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Fibromyalgia Action UK

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Help with my fibromyalgia

Kimmie88 profile image
5 Replies

Hi I'm new to the group I found out that I have fibromyalgia last year an was wondering if anyone had any tips or advice for when flare ups happen as they are really painful

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Kimmie88 profile image
Kimmie88
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5 Replies
Blearyeyed profile image
Blearyeyed

Welcome to the group.There will be lots of things you want to know and the forum members here are always ready to support you.

It's a good idea to look up the Fibromyalgia UK charity websites and read more about the basics.

It's good to look at old posts on the forum to see previous questions and answers and you see a way to get to Related Posts or Pinned Posts on the right hand side of your post page to get you started.

When you are new to Fibro it's good to join a group like this and then post with as many questions as you need answers to on specific things like Self Care , Lifestyle , Coping with Pain , Pacing , Medication , Exercise , Diet etc and then members find it easy to answer your specific questions.

If you have symptoms you aren't sure about post about those too. You will find Fibro affects everyone a little differently but that most things that you might experience or feel and think are odd are normal , but it's nice to read that you aren't alone and others are experiencing things just like you.

Take care and welcome again to the forum, Bee

Yassytina profile image
YassytinaFMA UK Volunteer

Hello and welcome , a very good reply from our member Blearyeyed , the forum is very helpful with information, helpful tips from members . If you can pace yourself as much as you can when flare ups happen it will really help, as much as I find it frustrating sometime s when I cannot have a proper day I only make myself feel worse in trying too push myself , some for me personally can be a day or two and some can linger, Winter time for some can be a trigger and being home and keeping warm and comfortable will be helpful xx

Deeb1764 profile image
Deeb1764

everyone can be so different for me at the moment the weather is a huge trigger rain wind or snow and I seem to hit ongoing flares. Had a full on sensory attack at the GP s waiting room and had to get out luckily the reception team followed and made sure I was ok so brought stuff I needed out.

Pace and rest and understanding what makes you good or bad and if need be writing it down.

I have a few autoimmune conditions and I call fibro the bitchy sister of RA!

Ayla69 profile image
Ayla69

I'm new too, and diagnosed November last year, but been suffering a little over 4 years. I'm finding lots of relevant threads, on this site, as my recent flare up is lasting weeks.

Deeb1764 profile image
Deeb1764

reading is important to understand the fibro plus making sure the sites can be trusted too. I work on the process if I understand how the fibro works with my autoimmune I might come up with a management plan that helps🥰

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