My fibromyalgia

[zenriley23]

I am 35 and I have severe memory problems and deep bone pain with fibromyalgia. It hurts. It feels ice cold and aches. Usually in my shoulders, hips, legs, and feet.

[TheAuthor]

Hi zenriley23

I sincerely hope that you are feeling as well as you possibly can be today? Welcome to the forum and it is wonderful to make your acquaintance. I have pasted you a link below to our mother site, FMA UK which hosts loads of useful Fibro information:

fmauk.org/

I am so genuinely sorry to read of how you are suffering and struggling with your Fibro, and I want to sincerely wish you all the best of luck my friend. It may be prudent to discuss your medications with your doctor to ascertain if they can tweak them a little to try and help alleviate your symptoms. Please take care of yourself.

All my hopes and dreams for you

Ken

[zenriley23 in reply to TheAuthor]

Hello Ken,

I left out the best parts. I'm allergic to all pain medicines and pain patches. I was introduced to flexerel and have developed random food allergies. I use tramadol as little as possible because it has the better of the reactions, but hives turns into welps if I use too often. Lol. Im happy regardless. I hope you are happy too. Stretching and a heating pad helps my back pain

[Wendolyn42 in reply to zenriley23]

Have you tried lyrica? I was able to get off of all my pain medications to the tune of 15 pills and just added lyrica. I've gained 15 lbs but I get through most days with very little pain now

[zenriley23 in reply to Wendolyn42]

No. I tried gabapentin andit made pain worse. I have odd reactions so I cant just try pills. Plus, I dont suffer from depdepression, but I know alot of those meds can help with the pain but can induce depression if you haven't had it or get off meds

[TheAuthor in reply to zenriley23]

Hi again my friend zenriley23 I really am truly sorry to read that and it sounds awful having reactions to all these pain killers! I also use a TENS Machine as I try and keep pain killer use to a minimum. Good luck my friend.

[zenriley23 in reply to TheAuthor]

What is a tens machine

[TheAuthor in reply to zenriley23]

Hi zenriley23

A TENS machine is a small portable, battery-operated device which is worn on the body. The box is attached by wires to sticky pads stuck to the skin. Small electrical pulses are transmitted to the body, like little electric shocks. This can help to ease pain in some people with certain types of pain.

[zenriley23 in reply to TheAuthor]

I used that in therapy on my quads because they were atrophied. I've got 8 wks worth of therapy coming up. My muscles get so tight, they pull my joints out of position. All I can do is stretch all the time. I've always wanted to visit England. Thanks for the replies

[TheAuthor in reply to zenriley23]

Good luck my friend

[angiesmith50]

Hi zenriley23 welcome to our lovely group. You will find us friendly and supportive.

Sorry your suffering, fibro is a horrible illness.

I too suffer memory loss and ice cold pain in my legs and feet.

You don't say how long you have had fibro or what meds your taking. Do they help?

Come and chat, ask questions or have a moan there is always someone around.

Take care

Angie xx

[zenriley23 in reply to angiesmith50]

Hello Angie

Now that I know what I have, my first experience with fibromyalgia was in 2004. I lost 6 -7 months worth of memories and still have yet to get them back. The nerve pain started in 2006 along with muscle weakness. I have decided to apply for disability. It took me two years to come to this decision. This is my first time speaking about it. Last year was my first time accepting my diagnosis.

[angiesmith50 in reply to zenriley23]

Hi zenriley23 so glad you are finally able to let it out. It took me a while to accept I wasn't me anymore.

However once you have you can move on.

Apply for pip and esa if you can no longer work, some people can some can't.

I have big chunks of my life that are missing. I thought I was starting with Alzheimer's before being diagnosed with Fibro.

Come and chat darling and let us help you through.

Take care

Angie xx

[denvajade]

Hi I to have that ice cold bone pain, in th winter I sleep with an electric blanket on, it helps. Wishing you well

[zenriley23 in reply to denvajade]

Heating pad and covers and sometimes im still cold. Lol. It is so crazy

[Trikki]

Hi...I also was worried about my memory so my GP had blood tests for dementia etc. all was clear...Phew!! Had to put it down to fibro!!! I vary between being too hot and sweating really badly or too cold and need heat bags etc. to help. Hope you get some relief soon Zenriley...x

[zenriley23 in reply to Trikki]

I will see my Go today. I've kept my memory problems to myselfup until now. Last week I took my thyroid pills twice in one day because I was confused and thought the next day had come. Ended up having to call the ER and the doc on call. That was my wake up call. I just hope he doesn't look at me like what I am saying is impossible

[Dorothee in reply to zenriley23]

I was thinking why do not ask your priscription box that show dates of the week and morning noon and night. That might help you.

[milo4]

Morning

And welcome to our lovely site.

Yea me to, i am always forgetting things, have to get oh to write everything down lol. And one min cold next over heating. The joys of fibro.

Hope you find the forum useful, everyone is so helpful.

And you know you always have friends here.

Gentle hugs

Trace xxx

[zenriley23 in reply to milo4]

Its my first time speaking about it. So far, it has been nice to know someone else understands how I feel. How long have you had fibromyalgia

[milo4 in reply to zenriley23]

Hi

Yes I know what you mean, it was lovely to find this forum, everyone is nice, you can share your thoughts, problems,ask questions, and even have a laugh.

I had bone pain about 3 years ago during chemotherapy, the pain got worse and spread.

Then about 2 years ago after many tests, I went to see a rheumatologist who diagnosed fibromyalgia a long with a couple of other things.

So I think mine stemmed from then.

