Sick of being Sick!!: Hi everyone, I'm... - Fibromyalgia Acti...

Fibromyalgia Action UK

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Sick of being Sick!!

Jacmo profile image
3 Replies

Hi everyone, I'm new to this site and wanted to join in with you all regarding Fibro. I have had symptoms for over 20 years and was recently diagnosed in October last year. At first they thought I had MS as my symptoms varied from numbness in hands, to feeling like electricity going through my body and then the dizziness and I also went blind for about 20 minutes, but had problems with my vision for about 2 weeks after. This condition is a nightmare! At the moment, I am exhausted, have back pain, leg pain, headaches, brain fog, mental shut down, and shaky hands. Life has to alter on a daily basis depending on how your Fibro is that day - my mobility has been affected badly that I need assistance with crutches and I struggle with stairs and walking.

I know I am going on, but just wanted to say Hello and introduce myself and say that you are all amazing and keep up your spirits - don't let this flipping illness take over our life!!!! xxx

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Jacmo profile image
Jacmo
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3 Replies
Ramjets profile image
Ramjets

Hi there Jacmo , thanks for introducing yourself and letting us know something of your fibro story. Your experience sounds very familiar as my symptoms were similar to yours and I too went through a time when MS was mentioned as well as stroke. Thankfully subsequent tests/scans proved this was not the case but I was eventually diagnosed with fibro. As you say, each day can be a challenge due to the unpredictable nature of the condition and we just have to find a way to manage it as best we can. Hopefully joining the forum will help you do this as our friendly members are always willing to share their experiences and offer support. However I would just like to mention that you are likely to receive more replies if you lock your posts. You don't have to, it's completely your choice but many of our members are not too keen on responding to unlocked ones, as they can be picked up by internet search engines and read by people outside the community. If you wish to lock them then instructions on how to do this can be found on the link below but if you get stuck please don’t hesitate to ask for help.

healthunlocked.com/fibromya...

If you have not done so already, you may also like to check out our main site as there is plenty of useful information and links on there:

fmauk.org/

So welcome to the forum, we look forward to getting to know more about you. Take care. x

Jacmo profile image
Jacmo in reply to Ramjets

Hi Ramjets, Thank you for replying to my post and saying HI. It's good to know you are not alone and that other's are going through the same as you. It is a hard and difficult condition to work with and some days are worse than others - although most of my days are the same and I don't seem to go into remission at all. Anyway, I will lock my posts in future and thank you for explaining that to me. Take Care and hope you are doing well xx

Mdaisy profile image
Mdaisy

Welcome to FMAUK Community!

I see Ramjets has already provided you with all the information you need as a newbie. So I will just say I hope you find the online support, information and a touch of advice here and there helpful, as we all understand what is is like living with Fibro 24/7.

I am sure I'll bump into around the site (not literally ouch! )

All the best

Emma :)

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