a whole lot of pain

[SusieJo1948]

I have a chronic desease. i,m not lazyor crazy,i am sick.I have a real deseasewhetheryou believe me or no. Its a chronic illness withno cureand few treartment options. i can,tdo all the things i used to do and what you expect me to do. i am in pain every minute of every hour of every single day. i struggle to just get out of my bed and stay upright onm my feet. i hurt bothmentally and physically. I NEED YOU TO SAY I BELIEVEYOU susie

[Horsesgalore]

I totally believe you, I think you will find lots of support & understanding here.

[cespinosa]

I believe you,like horsesgalore said you'll find support and understanding here! Sorry your struggling. Take care. Chris

[Hazel_Angelstar Administrator FMA UK Staff]

hi SusieJo

sorry that you are struggling so much -the one good thing about our forum is that there are plenty here who do believe you. xxx

[softekcom]

I believe you!

[Springwater]

Oh my love I believe you take care lots of love lorraine xxx

[moo196]

We totally believe you.

First time I felt really believed was when I got an appointment with the nearest cfs specialist clinic. It was so refreshing and helpful not to feel like they were thinking I was making it up.

Fortunately I have made a reasonable recovery from that taking a lot of their advice on board. But then suffered a stroke in 2014...... Life eh!?

Maybe there is a cfs specialist clinic in your area?

Good luck

[jebus3rd]

we all believe you!

[jimborck]

I BELIEVE YOU and like i say to my doc, just cos i look normal, dont mean i am, 9 times out of 10 he will fob me off with just upping my current meds, just take one day at a time, some types of meds work for some, but not all, its just trying to find the right balance

[mcglada0]

I believe you.

[waylay]

I believe you, and I understand.

[MADMUMOFSIX]

I BELIEVE YOU!

[KnackeredKaty]

Hi Susiejo, you sound desperately frustrated that no-one believes how much pain you are in. I can assure you I believe you and so will all the other women suffering in pain every minute of the day and night.

I don't know if this will help but this week, on Monday, I started taking vitamin B complex and my pain has reduced dramatically. I take a prescribed painkiller every day and also 1000u of vitamin D, which helps, but I have only noticed a marked difference since starting taking this vitamin B complex. I'm even sleeping better. It might not do anything for you but maybe it's worth a try. If you are taking other medication though please consider consulting your doctor first. Take care.

[Hidden]

I fully understand as I have other issues that exacerbatws each other

[Sarahvit]

Hi Susie, yes you do have a real disease and live in chronic pain and fatigue. I believe you. How long have you had fibromyalgia? I have been dealing with it for over 25yrs. Yes it is a real disease and likes to invite other diseases to the party. My latest is chronic renal insufficiency the one before that was neuropathy. It is like all my medications I have to keep a list or I would forget something. It is getting to that point with fibromyalgia CFS/ME and company. So yes what you have is real. Hugs 🤗