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anncooper profile image
11 Replies

I diagnosed myself years ago with fibromyalgia was promptly told not to be reading all these leaflets . And low and behold after a stint off  work for six weeks was told by my doctor i had fibro but have never been diagnosed by a hospital consultant, now my doctor thinks i might have polimyalgia rhuematica and am now trying Prednisalone steroids which can give all kinds of side effects.

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anncooper profile image
anncooper
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Rose54 profile image
Rose54

Hi Anncoper

I have PMR and on steroids

I have put on weight and have a moon face also high cholesterol however I am able to do things I had 4 months off work was unable to do anything but once the preds got the inflammation under control was able to return to work .Some days are worst than others but PMR is treatable and hopefully will at some point burn itself out .

Given the choice of having PMR or Polymyalgia  I would rather have the first one and  Im sure most members of this site would say the same.

Suggest once you find out join the PMR site of Healthcare Unlocked

Best Wishes Rose

anncooper profile image
anncooper in reply toRose54

Thanks for your honest reply

Redhots7 profile image
Redhots7

You should have a professional diagnose Fibro !  The Trigger Point test is tried and true ! Fibro symptoms are also symptoms of many other problems so important to not self diagnose !

Ansteynomad profile image
Ansteynomad in reply toRedhots7

Actually the trigger point test was superseded some years ago by other, more general diagnostic criteria.,

Redhots7 profile image
Redhots7 in reply toAnsteynomad

Like what ?

Ansteynomad profile image
Ansteynomad in reply toRedhots7

fmcpaware.org/fibromyalgia/...

Fibrofoggiest profile image
Fibrofoggiest in reply toAnsteynomad

Those are criteria which apply in the United States, not necessarily in the UK, just so people are aware 👍🏻😊

Redhots7 profile image
Redhots7 in reply toAnsteynomad

Funny, first thing you see is the 18 trigger points.  I agree with further investigation and trigger point test should not be only consideration .  Since it takes several years of repeated complaints and additional symptoms.  Lots of tests eliminating other diseases . Fibro has finally become a recognized syndrome and doctors more familiar , now we need more research for cause and cute !

anncooper profile image
anncooper in reply toRedhots7

I know but sometimes i dont know hoe to bring the subject up given that with some of the doctors you only get the bare ten minutes

rosewine profile image
rosewine

Do hope that the steroids work for you as from two people I have known who have been diagnosed with PR they have been like a miracle.x

TheAuthor profile image
TheAuthor

I want to genuinely and sincerely wish you all the best of luck with your Prednisolone. I have been taking a maintenance dose of 10mg daily for my COPD for several years and I have also put on weight with these.

All my hopes and dreams for you

Ken

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