Fibromalagi taking over me!

Hi I've been struggling with fibromalagi for many years but recently have aches, pains & stiffness and very very warn out but still carrying on working as hard as I can but occupational health at work has suggested I only work 3 shifts then have a day off then start again but work had me down to work 6 shifts one after another but after 4 shifts I was so warn out I felt like crying, had no energy what so every. I don't have any quality free time it's just work then fit for nothing else apart from bed. Does anyone else feel the same?

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  • Hi Kjayne11, have you spoken to your personel department about your illness as they should be able to sort something out for you regarding your shift, my employer at the time allowed me shorter hours and a day of in the middle of the week to rest, it depends on who you work for i guess, I worked for a big company and they were brilliant and couldn't do enough for me at the time, unfortunately I had to give up work although if I am able to get back to work they do still have a job for me, technical im still employed with them i still receive the benefits and 2 3rds of my salary and its reviewed every year.

    Try and see if they can work something out for you, all the best

    loraine x

  • Hi yes HR & my department manager knows all about my health problems but it's when it goes down to my supervisor who just doesn't seem to understand or doesn't want to. I even printed info about fibromalgai from the NHS site but still she puts me down for extra shifts so then I have to go higher up to department manager which doesn't help my relationship with my supervisor & she's on my back all the time getting me to do this, that & everything whilst the other colleagues get away doing nothing. I'm wearing myself out.

  • You can not let her do this to you, if you have been to personel department then she has to comply with what they say , she has no right to treat you in this way.

    I understand that you dont want to go above her but if thats the only way you can get something sorted out then you have to, especially as it seems like she is intentionally picking on you when she knows that you're health is affected by this, if you dont stop her now you are going to end up being of work as your body cant cope with the added work and stress she is causing you.

    I do hope that you get somethingsorted out with her, it seems like you have tried by giving her the information about fibromyalgia so if she has read it she will know that stress makes you worse, make sure personel and her supervisor have a copy as well that way you have covered yourself at all levels

    Goodluck

    Loraine x

  • Hi I've only been at my current job since last June and only seasonal so don't like having time off. I've always had a bad back since my early twenties & just had radio-frequency procedure this week but with getting diagnose with fibromalagi about 10ish years ago was another blow to my health. Since last year I've had a swollen foot with a rash had tests done & been to see a specialist who said he couldn't do anything but advices a soft tissue specialist so waiting for a appointment and last year hurt my shoulder which doesn't seem to be improving, had rest then cortisone injection & physio which I'm still having. It's never ending and it's getting me down because people can't see your illness and you carry on with work etc they think your ok but it takes it out of me so when I get home I'm fit for nothing normally end up in bed shattered. Is anyone else feeling like me?

  • Hi Kjayne11 I know you joined a while back but this looks like your 1st post, so firstly I'd like to welcome you to our wonderful forum ☺ I'm sure you will come to find the forum invaluable in chatting to others who are going through the same experience as you, talking to others at different stages of their lives with Fibro and learning from their experiences.

    It does help with the whole process and I wish I had found the site years ago. I have had Fibro for nearly 30 yrs and I'm still learning about it, like we all are.

    I think your employer is treading on dodgy ground by ignoring OTs advice and you should maybe let them know or get some professional advise from CAB, they have a lawyer that can give you advise about guidelines your employer have to follow by law.

    It it very common with fibro to push yourself for 2 or 3 days and then to have a flare and completely crash. It is vital for people with Fibro to pace themselves to avoid this big crash which could lead you to your bed for a week. You should Google The Spoon Theory, it's a very good theory that teaches you this art, it's not easy but so beneficial, it will become easy once you can master it. A lot of members find it really helps them.

    Please do go look at the mother site where you will find all the information you need and lots of useful links on Fibro and I look forward to chatting to you on the forum.

    fmauk.org

    Peace, luv n light

    Luv Jan xx

    Ps Step by step instructions on how to lock your posts

    healthunlocked.com/fibromya...

  • Hi Kjayne11

    I sincerely hope that you are feeling as well as you possibly can be today? Welcome to the forum and it is wonderful to make your acquaintance. I agree totally with your other respondents, and let OT / HR know what is happening for you with your shifts.

    I want to sincerely wish you all the best of luck and please take care of yourself my friend.

    All my hopes and dreams for you

    Ken

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