Newbie

Hi I was only diagnosed a few months ago. My GP prescribed Amitriptyline and gave me a leaflet telling me there is no cure and he doesn't know why or how I got to this point.

To tell I felt heart broken would be an understatement. I didn't know anything about this condition, I walked away thinking is it going to get worst and how come there's no cure.

If it wasn't for the fact I am a resourceful person, I would never have stumbled on groups support as I have. I have found out more about the condition, medication and help available via these sources. I could probably educate the GP now!

Anyway... I just wanted to say high and thank goodness for support groups like this.

4 Replies

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  • Hi there TrixyMay and welcome to our wonderful forum 😀 I'm sure you will find it invaluable being able to chat with others who are experiencing the same as you and at different stages of their lives with fibromyalgia.

    Your story is so familiar and has been like this for many sufferers for yrs.

    You surely have come to the right place my friend and I look forward to chatting with you on the forum.

    Pls go check out the mother site fmauk.org where you find lots of useful links & information.

    Peace, luv n light

    Jan xx

  • Good evening TrixyMay it's nice to meet you and wish you a very warm welcome to our group. I have just noticed you have not locked your post. You may wish to do that now and for any futer post's. This keeps everything you say safe from the web. Here is the link. If you need any help please ask.

    healthunlocked.com/fibromya...

  • Hello TrixyMay and a warm welcome to our friendly fibro forum.

    It can be unsettling to learn you have a condition with no likelihood of a cure in the near future. However, you will not die from this, although sometimes I know that is small comfort.

    Some people seem to have a mild version and can keep working, running a home and generally do things as usual. Others have a lot of pain and discomfort and struggle with day to day activities, this tend to be the majority of us.

    Sadly, there are a few for whom their pain and immobility keep them housebound. Usually this is a combination of accompanying conditions like RA or Lupus and fibro, and is not a given that this will happen to you.

    There are things you can do to help yourself that does not rely on medication, one is distraction, for example a phone call, visitors or a hobby.

    Another is pacing, if you Google "the Spoon Theory" this will give you some idea about doing things throughout the day that do not leave you exhausted that evening or the next day. Even the most ardent followers of this forget sometimes but it is worth trying to have some plan throughout the day to conserve your energy.

    I look forward to seeing you around the forum.

    Kay

  • Hi TrixyMay

    I sincerely hope that you are feeling as well as you possibly can be today? Welcome to the forum and it is wonderful to make your acquaintance.

    I am so genuinely sorry to read that you have been diagnosed with Fibro and I want to sincerely wish you all the best of luck and please take care of yourself my friend.

    All my hopes and dreams for you

    Ken

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