Hi. I have just been given this site ... - Fibromyalgia Acti...

Fibromyalgia Action UK

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Hi. I have just been given this site to join and wanted to introduce myself .

8 Replies

I have fibromyalgia; chronic fatigue syndrome, lupus and suffer with raynauds syndrome.

Cognitively I struggle massively and am researching into the CBD oils and wondered if anyone uses it and what results you have had xx

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8 Replies
uggycat profile image
uggycat

welcome to our community I am sure you will get lots of useful replies.

Ramjets profile image
Ramjets

Hi there Hidden , I have never tried CBD Oil myself but I know some other members have so I am sure they will be happy to share their experience. However I notice you haven’t locked your post. You don't have to but many of our members are not too keen on responding to unlocked ones therefore you are likely to receive more replies if you do, as it prevents the whole thread being read by internet search engines. Instructions on how to do this can be found on the link below but if you get stuck please don’t hesitate to ask for help.

healthunlocked.com/fibromya...

In the meantime welcome to the forum, I am sure you will find lots of help and support from our friendly members plus there is lots of useful information and links on our main site so you may like to take a look at this at some point:

fmauk.org/

Take care and I look forward to seeing you around. x

jimborck profile image
jimborck

im doing reasearch into same, and not tried it yet, i have fibro and raynards like yourself, but so far hitting a wall as i take adalat la for my reynards and this is a calcium antagonists, so far been told to leave a 2hr gap between tabs / cbd / tabs but this person wasnt from a medical background but did think it would be ok, once i get more info , i will post it up here for you, and im sure someone else from this wonderful group will give maybe a little better info

Patdoyle profile image
Patdoyle

I take CBD oil and get it from CBD brothers. I tried Holland and Barrett but that one didn’t do anything for me. I think it does work to take the edge off the pain but hasn’t helped with my nerve pain. Hope this helps.

Hi all.

Well I'm back. CBD oil did nothing for me at all. The taste was horrendous lol...but I have given it a month and have felt no different at all. I suppose it works for some but not others.

I wouldn't dismiss it...if it works for you it works for you and I'm happy for you. I'm just sad it's not worked for me. 😔😔😔😔

If you have all this you should get a blue badge sounds like you got some who just hates disabled people

Debbiedo49 profile image
Debbiedo49

What is raynauds please?

Mdaisy profile image
Mdaisy in reply to Debbiedo49

nhs.uk/conditions/raynauds/

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