dealing with pain

[fribro]

morning just been giving the great news that i have fibromyalgia and my g.p said new treatment is no pain relief have been put on sertraline,pain unbearable at night can cope in the day ,anyone out there got any ideas .

[Trikki]

What does he mean by "no pain treatment?" never heard of this...wish he could walk in our shoes for a day/week/month....might change his mind then!!! Hope you get some relief soon. Have you tried heat/cold/Tens machine/relaxation....the list goes on.....and on....and on.....

I am sorry you have been diagnosed with Fibro....have you seen a Rheumatologist yet? If not I would ask to be referred to get another opinion....x

[fribro in reply to Trikki]

thankyou for replying g.p the new train of thought is no pain relief because pain meds just mask the problem ,will ask to be referred to see a Rheumatologist ,she just left me in limbo .

[Notahappybunny in reply to fribro]

But the problem is pain...

[woodman2 in reply to Trikki]

No pain treatment indeed ! What is he/she talking about????? I was diagnosed, eventually with Fybro some 8 years ago. I went through all the drugs, physio,CBT etc,etc. then recommended for treatment all to no avail !!! Suffering from pain +++ I was referred to the pain clinic at my local Hospital. To cut a long story short I now take 30mg SR Morphine twice a day and Morphine Sulphate 15mg twice a day. My pain has not completely gone but is manageable. Who ever tells you that Opiates do not work for Fybro Patients in pain are just talking out of 1) Ignorance 2) their backsides.

Keep up the fight for analgesics. It is your pain, your life and your right.

[biffbrain]

Sorry to hear your diagnosis. I'm in the same boat . Unfortunately I've tried lots of meds with no joy . At the mo I'm on antidepressants but have felt no benefit physically just mentally which does help. I also have a tens machine which I do use . It helps a bit. Hope u find something that helps ☺

[Hidden]

The GP needs to check out the NHS choices website which recommends pain killers!!

[Janet28]

Hi fribro Welcome to our wonderful forum, I'm sure you will love it and find it invaluable chatting to others who are going through the same as you, at different stages of their lives with fibromyalgia.

I'm sorry you have had the diagnosis of fibro, it comes as a bit of a shock but for a lot of people it's also a relief to finally know what's wrong & why you are in so much pain. I wonder if you have been refered to a pain clinic, or what pain medication you have to help. There are many holistic therapies that a lot of people turn to for pain relief, massage is very good, hydrotherapy, accupunture, and CBT therapy can help you with management of chronic pain conditions. Most of these things can be addressed at a pain clinic.

You really have come to the right place my friend and I look forward to chatting with you on the forum.

Please do go check out the mother site fmauk.org where you will find lots of useful information and links on fibro and I look forward to chatting with you on the forum

Peace, luv n light

Jan xx

It's a good idea to lock your posts to the community, so it's not open to the internet. If you look to right of screen you will see under "Pinned Posts" a link to simple instructions on how to lock it.

[Creativeness1]

Hello and welcome to our lovely forum. I am not sure why you havent been given the treatment for fibro is it just sertraline you have been put on.

We are all here to support you admin and members alike.

Please take a look at the mother site it has a lot of information on there.

fmauk.org

There are some pinned post in blue that will also help you navigate round lock post etc. I recommend you lock post to social media and world wide web.

Good luck on your journey my friend x

[fribro in reply to Creativeness1]

thanks x

[Ramjets]

Since when is this the "new treatment" and who's decided this? Your GP? The practice? The NHS? I have not heard of this being adopted as an official approach to fibro as yet and I do try and keep on top of the latest fibro news. I am not saying medication is necessarily the answer but to rule it out as an option for pain relief seems harsh. It is right that doctors don't just throw another tablet at each fibro symptom but if you are in real pain then meds could be used in the short term whilst other alternatives are explored. Maybe your doctor has slightly mis-interpreted the official directive. There are a number of treatments on offer, various therapies, pain management etc. I have been attending physio which has helped and also recently started a CBT course. Has your GP discussed any of these with you? I would do some research on these if you are able and return to your GP to talk further. Being in pain will only be more detrimental to your physical and mental health, especially if it is also affecting your sleep. You may even consider changing GPs. In the meantime there are some things that other sufferers use for pain relief. Tens machine as suggested by Trikki and Biff is one. I find soaking in a warm bath (not hot) eases my back pain and using Epsom salts can be beneficial. Good luck and take care lovely xxx

[Dizzytwo]

Hello fribro welcome to our very supportive group of wonderful friends. It seems to be getting the norm from what we are reading lately that more and more doctors seem to be agreeing that pain medication does not do any good for fibro pain so are refusing to offer them to fibro sufferers.

