Fibromyalgia Action UK
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Hi I'm literally brand new to this site and after some advise. Cloudgirl41 I totally understand how you feel and can relate so much even tho I haven't been diagnosed YET! With fibromyalgia the more I read about it the more I believe its the condition I've got.long story short for over a year on and off I have been getting a dull aching sensation under my left nipple and severe pain under my left shoulder blade.but from June the 3rd this year I woke up with these symptoms and the have never left me to date and have made me unable to go about my daily activities work etc. Since June I have also had 12 attacks by which I mean I suddenly become more unwell than normal the pain in my chest gets really tight the pain in my shoulder becomes unbearable sharp pains across my chest,neck pain,throat pain,really hot and clammy,fever like,can't keep my legs still,left arm feels really heavy. And I don't always get the same symptoms every attack!..oh and waking up in the middle of the night sweating has become normal to me now. I haven't worked now since may in fact I don't leave the house anymore unless I'm goin to the hospital which I have been to 12 times and every time I have been told different first I was told I had pericarditis and put on anti inflamatories I have also been told it was just a case of overheating.some times Im sure they think I am making it up and like having days out at the hospital. Bloods and X-Ray's have been done on every occasion and came back ok.At one point I was put on steroids to treat was only on the second to last trip to the hospital fibromyalgia was mentioned.i am having an mri tomorrow and have had an eco off my heart which was has totally crushed me I was a highly active outgoing type of person until May this I am a nervous reck! Does anybody else have similar symptoms? I've give up on the nhs just hope my mri shows something/anything as I just want to be well and able now.....

4 Replies

Hello Garyb12

Welcome to the forum :)

If you take a look at our mother site you will find a list of symptoms of Fibromyalgia

It can take an awful long time to get a definitive diagnosis of Fibro as the condition mimics so many other illnesses. It is important to get these other conditions ruled out first.

I was wondering whether you may have a condition called Costochondritis which is inflammation of the chest wall lining. Has that ever been mentioned to you as a possibility by your GP? It can be very painful and debilitating.

It would be an idea for you to make an appointment to see your GP and ask for a referral to a Rheumatologist. They are the Consultants who specialise in, and diagnose Fibromyalgia. Although increasingly Neurologists are also diagnosing as well.

It does sound from your post as though your GP is sending you for investigations which can only be a good thing.

You will find everyone on the forum supportive, kind and compassionate.

I very much hope that you enjoy the forum. Please feel free to post with any specific questions you may have. We are not medical professionals, but we can share our own experiences with you, which can be very helpful.

Wishing you less pain and more peace

Lu x



I was wondering like BlueMermaid3 whether it could be costo chondritis as I have it and it started around my left side around the rib cage area and across my left breast a really hit gnawing and sometimes shooting pain which went around my back. As it got worse it went all around my rib cage and I could not lie OK n my left side, still can't and leaning back on w chair was even painful. As she says it is very debilitating and drai IMG and I used to sweat with the pain and she it is bad still do as it seems to make you feel weak.

Do hope you get some answers.x


Hi Garyb12

Welcome to the forum and it is wonderful to make your acquaintance. I am so genuinely sorry to read this, and I sincerely hope that you can get a diagnosis one way or the other soon. I also want to sincerely wish you all the best of luck with your MRI.

I also agree with your other respondents, as I have Costochondritis, and it does sound similar to what you have described? I would make an appointment and discuss this with your doctor just to get it ruled out of the equation. I have pasted you a link to the NHS Choices cache on this below:

I want to sincerely wish you all the best of luck, and please take care of yourself.

All my hopes and dreams for you


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Welcome Iv been here a while if this helps you at all its up to you I'm trying a new medication Mix From my Doctor Its Pregabalin /Liycra 200mg twice a day and Duloxetine 30mg 1 a day May be this will help you But I'm no doctor of Course Good Luck

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