Dealing with pain

Hi, I just joined today. Ive recently been diagnosed with fibromyalgia. After suffering for so long it was good to be told and wasn't all in my head. I did the pain clinic last year when they said it was just sciatica. Unfortunately I didn't gain anything from the the course. I just want pain to be managed so I can return to work. It's so debilitating. To go from being active to be limited makes me mad.

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  • Hello Debbplum

    Welcome to the forum :) I am sorry to hear that you have been diagnosed with Fibromyalgia but very happy that you have found us.

    As you have recently been diagnosed you may find it very useful to have a read through our website fmauk.org

    It is extremely common to wait for years to get a diagnosis of Fibro and even though sometimes we are suspecting this is what we have got it can still come as a shock to some.

    For the first week or so, as you say, you have a name for this pain and fatigue, but then after that it is also quite common to suddenly feel quite lost.

    My advice to you would be to take some time out (not from the forum) but in your head, to come to terms with the fact that you have a long term condition.

    The best thing you can do (just my personal opinion) is to learn as much as you possibly can about Fibromyalgia and how it affects you personally.

    Many people think once they have been diagnosed that that is the end of their journey. Unfortunately it is just the beginning.

    Finding out what regime suits you best can take some time.

    Everyone on the forum has Fibromyalgia and we all suffer to very different degrees. For example some people are able to manage to work and live a fairly normal life, whilst people at the other end of the scale (like me) have severe pain 24/7.

    There are 2 different types of Pain Clinics. The Pain Clinic usually deals with medication and injections etc., whilst the Pain Management Clinic is usually held over a matter of 6 weeks and helps people to learn to manage chronic pain.

    I have had Fibro, ME and several other conditions for 36 years. I managed to work for 34 years and have 2 children until a huge trauma blew my life apart and I have been unable to work since.

    I hate the fact that I can no longer do all the things that I used to do and still after all these years find it hard to accept that I have this horrible condition.

    I very much hope that you enjoy the forum :)

    Wishing you less pain and more peace

    Lu x

    Administrator

  • Thanks Lu

    Ive been reading different writes up on it and it is a lot to take in but at least I know what it is and can start putting a plan in motion especially with GP. After being misdiagnosed for so long I was finally glad to see a GP who knew what it was.

    I've just started Gabapentin so hoping with Tramadol along with anti-depressants I can get it to manageable (I can but hope). Been suffering so long now and the last 5 months have been horrendous.

    I've been off work 2 months now and will have to go back soon regardless as I can't afford not to but I'm really worried whether they will allow me to and find some way of getting rid of me :(

  • Hi Lu.....That was from the heart......x

  • Welcome Debbplum sorry to hear your suffering from fibro, as BlueMermaid3 said we all suffer differently.I myself thank my lucky stars that I'm not near as bad as some people on here, I've had my eyes truly opened. I can honestly say tho you won't come across a better site, everyone is so friendly and will help in anyway they can, if you want to rant, ask a question, give us some advice or even join in our madcap games, you will find everything here. I hope we see you around now that you've found us.

    Take care x

  • Hi Debbplum

    I sincerely hope that you are feeling as well as you possibly can be today? Welcome to the forum and it is wonderful to make your acquaintance. I am so truly sorry to read of your suffering and struggling and I want to sincerely wish you all the best of luck my friend, and please take care of yourself.

    All my hopes and dreams for you

    Ken

  • Morning Debbplum Welcome to a wonderful forum ( won't say more as Robbie has taken words out of my mouth๐Ÿ˜‚๐Ÿ˜˜๐Ÿค— love ya Robbie)

    All I can say is be kind to yourself - do things at the pace you can manage this is what I do - dust sit down - Hoover sit down etc get my drift.

    Don't beat yourself up as to what you can manage it's not your fault this has happened to you.

    I take tramadol for spondylosis-I also take amytriptalene for Fibro this has helped a lot plus I am sleeping much better. Hugsnkisses on their way ๐Ÿ˜˜๐Ÿ˜˜๐Ÿ˜˜๐Ÿค—๐Ÿค—๐Ÿค—

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