I myself have suffered with fibro pain for 30+ years and do not take medication for fibro pain. I found it did nothing for my fibro but it can help with other pain.

If you are not happy with what the doctor is saying would it be possible for you to see another doctor at the surgery? Not all doctors feel the same about fibro patients trying pain medication. It may be worth you making an appointment to see another doctor. xx

Mo

[fribro in reply to Dizzytwo]

thankyou x

[Sancut in reply to Dizzytwo]

Hi Mo, could I ask what other things you do to help cope with fibro. I also have chronic fatigue, hypermobility , restless legs . Arthritis and a couple more treats! I don't take pain Meds, like you did no good only gave me horrific side effects and made me feel on another planet. My GP is no help with alternatives Asked about hydrotherapy to be told if have to find out myself, they didn't know My OT has just made me app to see pain clinic dr again, he gave me injections in back before snd thighs got Bursitis I wondered if you had any suggestions of help I could ask him for Thankyou for being here Kind Regards Sandra x

[Dizzytwo in reply to Sancut]

good morning Sandra, it is a difficult one isn't it when for what ever reason we can't or don't want to take medication. I also have severe lower back problems which I am actually going to be talking to the Dr about tmw not a lot she can do but I think they just need to keep their records of my problems up to date for futer reference. I will Pm you if I may a link I think you may find of great help and understanding I know I do It is what really helps me above everything else to cope.

I would post it here but due to it having Adverts attached it is aginst HU rules. Anyone else wishing the link Please feel free to Pm I am only too happy to pass it on xx

Mo

[Sancut in reply to Dizzytwo]

Thankyou so much for taking the time to reply and for the links. I will be eagerly reading this and will get back to you .I think understanding is a great part if dealing with these illnesses, and a bit if a coping mechanism. Many thanks , I really appreciate it,

Kind regards Sandra x

[Dizzytwo in reply to Sancut]

Your very welcome I find it very helpful I hope you do too xx

[fribro]

thanks will do x

[DanielleGemma]

Hey Butterfly Warrior 🦋🦋🦋💜💜💜

I'm so sorry to hear that you've just been diagnosed. Please prepare yourself for a rollercoaster of emotions whilst you learn to adjust to this big change.

I don't want to make you feel worse but a lot of us find that the pain gets worse over time so if you are struggling now you need to find a way to get this under control.

There are loads of non medication ways to try also! I would suggest Epsom salts for the bath; magnesium spray for after the bath, tens machine for bad spells and also some extra vitamins xxx

[fribro in reply to DanielleGemma]

my main worry is that i am a full time carer for my son who has special needs including home ed for him ,i need to beable to get on with thing ,i have not tryed a tens machine yet ,we only have a wet room so i can not have a bath which i am sure would help,i am eating clean so i hope that will help ,thanks for your advice xxxx

[DanielleGemma in reply to fribro]

I'm so sorry to hear about your worries. I believe that as a mother you find the strength and the courage to push past your pain and help those who need you. That being said you need to make sure that you make time for yourself and your needs. Lean on friends, family, your fellow warriors. I love the saying 'it doesn't take a person to raise a child, it takes a parent'

Believe in yourself, you're already being amazing ♥️♥️♥️♥️

[fribro in reply to DanielleGemma]

thanks xx

[55588]

Advice keep taking max dose of sertraline , and life will become bearable , eventually . also keep your mind occupied , never sit and fester .all the best .

[TheAuthor]

Hi fribro

I sincerely hope that you are feeling as well as you possibly can be today? Welcome to the forum and it is wonderful to make your acquaintance.

I want to sincerely wish you all the best of luck and please take care of yourself my friend.

All my hopes and dreams for you

Ken