Fibromyalgia Action UK
38,752 members51,010 posts

PIP denied and rising anxiety

Hi all,

I'm new here and this is my first post so apologies for the length. My wife has suffereed from fibro for a few years, as well as arthritis, anxiety disorders and now diabetes. She was called in for an early review of her PIP claim, which has now been denied. We have asked for the mandatory review, as what was said in the assessment decision, was definitely not what happened in the assessment.

Her anxiety has now kicked in big time, and I'm at my wits end. I gave up work a while ago to try and look after her, and now to be told she's not entitled to help is outrageous. I just wanted to share with people the disgraceful way people are being treated at the moment.

I can't say anymore right now, I'm too upset.

8 Replies

Hi Fibrohusband welcome to our group. So sorry you are being caused all this stress and worry. There are a lot of us on here who have been through it and understand. I myself was awarded pip a couple of months ago but I'm going through it all again now with esa. Did you ask for a copy of the assessors report? If not then phone them and request a copy. Definitely go for MR and get as much evidence as you can. This site has their own Benefits Advisor called Janet. Someone from admin will be along soon to welcome you and give you all the details. Please don't give up you have to fight them. Take care both of you x


Hi there

Welcome to the forum. I am so sorry to hear what has happened to your wife. Sadly it is not uncommon.

When you are ready, here are a few suggestions that I hope may help.

Google for a Disability Advocate. They will help you through the Mandatory Reconsideration process and will not charge you.

There are also organisations such as Turn2Us and Welfare Rights.

Do you claim Carers Allowance? If not, that is something that you can start looking into.

We are very lucky to have our own Benefits Adviser Janet. Here are all of her contact details:

Do you have a copy of the Assessors Report? If so, I would go through it and highlight all the discrepancies on it.

Unfortunately your wife's case is not uncommon. Just last week we had a chap who had actually had an above the knee amputation on one of his legs and he was still assessed as fit to work!

I completely understand your distress and worry. I have been through the system myself.

When you have calmed down, sit and make a list of the things I have detailed above.

There is help out there - you just need to find it. Unfortunately it differs across the country and many of the charities are local to certain towns and areas so I am unable to point you directly to someone.

Is your wife receiving any help for her anxiety? I know (from personal experience) that treating anxiety is extremely difficult, but once again there is help out there. Has your wife ever had a course of CBT (Cognitive Behaviour Therapy)? Many people on the forum have found that is has helped them enormously.

Please send our very best wishes to your wife. I hope that in the future she may be able to join us here.

Wishing you both much peace

Lu x



Hello Fibrohusband and welcome to our friendly fibro forum where you can get advice, support and help with all things fibro.

Our Mother Ste is where you can find information about all things fibro.

I am sorry to hear your wife is not coping too well with the refusal of PIp and sadly it is a story we come across too often. I see BlueMermaid3 has given you lots of information to help with where you decide to go from here.

Please do go for a Mandatory Reconsideration, you have nothing to lose and much to gain. If your wife is too poorly it might be up to you to do all the legwork, but it is really worth hanging on in there.

I can understand your frustration and being upset, and it is hard when you feel you cannot do anything to help. Just being there, comforting and supporting your wife is more help than you would know.

Be kind to yourselves and take it easy for a day or so to gather strength for the next stage.



Hi Fibrohusband and welcome to the forum. Reading your post is so sad and I'm so sorry that your wife has not been awarded PIP and I do so hope that you get some help with it all and the decision is changed for you my friend.

At least you are at the right place now for some friends and support that you need. I see BlueMermaid3 has given you some fantastic advise as what to do next & so i just wanted to say Hi & i wish you luck with it all & do let us know how it all goes.

Peace, luv n light

Jan x


Hi Fibrohusband

Welcome to the forum and it is wonderful to make your acquaintance. I really am so genuinely sorry to read what has happened to your wife and it is not the first time that this type of story has come up. It would appear that it is happening often.

I want to sincerely wish you both all the best of luck my friend, and please take care of yourselves.

All my hopes and dreams for you


1 like

Welcome a lot of us have been in your situation do get advice I went to dial it can feel deflating at times but unfortunately it the way they do things to discourage people from appealing get as much medical evidence as you can together it always best to do this at every opportunity and keep copy's I always do 3 of each and get help filling in the forms remember they are not giving a health diagnosis but assessment of your daily needs and they are using a computer based point system hope you get the help you need


Hi I am very sad to hear the stresses that you both have gone through. Like the last post said send as much medical evidence as you have i.e. Hospital appointment copy's doctor appointment anything you have. I send a lot off hospital letters with my form so they could see what I had gone through and I think that is what helped me. I also asked them to send all my copies back and they did. Also I asked for a home assessment as I feel that it's better on a one to one basic. I truly wish you all the best off luck. 🙏 XX


Feeling for you, Ivery just received my date & it's Preston, there's no way I can go or get there, how did you manage to get a home appointment please, as everyone is telling me this is what I should do?

I do have a care package from social services that is invaluable - do you have one of these, they'very put aids in my home, extra rail, shower seat, 2 graph rails & a bed lever. I'm a single parent, who is not capable of looking after myself let alone a hyper rebellious 12 yr old, hope this is of some help to you both & I look forward to your reply on PIP Assessment home visit 😡


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