Who do you see, in which department?

Hi, new here though you may know me from similar groups. AIH, Lupus, Menieres, diabetes 2, oesophagus probs, now Fibro.

A rheumy dxed me on another, lupus apt. Is this who treats us?

I am self medicating on co codamol 8/500mg and Tramadol when unbearable pain pops up. More tired than I thought possible given years of debilitating fatigue.

Does poor sleep come as standard with this? Any tips?

Thanks guys

⚽️

10 Replies

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  • Hi there nice to hear you hear as problems shared is one that can have some relief. From what I've read and heard its a standard symptom of Fibro.

    I know just what you mean by exhaustion. I've recently come to see that my muscles are now a lot more tired from the chronic pains and cramps and nerves too. I try to battle on but not very successfully my exhaustion gets me every day :( but like every thing else I know ill get used to this too and learn to live with that too. I hope I've answered your question and not left you feeling alone in all this. I believe that you have only just been diagnosed with fibro so your in the right place. Fibro can be so complicated to get to know and understand, If I might suggest manage your pain as well and also if you can that will help reduce the stress somewhat. well I dare not go on any more fibro friend x

  • Thanks Royalspec01. That is reassuring that I seem to be bog standard. It helps

    Hope you are well

    ⚽️

  • Yes, it is. We currently fall under a rheumatologist but there is a growing number (very slow growing) who are also seen by a neurologist.

    Surely your Dr prescribes you Tramadol? You certainly can't buy them over the counter.

    Sadly yes, sleep problems are us! When you next see your rheumatologist ask what drugs may help you with your Fibro. It's usually amitriptylene or gabapentin. Because my sleep was so bad I was put on amitrypteline, which knocks me out at night. Takes a while for the body to adjust to it and will make you feel out of it for a couple of weeks, so, if you are prescribed it, be prepared to wipe out a couple of weeks. It has helped my Fibro symptoms though.

    Hope that helps 🐸

  • Yes, Tramadol from GP. I had undiagnosed, no one interested, unbearable pain in top of shoulder in Feb. Incapacitated 2weeks only xray done still dont know why, but pain killers by the bucket load. So using up what I had though no use at times. Wonder if I will get Ami?

    Thanks for your reply

    ⚽️

  • Tramadol doesn't generally help Fibro pain, but it does help other pains. I was told by a pain specialist nurse to take a paracetamol capsule perctramadol. It made a difference! But that was for my osteoarthritis. Worth trying to see if it helps you.

    Amitriptylene helps nerve pain, but it also has a sedative element. It is an antidepressant, with the benefit of pain relief. I am on 100mg, which I take about 8pm. By 10pm my eyes are heavy lol. Not everyone can take it though as it makes them feel tired, but you do have to give it a few weeks for your body to adapt to it.

    All the best for your next appointment 🐸

  • Hi there

    Oh yes ....sleep problems all part of it! I can't sleep when my brain won't switch off no matter what the GP gives me,so I read a lot and that helps to relax my mind. If I'm lucky I can get 2-3 hrs sleep or go for over 70hours without sleep,

    Talk to your GP , it's worth trying anything once

    Hope you get some sleep tonight

    Guccigirl x

  • Thanks for your empathy Gucci. At least I am normally abnormal, if you know what I mean. Appreciate your support

    ⚽️

  • Hi Footygirl

    I sincerely hope that you are feeling as well as you possibly can be today? Welcome to the forum and it is wonderful to make your acquaintance. I have pasted you a link below to our mother site, FMA UK which hosts loads of useful Fibro information:

    fmauk.org/

    I am so genuinely sorry to read that you now have Fibro on top of your other medical conditions and I sincerely hope that you can find some resolution and relief to the pain and fatigue. I have personally suffered with insomnia most of my adult life and so my sleep pattern was in place prior to my Fibro diagnosis but I am sure they go together.

    Most members (but not all) are diagnosed by a Rheumatologist but some are diagnosed by others. I saw a private consultant and then went on to do CBT and Physiotherapy which I found really useful. I want to sincerely wish you all the best of luck and please take care of yourself.

    All my hopes and dreams for you

    Ken

  • Thank you for your lovely welcome. I will check out the site and will join, if there is an association. I will be very interested in any and all information as I believe in knowing as much as I can about my illnesses.

    Looking forward to talking to you all soon

    Best wishes

    ⚽️

  • Hi Footygirl

    Just on to ask if you got your report from Manchester Royal Infirmary Dr Sullivan I think Let me know what they have to say

    regards

    Jean

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