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Mandy_lw profile image
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I hope everyone is feeling OK today? I've been having lots of problems lately which my Gp has ordered tests for. I have been asked by some of you what my test results were. 

MRI - brain lesion 

EEG - abnormal theta brain waves when awake

Sleep Deprived EEG - awaiting results

Bloods - very high markers on CRP and ESR (these markers mean lots of inflammation) but do not state where the inflammation is situated 

Thyroid test - finally within the range of normal

I have another full blood test scheduled for next week. I hope to get a definitive diagnosis soon but as brain lesions are not associated with fibromyalgia I fear it will be multiple sclerosis. I'm not sure about what other tests apart from a lumbar puncture are required? Feeling very sad at present but sending love to all x 

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Mandy_lw profile image
Mandy_lw
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peck profile image
peck

I hope you get a diagnosis soon as I think it will help you.Appears gp has covered all bases.Good luck.Peck🌻

Kitten-kat23 profile image
Kitten-kat23

My thoughts are with you. Sending soft gentle Hugsand positive vibes. 

Sorebones profile image
Sorebones

You have been through the mill you poor thing. I am so sorry that you are having to wait, yet again, for a definitive answer. I really can't do anything to help except let you know that I'm listening and please let me know how you get on. My thoughts are with you 💐🐸

BlueMermaid3 profile image
BlueMermaid3

Oh goodness Mandy. What an absolutely dreadful time you're going through at the moment. Do you know how long you will have to wait for your diagnosis?

I very much hope that it is not MS. My thoughts and prayers are with you. 

I wish there was something I could do to cheer you up.

 Sending you many gentle hugs and kind thoughts winging their way to you.

Lu xx

TheAuthor profile image
TheAuthor

Hi my friend,

I am so genuinely sorry to read this and I sincerely hope that you can get a diagnose one way or the other very soon. My wife has Primary Progressive multiple sclerosis as she has many lesions on her brain.

Usually a single lesion is not classed as MS, as there are other medical conditions that have these lesions. I have pasted you a link below to the NHS Choices cache on MS.

nhs.uk/Conditions/Multiple-...

The next step in a diagnosis for MS would almost certainly be a lumbar puncture. It would appear that quite a few of your tests results are abnormal, and would need further exploration?

I want to genuinely and sincerely wish you all the best of luck. Please take care of yourself.

All my hopes and dreams for you

Ken

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