Need advice asap please :(

[Char_Green95]

Hi everyone hope you are all doing okay.

Since yesterday I've had a MAJOR Ehlers Danlos and fibromyalgia flare up, the whole of my legs are aching and if I sit still they almost feel numb and the joints in my knees and hips feel like they're being stabbed at. My lower back feels like someone's punching me and I feel constantly sick and have no appetite and my chronic migraines are terrible and I'm just not sleeping due to pain and I'm becoming really restless and irritated due to the pain. I almost can't explain how my legs feel- they feel heavier if that makes sense, like something's weighing them down? My body really hurts and no pain killers are helping and I'm not even allowed to take any pain killers anyway because my neurologist told me I'm not allowed due to my migraines. At what point do you guys know when it's time to get medical help and go to hospital about this stuff?? Please help I'm really distressed

[Dizzytwo Moderator]

Hi there, I am so sorry your in such distress, Maybe you should try calling the out of ours GP emergency number and explain how poorly you are feeling and they can then advise you what to do. Maybe you should do it now before it gets any later or you feel any worse. Please keep us informed on how you are xx

Mo

[DanielleGemma]

Hey,

I'm so sorry that you are having such a terrible time I would advise that you call 111 regarding the pain you are having. You shouldn't have to feel so terrible hun; and if you are feeling this ill then I really think you should go visit the hospital xxx

[Char_Green95 in reply to DanielleGemma]

Just called 111, waiting for a call from the out of hour dr now thanks for the love xxx

[DanielleGemma in reply to Char_Green95]

No problem, I am so sorry you are having some a bad time; please keep us in the loop with what is happening xxx

[Lou1054]

My daughter has Ehlers Danlos and I would advise you to seek medical help, don't put up with that level of pain, I hope everything calms down for you soon.xx

[Char_Green95]

I've just spoke to 111 and the woman on the phone said 'what's ehlers Danlos syndrome' 😭😭 waiting for a call from the out of hours dr I'm hoping to go in and get some pain relief thanks for your concern xxxx

[Hidden in reply to Char_Green95]

Useless 111 people. Seriously. I hope you get better soon take care of urself

[Char_Green95]

So I went in to see the out of hours dr and he just told me to take some paracetamol for the pain until I can go and see my GP on Monday. Such a waste of time 😩 He said the only reason they asked me to come in was to check I hadn't damaged my sciatic nerve. So again back to lying on the couch in pain feeling sorry for myself and having to call in work sick yet again!! Thanks for all your comments xxx