I have had fibromyalgia for 14+ years now and over the last few years it is getting worse by the day. I get very little sleep if any and when I do I awaken to instant all over pain and pins and needles in my arms and fingers. I have a constant feeling of pain in the bones of my legs and my pelvis feels like a block of concrete. I am tired and have sudden bouts of fatigue, I can literally fall asleep on my feet. I have regular migraines and feel like I am dragging myself around. I continue to walk but with great difficulty and not very far before I need to sit down. As I have said in past posts I was extremely active and had a good career. Forgetful? Very! I am very sensitive to drugs so pain relief is minimal, cocodamol with low dose of oromorph when things unbearable which is becoming daily especially at night when I try to sleep. Unfortunately even these drugs which I only take at night are aggravating the Asthma which I have had all of my life. I was in tears at my last doctors appointment , he said there were no options left due to my intolerance of drugs, when I asked why I was getting worse and if fibromyalgia was a progressive disease, he blanked me and dismissed me with "this conversation is going to get us nowhere so there is no point having it" leaving me bewildered and upset as I just can't why no matter how careful Iam or how much I look after myself I continue to be in constant pain and am becoming housebound. I have always cared for myself, not drinking or smoking, kept my weight steady until the last five years when it took on a mind of its own, I attended the gymn three times a week went swimming and walked the hills at weekends with my family, I am a vegetarian. So I think I have a right to know why after a lifetime of healthy living am I in such an awful place? I know fibromyalgia was triggered by a back injury and yet I am constantly told my back is ok just normal degeneration for my age (57) is it wrong of me to want to know the how and whys and what the future may be? I often feel so alone in this and the lack of the health professionals understanding of how this disease affects peoples lives, its devastating! I often wonder just how much longer I can take this? Of course I can't afford to use alternative theraphies as I live on a widow's pension and am awaiting the added joy of a PIP assessment, which is what my GP suggested, I told him I was on a low income and he said that was nothing to do with him. Now I am even worried about going t the Doctor's, even if I do, what can he do, I gave him a download of the information off this site. I seem to be at a dead end, and I have been feeling very poorly this week, have been having chest pains, think it's stress, but can't stand the thought of another rebuff. Sorry for the rant, hope you are all as well as can be. I am having the granddaughters tomorrow evening and going to a healing service in the afternoon, that will keep me going for the weekend. I do try to find the good in my life and there is a lot, just wish I could get some relief from the constant pain. Gentle hugs xxxxxxxx.
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