Newbie

[Calorie123]

Hi, I'm new to this site. Been diagnosed with fibro and CFS. Currently having counselling. Feeling bit blah as had new symptom from last night - muscle spasm in left calf area! Any advice appreciated!

[BlueMermaid3]

Hi there

I'm sorry to hear that you have been diagnosed with Fibromyalgia but am very happy that you have found us 😊

Everyone here suffers from Fibro too, so we are a compassionate kind bunch who understand how you feel.

When you write a post it is a good idea for you to lock your post. I will put instructions on how to do this at the end of my reply. Unlocked posts are open so that anyone on the Internet will be able to read your post and also any replies you have.

If you lock your post only our community can see it. However, the choice is yours.

Were you diagnosed recently? I only ask because it can take quite a long time to come to terms with having what can be a life changing and long term condition.

Getting the right set of medication to suit you can be a huge amount of trial and error. What works for one person may well not suit another.

Is it CBT counselling that you are having at the moment?

Are you looking for general advice or is there something specific that you wanted to find out about?

I look forward to seeing you around the forum.

Wishing you wellness and peace

Lu xx

To lock a post when you've finished writing it scroll down to the bottom of the blue box and you'll see on the left hand side two options:

o Everyone

o Community

If you click on the Comminity option and this will then lock your post.

If you want to lock a post that you have already put up onto the forum, find your post and again scroll to the bottom of the blue box. You'll see a small downward arrow. Click on that and you will get an Edit option. Click on edit and then select the Community button as above.

[Shadows-walker]

Hi welcome , fibro changes day to day , the key is to pace and be kind to yourself my new friend, don't over do it I set my self weekly tasks ,if I manage half of them that is a successful week and never more than 2 in one day I learned the hard way to ignore symptoms and basically wore myself out , listen to your Drs and your body and never push yourself , if I haven't completed them they will be there tomorrow, I find hot baths with Epsom salt a winner on the muscle front personally, ,but some here prefer showers , and get your vit d checked ,

I have had pain clinic counciling and am now having one on one counciling as well , life is unfair , but laughter I have found the best medicine,

And again be kind and gentle with your self ,

Hugs

Shadow x😊

[Katherineanne]

I joined this forum about a month ago. Diagnosed over 7 years ago. Glad for you that you are seeking support much earlier than I did. I just started getting spasms a couple years ago. Rhuemotologist gave me Muscle relaxers...which, honestly, I find only exasperate my fatigue and lower my energy pocket quite a bit. There are different things that can be done, but I often found that it was happening at night during my sleep where I would be awakened... Which of course makes your sleep worse which of course makes feel worse the next day. It feels like fibromyalgia has you caught in a never ending cycle that ebbs and flows..as you move through life. Most of the Solutions for relief are really a personal and mefical system of trial and errors, of balancing, of being your own advocate and then figuring out what works for you , speaking up, asking questions... Just like you're doing now . I know that finding this site actually took a figurstive thousand pounds off of me emotionally... just by reading, other fibromyalgia sufferers post's..., somehow knowing that I was not alone made me feel far more understood than I have ever been, since the begining with this "thing" that has been 100% life affecting for me...it has changed everything entirely . So although there is no cure.... I have heard of some homeopathic treatments nd new information that seems to have helped others.. that I am in the process of trying and checking out myself... including counseling which is started last week. So I'm glad that you're in counseling too because it will affect you mentally far more than you realize ... You sound like a great advocate thus far for yourself and I am thrilled for you in reference to that ! Not that you have fibro, but for reaching out, asking for help, getting help and being your own best advocate ... Good for you !

Katherine

[TheAuthor]

Hi Calorie123

I sincerely hope that you are feeling as well as you possibly can be today? Welcome to the forum and it is wonderful to make your acquaintance. I have pasted you a link to our mother site below, FMA UK which hosts loads of useful Fibro information:

fmauk.org/

It may help to discuss any new symptom with your GP or Medical Specialist just to have other medical conditions ruled out of the equation. I want to gneuinely and sincerely wish you all the best of luck.

All my hopes and dreams for you

Ken

[Dusky]

Welcome x

[Hidden]

Hi there, Nice to meet you.

Sue x

[skit]

Hi Welcome.

Fibro has many different aspects. Muscle spasms can be one. On positive note Quinine is helpful. You can take it with Gin or without! There are meds with Quinine just talk to your medics.

I wish you all the best and forums are very helpful.

Physical support groups I consider are complimentary to exclusive from the forums. If you have the chance look up on fmauk.org for group near you. There it may surprise you!

[Cuddles1979]

Hi

I have also recently been diagnosed and so far have discovered just how much my body is intolerant to medications! I have now been referred to physio and the pain clinic to look at alternatives but in the meantime I am researching and trialling things myself.

After some research I have began taking magnesium supplements which so far have reduced my pain considerably and a newfound confidence to reduce amitriptyline dosage which is exacerbating the fatigue already felt. Other things I am in the process of exploring and trialling are acupuncture and meditation, which have been saviours for me when pain levels increased and my body craves distraction and relaxation.

I wish you all the best on this journey of discovery. Sending lots of positive energy your way x

[lilian68]

welcome

[bourne]

Hi newbie learn and educaete your self as much as u can ask lots of questions this site helped me a lot . And still does every day. Gental hugs angela