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Fibromyalgia Action UK
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Fibromyalgia suffer

Been suffering from muscle pain and all awful symptoms for almost a year doctor says fibromyalgia plus servere anxiety my life definitely not my own anymore the more I do the worse it gets not worked since last June after being very active got to the point lost so much weight I was really weak having to have complan drinks started putting more weight on only to get more muscle spasms can't do very little and please don't tell me to try because it just makes it worse if I could change this I would can't believe how much this makes me suffer had to claim pips which as broke my heart just really hope I can really putting a strain on me and my family terribly

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I know how you feel with anxiety. Mines terrible , I worry , stress and panic over everything and it makes me so ill and makes my pains worse and worse... Sounds like you've had such a hard time god bless you... Sending you healing hugs xxx

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Having to claim from the state after working all my life also brought me dpwn😓But when I accepted Iam not the person I once was and am now a different version of me 😊 Sertrelin is amazing for me anxiety 👌🏻at least we don't have to pay for scripts now lol was bancrupting me when workin a low income job👌😊gentle hugs luv.. Lots of info on this site as well as a caring community..

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Just had to go for interview for pips yesterday because I can't walk far at all just missed a holiday of a life time because before all this started I'd booked to go to Mexico for my 50th that's very soon and my 30th anniversary but never got to go plus since all this started had my first grandson but of course I can't do alot with him only if my husband's off because normally willd horises wouldn't stop me so soul distroying not to do what you want and nobody understands and I tell the pains I get in my ribcage so bad feel like you're really having a heart attack in the past had to go a/and e loads because I do have breathing problems but the doctors don't know why sorry for long post I just ate not being me and some family members not close are very unkind


You really need some expert help hun insist on it don't be fobbed off..


Thank you had a awful time cos to me something dosent seem quite right with my body all these symptoms I just don't understand how when every I do say ten minutes in kitchen it makes me feel so sore muscle so pain full diaphragm is allways the problem the most been getting OFB for months seen cardiogest but he knows it effect my breathing but doesn't understand why so it must anxiety but now mater how hard I try it doesn't alter it's not panic attacks cos I had one first time I was like it so know have stop that just don't understand any of it no wonder my body is so stressed


And thankyou all for liSemington hugs


Hello Kadenone and a warm welcome to our friendly fibro forum where you can find help, support, ad vice and understanding. Our mother site fmauk.org has a wealth of information about fibro including guides and links.

I am sorry to hear you are not doing so well and yes, it is soul destroying when we can't do the things we used to do.

It does not help when we make comparisons, this is you now, and although it can be very depressing until you come to terms with it, surprisingly there are compensations.

I cannot get on the floor to play with my grandchildren, but we can have lovely cuddles when we look at a picture book or read stories.

I no longer juggle a job and home and rush about trying to fit things in. I have more time to chat on the phone to friends, to meet up for coffee or have them to visit. I enjoy the peace of being able to finish a puzzle or catch up on a television programme. What were you always wishing to do when you were working? Now you have the time.

You will find your niche, at the moment you are still grieving for the life you once had, and it will catch you at odd moments and when you are having bad days, that's okay and perfectly natural.

Be kind to yourself and remember you are not alone.

All Best Wishes



Sounds like you have chronic fatigue aswell hun, can I ask how old you are? I have to liquidise my food most days otherwise I go into spasms of hiccups and pain in my gullet because food is sitting near a massive hiatus hernia.. Weight is much easier to gain than lose so keep your g.p informed, maybe ask him for some Fortisip Drinks which are on prescription BUT are not to replace your food just to top up vits&minerals. Your g.p is probably right about fibro BUT you do need to get help learning to cope with it or your fatigue will become a serious issue, ask to sent to a specialist physio and may he/she will get you some hydro or acupuncture along with some gentle exercise and input on fatigue and pacing your body.. Good luck keep with us lots of good advise on here..


Thank you everyone it's good to know other people are in similar situations not in a unkind way plus I'm almost 50


Hi Kadenone

I sincerely hope that you are feeling as well as you possibly can be today? Welcome to the forum and it is wonderful to make your acquaintance.

I am so truly sorry to read of how you are suffering and struggling and I want to sincerely wish you all the best of luck and please take care of yourself my friend.

All my hopes and dreams for you


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