sleepers help.

[Hidden in reply to Hidden]

I will ask the GP about those injections. My biggest problem is sleep and the knock on effect it has on me. Dreadful fatigue and pain. However, when I started on the Nortriptyline it’s been amazing. Just recently it’s not been as effective that’s why I’m thinking I need to increase the dose.

Thank you for the reply and I’ll look into the injections as my neck and shoulders sometime are unbearable.

Best wishes,

Jo

[Hidden in reply to Hidden]

Nori are supposed to knock you out and leave u groggy next day so if that isn't happening then tell gp but don't be tempted by an increase in doseage. I found intra.muscular injection of kenalog covers whole body as it goes into blood stream Nd circulates

[Hidden in reply to Hidden]

I do usually feel a big groggy but not for long and normally I sleep well but recently not so good. Thank you for your replies x

[Horsesgalore]

I take nortriptyline, I started on 10mg and found they really helped, but like you realised I probably needed to up the dose, as the pain specialist said I would probably need to, so I am now on 25mg a night. Annoyingly they come in 10 and 25mg tablets, I'm thinking of going down to 20 mg as I think 25mg is a bit too high. I always take them 12 hours before I need to get up for work otherwise I'm too groggy.

[Hidden in reply to Horsesgalore]

Thank you for your reply. I am finding them brilliant but did wonder what dose others were on. I’m going to the GP in the morning. I took 15mg last night and slept much better. I do find that I can’t take them too late.

Best wishes,

Jo

[Imsoinpain]

Hi i am on nortriptyline i started with 10mg now i am on 50 2x 25 you can go to 75mg but obviously ask doctor i am lucky i dont get groggy in the morning hope this helps

[Hidden in reply to Imsoinpain]

That’s great to know, I did wonder what others took. They were working wonderfully, just need to increase them.

Thank you for the advice.

Best wishes,

Jo

[JessMcL]

There’s the possibility of your body getting used to any medication and then the benefits wear away. I take 70mg (highest dose). When I took amitriptyline my body gradually got used to it and I had to keep increasing it. Definitely have a chat with your gp

[Hidden in reply to JessMcL]

I have seen the GP who has now increased to 20mg, so hopefully this will help! Thank you for your reply.

[Marky]

I take 75mg Noritytpline at night and in tough times had gone up to 100mg.

[Hidden in reply to Marky]

That’s great to know you can go as high as that, I was worried about increasing and as the GP has said I’m currently on such a low dose. Thank for the reply.

[cpwhealth in reply to Hidden]

Thats good you can get nortriptyline from your GP I use to have it prescribed a few years ago and found I could tolerate it better than amitriptyline, but now they will not prescribe it not sure why?! so now I am going to try amitriptyline again, but I do know that it interacts with my thyroid meds!!