what is really behind fibromyalgia

Hi all i am back, it is so sad the pain and suffering i am going through make me angry and tired. every week i get weaker my head hurt, my eyes, in my years and every joints, i just don't know what to do. if i walk 20meters i am weak and tired, i get the baddest head pain going down my spine my carer have to be behind me with the wheelchair because i also get dizzy. I have change my dieted big time but still i get so ill everyday i am going swimming next week with support and see how it will help. if i push myself i get set back and i want to be there for my five year old. GPs don't give a monkey they don't take it serious.

Ava 78

10 Replies

  • Hi Ava

    I'm so sorry that you're suffering so badly.

    Have you thought of changing your dr or Drs practice?

    I don't know how old you are, but if you have a carerer and a five year old you need a good dr. Have you seen a rhuemy consultant? If not maybe you should ask to see one.

    I am on no meds, as had bad reactions. I'm taking extra vits, magnesium tabs, (someone posted that magnesium oil rubbed in has helped her) or Epsom salts in a bath. Have you cut out too much in your diet, maybe that's why you're feeling very dizzy? Eating healthy foods should help you, but you should eat enough.

    Someone else has posted something about D-ribose supplement, a dr apparently advised a MS sufferer to take it to help muscle strength. I got some tabs off of Amazon and am trying it, not been on it long so can't say if it helps yet.

    Also someone's just asked if anyone's tried Rhoirola, I'm going to google that.

    I do hope that you get some help, I know it's bad but we just have to keep fighting for help.

    My very best wishes go out to you, take care. 😊🌸🌺

  • thank you, i am looking about change my GP and a

    i am seeing my consultant next month i will take your advice on everything. thanks

  • I hope something helps you 👍😊

  • thanks me too

  • So sorry to read that your fibro seems to be getting worse. I do hope the swimming helps. When we are feeling like this we have to accept unfortunately that we just can't push ourselves and msut take things slowly and gently. Hope that your appt. with your consultant next month brings some answers for you. Do let us know how you get on and whether you are feeling any better.x

  • thanks, i am trying to accept but its so hard thank you so much.

  • I don't know how you cope with a five year old and having fibromyalgia, gosh it's hard for anyone without an illness, perhaps you are pushing yourself too much, so easy to say I know but unfortunately that's the nature of fibro if we do too much boy do we pay for it afterwards, try and find a way of pacing yourself do that you are ok when you are with your son/daughter, take care

  • its so hard for my daughter because all she want is to have fun with her mum. thanks so much

  • Hi Ava you have my sympathies this is a horrible disease and much as you want to keep trying to do things, I know it must be so difficult with a five year old to look after, but you need to try and pace yourself. We are all guilty of doing too much when having a good day but as Arymretep says you need to allow yourself to rest when you are having a difficult day. I'm sending you good wishes and hope you will have a peaceful night. Be kind to yourself. Dianne 😀X

  • Hi Ava78

    I am so gneuinely sorry to read of how you are suffering and struggling and I want to sincerely wish you all the bets of luck with your swimming and changing your doctors. As the others have said pacing yourself and getting the right vitamins (asked to have them checked at the doctors) are very important. I would also ask to have your blood pressure taken if you have not already since you get dizzy very easily. I want to wish you all the best and please take care of yourself.

    All my hopes and dreams for you


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