So the past few weeks I've missed my placement (I'm training to be a mental health nurse) due to pain and fatigue etc you all know the drill. Just when I thought I was good and able to get myself back in I wake up in terrible pain, I'm unable to move my hands and fingers properly, they have swollen up terribly and nothing seems to be helping to ease the pain. I FINALLY saw my rheumatologist who informed me it's not only fibro I have but also ehlers danlos. I have about 4 weeks of placement I need to make up so now I'm stressing out because I'm still not fit to go in. It's making it worse because when I speak to my mum all she tells me is to remain positive, but how am I supposed to be positive when everyday I wake up in horrible pain all over my body feeling like I haven't slept a wink, & constantly crying whilst feeling depressed and anxious. This post was really just a rant and I apologise for that but I just feel like I can't get across to my family and friends how debilitating this really is.

9 Replies

  • Sorry to learn of your diagnosis of ehlers danlos on top of fibro, my daughter has both, you really need to speak urgently to the head person of your course to find out how they can assist you with your studies, with the right help you can hopefully reach your goal of qualifying. All best wishes xx

  • Hi

    It is no good trying to push yourself when your body will not cooperate. It is not a case of mind over matter, you are physically unwell.

    I would speak to whoever is head of the course and ask for some leeway.

    I am not sure where you are studying but if it is uni or something similar you can asked to be assessed for Disabled Student Assistance. This means you will be given extra time for handing in work, exams, lecture notes. It also means adapting your workplace and you can be given extra help for physical work.

    It is worth applying.

    Your family are probably anxious about your illness but don't want to discuss it with you as they have no solutions. If you go on to our Mother Site you will be able to print information off for your family. There is an EDS community on HU which would be worth joining for support and advice.

    Hope you have a better day tomorrow.


  • Poor you.....I do feel sad for you as you have worked hard to get where you are and you can now see it all going down the drain.....Make an appointment to see whoever is in charge and I am sure they will do their best to help and assist you in your aim. Please do show/print off the fibro information and show your family....let them look at this forum and they will understand more.......Please do rant and rave that is what we are all here for to support, advise and hopefully have a giggle! Please let us know how you get on and I wish you all the best....xx

  • Sorry if you don't want to hear this but you really need to speak with your tutor at uni. I was a student nurse doing adult branch a few years ago and began to struggle with my health. I had to be assessed by occupational health and was advised to take a break from the course as it wasn't safe for me to be on the wards. It was devastating at the time but it's I now understand it was for my safety and that of patients. I never did go back. I ended up doing something different that I really love and fits with my health and kids! Don't give up hope I'm sure it will work out. They may be able to help you spread the placements out more, or less hours but over a longer period for your course to give you more flexibility. Maybe 6 months or a year out without the stress of thinking about your course will allow you to focus on finding the right medication and pain relief to ensure you can get back fitter and in a better frame of mind. Good luck I hope it works out for you.

  • Sorry your having such a bad time and hope you start to feel better soon!! No need to apologize you can rant here all you want as we do understand. Take care. Peck.🐤

  • Hi Char_Green95

    I am so genuinely sorry to read of how you are suffering and struggling and I sincerely hope that you can find some resolution and relief to these issues. I was wondering if you would be allowed a special dispensation to have some time off until you have everything under control and then be allowed to pick up were you left off? It may be worth talking to your seniors about this, as to be honest you really need to keep them informed of your medical conditions?

    I want to sincerely wish you all the best of luck, and please take care of yourself my friend.

    All my hopes and dreams for you


  • Hi I fully understand how you are feeling I had the same until I found a picture off fibro on line and how it looks inside the body. I showed it to my friends and family and now I get so much support. It really gets the message over as we all know it's a unseen illness. If I knew how to copy it I would send it to you but I am not very good at doing that. If you know how I can send it private to you or you can google it. The one I have speaks volumes. I truly wish you well and take good care.

    Jan101 🙏😘XX

  • one step at a time, life has thrown a bucket full your way. You are allowed to rant, in fact not to rant would ensure sainthood. And who is a saint. Slow down get your head around the diagnoses. It's a learning curve. Re studies Lou has said it all. even if the placement is not for you and the body beautiful at the moment you can still followed your career choice by reading checking stuff on line. You have just taken an exit from the motor way that gets you there supper quickly. That's all. In our house we call this the pretty way. True not so pretty when you have pain. cut yourself some slack you have a lot to get to grips with. May life throw some pretty things your way.

    Throwing you a handful of star dust to light a dark corner.

    Here catch


  • As others have suggested it would be a good idea to take some time out if possible. I was off work, but returned when I shouldn't have and in the end had to give it up. It is impossible to get better when you are stressed about work. Gentle hugs x

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