Throbbing painful arms - I want to chop them off..... HELP!!

[Alibobs]

Hiya

I’m wondering if anybody has experienced the same problem. My arms from the elbows down have been bothering me for about 6 weeks now to the point they are waking me from sleeping and I have to have them under a pillow with my head on the pillow so they aren’t moving and punching my other half all night. The pain and uncomfortableness of them is unbearable at times and I want to chop them off!! They feel like they are swollen inside and have tiny lumps when I press them. I can’t even describe the pain but it varies from burning to throbbing to numb to painful and heavy.

Any suggestions on what this is and what will help would be muchly appreciated. My GP puts everything down to fibro but it could be totally unrelated.

Thanks for taking the time to read xx

[Treewade]

As much as my arms n hands give me problems it's my legs that's worse n like you I wish someone would just cut em off but have you thought how high would they have to go my arm pain goes in yo my neck n chest and my leg pain goes into my hip n up my back mmmmm are you the same grrrrrr if you had it chopped off would the pain go grrrrrr but on the plus side while your writhing in pain at least you know your still alive. I went to GP yesterday trying to get them to put two n two together and get four hyper mobility outs n ins equal EDS she told me having a diagnosis doesn't matter even though EDS is inhedetary and most of my kids seam to be suffering mmmmm but we smile and accept that pain is just as much a part of our life as breathing lol but I do hope it eases soon and the family have hidden all the sharp blades. Sending love and a deep wish that I could do more xxxxx

[Alibobs in reply to Treewade]

Thanks for the reply.

I know what you mean about the hyper mobility running in families. My niece was like me, very double jointed loved dance and gymnastics and now has had a hypermobility diagnosis as well as another one of my diagnoses called peripheral nerve hyperexcitability. Apparently it’s really rare but 2 people in the same family tells me it has a genetic link. I just wish they could do more to help the younger generation. My neice is 18 and going off to uni in September and I worry about her burning the candle at both ends and tell her all the time she needs to slow down. She rings me in tears some days cos of the pain. I’m 33 now and would say my painful symptoms started in my teens but back then I thought this must be what you feel like when you are growing up!! Little did I know!!

All the best to you and yours xx

[Treewade in reply to Alibobs]

And to you n yours xxxx

[YASMINTINA FMA UK Volunteer]

Hi there it’s such a nuisance , all you want is a good nites sleep, if you are not 100percent sure get 2nd opinion from another doc it will give you piece of mind, are there giving you any type of pain relief ??xx

[Alibobs in reply to YASMINTINA]

Hiya thanks for getting back to me.

Yeah I think I will have to, I’m still struggling with the pains and trying to get on with it as best I can. I have a 9 month old baby so it could just be that I’m not doing too good with carrying the weight of him around when he wants a cuddle!! Xx

[Lemony990]

Has your Dr not looked at the possibility of this being tennis elbow? I know it sounds crazy but I have confirmed tennis elbow in both arms and have had for approximately a year and a half. I am just about to take part in a study regarding 2 types of injections that promote healing of the tendons and ligaments. As they're not sure which is most beneficial, the study involves patients being given one of 3 types of injection (the 3rd being a placebo) and then going through a course of physio. The idea of the study is firstly to see which of the 2 injections best promote healing (the injection involves taking blood from the patient and separating specific cells that are then injected into the elbow) and also to see if there is anything to the so called placebo effect. Tennis elbow is a symptom of fibro but just because it's one of the symptoms doesn't mean it should be ignored. It might be worth speaking to your Dr again and see if this could be the problem. If it is, then you should be offered physio and/or acupuncture. Sending mahoosive hugs, I understand how frustrating having this pain in both arms is. 💝

[Alibobs in reply to Lemony990]

Thanks for getting back to me.

My friend Mum said exactly the same thing re the tennis elbow. I’ll be sure to mention it to the Dr. Haha I wish I could play tennis to get tennis elbow from hehe. Xx

I feel your pain, hope you get somewhere with the study xx

[Hazel_Angelstar Administrator FMA UK Staff]

i get similar pains but in my legs mainly .... like you say it gets to the point where you just want to chop them off or something !!!

[Alibobs in reply to Hazel_Angelstar]

Arrrr thanks for gettting back to me.

I know those ones as well. The Dr has said that it’s restless legs!! Feels like you are walking through mud all day everyday cos they are that heavy and sore and then at night trying to relax them they start flying everywhere. I keep getting banished to the single bed keeping my OH awake!!

Take care xx

[Lesa14]

Hi I can relate to this as I have been suffering with it for two years now and it's very sore and uncomfortable do you have a electric blanket cause I find using it eases them

[Alibobs in reply to Lesa14]

Thanks for getting back to me.

No I couldn’t cope in this weather with an electric blanket!!

I do use a hot water bottle on various parts of my body day and night though.

Hope you aren’t too sore. Have you found anything that helps other than a lecky blanket?

Take care xx

[lyndsaylulu]

Hiya, I have similar pains and I look at my hands expecting them to be swollen and am surprised every time that they aren't! I do however have a trapped disc in my neck so it may be worth asking for further exploring to be done. Feel better soon. X

[Alibobs in reply to lyndsaylulu]

Thanks for getting back to me.

Funny you should say that, my muscles in my neck feel tense and swollen and my mum has said about a scan to check things out.

Is there anything that can be done over your trappeddisk?

Take care xx

[lyndsaylulu in reply to Alibobs]

I don't think they like to operate as it can cause more issues. Myhands are really painful today but then I haven't slept properly for days and I think my tolerance is low today!! Do speak to your GP and if possible request an MRI . Feel your best soon. X

[NickP1]

Have you had your uric acid level checked.

[Alibobs]

Thanks for getting back to me.

No I don’t think so. What is the uric acid blood test used to diagnose? Is it a kidney problem and what would the symptoms be if there was a uric acid problem? Is it fixable?

Take care xx

[lyndsaylulu in reply to Alibobs]

Uric acid is increased if you have arthritis or gout I think. X

[Alibobs in reply to lyndsaylulu]

I do have early onset osteoarthritis in my hips, but it’s my arms that are the problem at the moment!! Xx