It's good to talk with others who know how you feel😃.

We are always here to chat.

Trace xxx

[TeddyC]

I too have memory problems, together with pain and fatigue. I have a heated collar, which covers my shoulders, this helps me a lot xx

[zenriley23 in reply to TeddyC]

Is one side of your body worst than the other

[TeddyC in reply to zenriley23]

Both sides are a problem, I also have essential tremor, osteoarthritis and sciatica so it is difficult sometimes to tell what is causing the pain x

[Sweetfa22 in reply to TeddyC]

Hi teddy. Sorry you are suffering too but can I pls ask where you got your heated collar from?

Hugs. Fran x

[Max23]

Hi yes winter is not our friend I've had a flare in my back for three days now I only can describe it as if you was laying face down on the floor and someone standing on your lower back I'm in great pain it's locked in pain and not much gives me relief only really hot hot baths or sleep the meds only take the edge off it I wish you well and try and distract yourself from the pain that also helps I sometimes have a chat on the phone or watch a Tv programme to focus on something else

[zenriley23 in reply to Max23]

Fibromyalgia is a whole different way of living. People who dont have it have no idea how much pain a person with it can be in

[klr31]

Have you had your thyroid levels checked and your vitamin D levels?

[Chickapea]

Greetings and welcome Zenriley23! You will receive lots of information and kindness on this forum. Take notes for your doctors. When you say that you're allergic to pain medication, is it narcotic pain meds you're speaking about that produce hives? Have you seen an allergist? If not, that might be a good place to start. I hate to think what might happen should you require surgery or sutures. When I take Lortab, I take it with Allegra, one of many antihistamines, to cut the itching, which occurs to many people using an opiod for pain. Nucynta ER is Tapentadol, which has only removed a fair amount of pain together w Lyrics and a muscle relaxer for pain spasms. Subtracting any one of these and I'm in awful pain. Therefore I can't comment on the one, which is the primary worker. One is for muscle pain, the other is for nerve mending and pain as is Gabapentin. Compression hose has helped me a lot with leg pain. The coldness can be a circulatory problem...can be Reynaud's syndrome. One minute your feet are cold next minute you feel a flood warmth. I put socks on and a woolen cap when moving around the house, at bedtime, still socks, but I wrap up in a flannel sheet and a Velux blanket. It helps tremendously. It feel nice too. If you have the energy soak your cold feet in very warm water. I like it with Epsom Salt Lavender. Since I have diclophenac sodium gel that I rub into my toes when they ache in the ice cold skin, I am able to fall asleep. Diclophenac isn't for everyone (ie Aspirin allergy) therefore you need a script. You may be allergic to the adhesive on the patches. I've noticed that I'm not scratching band-aid and tapes off since 2015. The adhesive is different. Benydryl cream rubbed on the skin around the adhesive is helpful. I started out fighting against my need for pain management. When I accepted defeat, My treatment began with Bufferin, then, received a script for Mobic (a very good pain reliever). After awhile, the pain was truly interrupting my thinking, and my life, tramadol was offered at a low dose to bypass nausea. About four years ago, I completely fell apart with Migraines and Essential Tremor leaving me the medications I have now, physiotherapy, and the occasional bilateral knee injections. Yes Fibromyalgia is nasty. Is it possible that it's a precursor to other illness? Who knows? However, if we are going to help ourselves feel better, and if the feeling better encourages us to do the exercises that we need to do to lubricate our joints, regardless of whether it's Fibromyalgia or an arthritis, why remove ourselves from pain control? Why not seek out the best doctors to trust and to listen to. Don't we want to participate more fully in life. Do we really want to writhe in pain? I have nothing to say about memory. It's normal for Fibromyalgia and concurrent medication. I've been assured it is not dementia or Alzheimer's. I even took a test. That's how worried I am. So I work puzzles, math problems, and guitar music. It isn't success I'm after, but the struggle. Does it work? Should I require an upgrade, surely that will be a clue for mental change. Right? One more problem, I've chronic fatigue. It's very difficult to learn and retain. Is anyone worry about their vocabulary? I am. I'm also at wit's end just like many others here. You are not alone. It does us all good to be able to comfort one another. I wish you, Zenriley23, good luck at the doc's today. Ask questions and tell all. Virtual hugs to you. Blessings.

P.S. I now have Psoriatic Arthritis without Psoriasis. Just more pain to deal with.

[zenriley23 in reply to Chickapea]

I had three surgeries last year and all I could do was suffer through the pain and take tylenol

[Newtali]

If you find heat helps I would recommend Linnex. It's only available on the internet but my pain consultant has checked the ingredients and there's nothing dodgy! It's like a deodorant stick that you swipe over the painful areas. Only use a tiny amount as it is very potent and if you use too much you will feel like you are on fire!! Just google Linnex. It's quite expensive but lasts ages as you only need a tiny amount.

All the best.

[zenriley23 in reply to Newtali]

Will look that up

[zenriley23]

I have to do the blood tests for Alzheimer's next week. Doctor said it doesn't sound like brain fog. I have black outs that randomly occur.

[TheAuthor in reply to zenriley23]

Good luck with the Addenbrookes testing zenriley23

[tinkerbell17]

Hi Zen, I have a blog look me up...........started it last night..........I need to add to it........I will try and add some later, have to go out.........xxxxxxxxxxx

Sending love and light

Tinx xxxxxxxxxx

[Hidden]

I had this and it was found that I had a severe vitamin d deficiency. I had to take 10 thousand IU's for 6 weeks. If cleared up most of that disturbance very quickly!