Any advice for a newbie?

Hi everybody. I'm new from today. I've had Fibromyalgia and Polyarthropathy for seven years which feels like a lifetime! I'm taking 125mcg Fentanyl patches plus oxycodone but am attempting to decrease dosage accordingly, however I seem to have more side effects than I need! Fatigue and depression are constants with little light from the end of the tunnel!! So I decided to join today to see if anyone has got a magic wand, magic potion or some advice to brighten my day.

9 Replies

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  • Gregz l think you will get a lot of good advice on here, if you see my reply to people I am one of the people on here suffering like you. I hope you find a way to feel a bit better xx

  • That's lovely. Many thanks.

  • Thanks for the replies. I'll certainly take a look at the Moringa powder, thanks Kenny, I feel sure there must be something out there in nature, perhaps herbal etc, that may be beneficial to us in some way. Regards Gregz.

  • When I was on fentanyl, oxys, and k-pins I was so weak and could hardle get out of bed. I was on much more other meds. B4 fentanyl but it all did the same. Confined me to bed mostly. Edited By Admin. After 16 years I decided there has got to be a better way then destroying my body on these opioids that a famous pain doctor said didn't really work anyway. Think about it if they were working you wouldn't be writing. Edited By Admin

  • Hi Alikat1954. I'm beginning to think the same. I'm intrigued by what you mean by "get rolfed" ????

  • I'm intolerant to many meds but pregabalin, very low dose,helps but a long hot shower helps ease many pains n stiffness and lift's the mood.Praying for you and hope you find a solution to the mystery fibro brings,God bless,Jay

  • May I suggest you wean off the oxycodone with medical assistance? It causes more problems than it fixes. I'm on fentanyl patches and a variety of other meds. All the best my friend.

  • Hi Gregz

    Welcome to the forum and it is wonderful to make your acquaintance. I have pasted for you below a link to our mother site, FMA UK which hosts loads of useful Fibro information:

    fmauk.org/

    I want to genuinely wish you all the best of luck, and please take care of yourself.

    All my hopes and dreams for you

    Ken

  • Many thanks for all your posts. It's great to be able to 'talk' to people who are all in the same predicament as myself. Thanks for all being so upbeat. Its almost a pleasure to be here. ha.

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