So after a week in which my diagnosis has been changed from anti-ccp positive RA to fibromyalgia and I have been told to go away and get on with my life and may be take up mindfulness or something as it's all in my head it has got me reflecting. I'm having to do this because I can't carry on the house work because the pain in my joints in my hands, knees and feet are so painful I've had to stop.
My diagnosis has been changed because my bloods show no inflammation, on physical exam the registrar tells me my fingers doesn't look swollen to him (though I can't get my rings on - he tells me I'm imagining it because I'm body dysmorphic ) but without these obvious factors even if my anti-ccp test is positive he cannot diagnose RA because he needs proof.
Odd then that he and his colleagues feel so able to diagnose it as psychological without a single shred of evidence. Have they asked for a mental health assessment - no of course not. Did they ask me for any type of medical history regarding this in the same way they asked about my history of RA pain of course not. Are they qualified psychiatrists as well as rheumatologists no of course they aren't. And yet unlike their stance on RA they don't feel they need any evidence at all to make this alternative diagnosis.
Now I do firmly believe in psychosomatic illness and the powerful symptoms it can cause. There is an excellent book by a leading neurologist who specialises in it and it's fascinating. But I've been down this road before when I had a mysterious bladder complaint that didn't show on any tests (no because I'd actually trapped a nerve). I've seen a specialist health anxiety counsellor, a pain management psychologist and I paid to see a psychiatrist because I'm always open to ideas.
All three independently said I showed absolutely no sign of mental illness, anxiety, health anxiety or psychosomatic illness. All three felt I clearly had a physical illness that had at that point not been diagnosed. The health anxiety counsellor wrote to my doctor at the time and said given my raft of positive test results why was I being sent for health anxiety counselling and not being treated for my physical issues.
And yet today I find myself yet again despite positive blood results being discharged and told to put up with it as there is nothing wrong. A complete reversal of their opinion last year. But then of course last year I was newly diagnosed and not a problem patient who couldn't take her meds.
Ironically being left to cope with such awful pain and disability with no treatment might well be the thing that finally pushes me over the edge and in to insanity