Feeling like my doctors brush me off - Fibromyalgia Acti...

Fibromyalgia Action UK

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Feeling like my doctors brush me off

Imanoyed profile image
15 Replies

I've been under a doctor's care for depression for a number of years and it has been managed well with medication. My most concerning issue is that I have been complaining about pain in my neck, upper back, shoulders and arms for quite awhile - I was told to take ibuprofen. Then was told to go get a massage to deal with stress. I finally told them that I couldn't deal with the pain any longer and was sent to pain Management. Duloxitine was prescribed for nerve pain and it worked for the neuropathy in my arms. Muscle relaxers are prescribed for the muscle rigidity in my neck and back. I am told my scoliosis won't cause pain. I'm also told that my cervical disc issues should resolve on their own. I had to give up my professional position due to the fact that I can't drive far without getting a debilitating cervogenic headache. Now I'm being told I have Fibromyalgia when my issues don't really meet that criteria. The duloxitine is no longer working for the nerve pain. So I'm told to wait and see how I feel in 4 months and then come back for another appointment.

It all makes me feel like I'm being brushed off as just an attention seeking old woman. Has anyone else ever felt this way?

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Imanoyed
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15 Replies
Adlon57 profile image
Adlon57

I had a doctor that did that, 'listened' to my woes, gave me some pain killers then shooed my out the door! I had a schwannoma on my left elbow for four years, he gave me all sorts of pain concoctions over the years, actually sleeping in a big leather seat during that time, no pressure on my arm, I lost my patience with him, changed my GP, within three months, fully diagnosed, surgery [and big celebrations🤗] a change might help? Good Luck!👍

WF2k profile image
WF2k

I get this a lot and not just by one GP, I had it at my previous medical centre and my current one, I've been spoken to like crap in regards to my mental health, fobbed off and given the same options that I tried and didn't work. My physical health, well.. that's just as bad, it either gets ignored or blamed onto my FM and I'm also not sure if it's even FM, the only thing they actually helped me with was my frozen shoulder and I still have issues with that. I also feel like I may have scoliosis, same sort of problems as you to a degree. I don't take meds/painkillers, I have stomach issues as well.. I've been looking for another medical centre to change to but they're all as bad as each other here, so I've been looking for an advocate and think I've found a charity who can support me with getting some actual proper help from the medical centre.

Imanoyed profile image
Imanoyed in reply to WF2k

Good luck to you. I honestly hope you find some relief.

WF2k profile image
WF2k in reply to Imanoyed

Thank you, I've been emailing "Rethink" and even they've managed to acknowledge that my mental health problems are "complex" because they've been caused by long term abuse. This is information that I'll be using when the medical centre get back to me, I've told them I can't call "email only" but again, I bet they'll ignore it and call me like they do every other time... Pardon the rant.

"Has anyone else ever felt this way?"

Yes.

Never felt any other way. Just different versions of this pucky.

I'm sorry you've experienced it too.

Adlon57 profile image
Adlon57 in reply to Nothing_but_books

The "wrong" doctors in the wrong places, disorientated, disjointed, as much backbone as a dead worm, just par for for the course, the medical centre here being tainted like a political mafia! As usual the patients are the ones who suffer most!🥴🥴🥴

Nothing_but_books profile image
Nothing_but_books in reply to Adlon57

I'm sorry to hear it. Here too.

My backbone's almost up to live worm.

Adlon57 profile image
Adlon57 in reply to Nothing_but_books

My rib cage structure has almost collapsed, osteoporosis , causing heart flutters, etc, my health centre knows all about it, commiserate, but partly [mostly] because of continuing political situation🙄........

Nothing_but_books profile image
Nothing_but_books in reply to Adlon57

Oh I'm so sorry! That's so not right. People playing political games and others suffer.

Adlon57 profile image
Adlon57 in reply to Nothing_but_books

Fraid so, people terminally ill, with terminal conditions, NHS in slow mode, not their fault, under manned, understaffed, over worked, under paid [lowest paid in UK], who suffers🙄🥴 [the patients of course🙃😒], all because a certain political party does not work in the Northern Ireland Executive, [must all do things according their way, if they don't, like taking a main cog out of a machine, the machine stops (ironic they are not even the main party😖😤) terminally people are dying due to this situation, 23 months so far out of synchronicity😵🙄🥺

Midori profile image
Midori

Have you been referred to a Rheumatologist or neurologist at all?

Imanoyed profile image
Imanoyed in reply to Midori

I haven't been.

WF2k profile image
WF2k in reply to Imanoyed

You would think that would be one of the first things that they do, surly?

Midori profile image
Midori

Ask your GP to refer you to a Rheumatologist for preference. I have been to both, but the Rheumatologist actually diagnosed me, then discharged me back to the GP.

Unfortunately, There is no universally agreement on what Fibro actually is, so sometimes I think GPs guess.

It's always a pain.

Cheers, Midori

Chloe789 profile image
Chloe789

I have had a doctor that gave me medication to help with the fibro pain. I went back to the doctors to say it wasn't working. I saw a different person and she told me that the drug I was given wasn't for pain. So God knows what this drug did to me.

I refuse to see the doctor that gave me the useless drugs.

I hardly take pharmaceutical drugs now.

Fortunately I have more natural methods of treatment for my pain.

Don't stay with a doctor that doesn't listen to you, it could effect your health etc.

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