New to this

I'm new to this not great with computers as struggle with remembering things it drives my family mad and they always having a go because I've forgot things or are to I'll to do things fell so alone at times .

I never new groups like this were about . I have suffered now for 15 years they say a fall I had with my son might have been the cause . I've been told so much over but I have so many symptoms it gets worse year by year .now I can't work .they say depression is making my pain worse. I keep yelling at them saying no matter how happy down I feel the pain is all the same . I just need to talk to people who live with this dabitating condition x

9 Replies

  • Welcome to the forum Joanna you have come to the right place as this is a lovely supportive community who try to lift the spirets by having a laugh along the way as well.

    Have a look at our mother site Fibromyalgia Action UK as it has a wealth of information and you might find that there is also a support group near you if you are lucky.

    Many of the members out up good links there was a good one yesterday about an American site which explains Fibro beautifully in easy digestible sections. If you have any questions you would like to ask I am sure there will be someone there to help you and share their experiences. If you are down just come on the site and someone will listen and try to help.

    Unfortunately, I have to go out now but welcome again and I look forward to reading your posts. Kind thoughts.xx

  • Thank you honey am not normally this bloody grumpy and thanks I have been reading stuff for years and was OK till my doctor retired and the new one said that it's mostly my fault the pain I suffer need less to say I won't repeat what I said to him .

    I used to work in mental health and also cared for disabled kids so I have an insight from both sides of the book .

    I had injections for many years and then the NHS stopped them now it's back with a vengeance .

    Thank you so much for the advice its just nice to know that people understand because many don't not even some of my family and they have seen me progressively getting worse .

    Thanks again would be nice to chat some time take care have a good day and don't overdo it☺

    Jo x

  • Hello Joanna

    I just wanted to join Rosewine in wishing you a very warm welcome to our wonderful forum.

    You will find everyone here helpful, kind, compassionate and caring. We all try to support each other as best we can.

    Look out for Pic of the Day. That's always a good way to start our day with a chuckle :)

    Unfortunately being in constant pain does make us grumpy and sometimes we just need to come on here and vent. Everyone will understand.

    If you need any help navigating the site please let me know and I'll be happy to help with what I can.

    Take care of yourself

    Lu xx

  • Always need help so my kids say lol and I am totally useless at this don't no how to navigate I only use Google to read and you tube for a giggle .

    All help would be great spent past 10 years in an anti tec bubble when my kids can do and my husband works with servers and CCTV they make me look thick ,but love me when I cook xx

  • You woud be top of any mans list if you are a good cook as you know what they say the way to a mans heart is through his stomach or tummy tickles in Badger's case (sorry you will get used to our in jokes we are a parcel of fools some days when we get going).

    You will soon get used to the site and PainfulPixie and several others are whizz kids at the techno side of it so they will soon put you right.

    Yes I am back but there is no rest for the wicked. Have had to drop the OH off for a Diabetic Eye test and have to pick him up when he has finished. He has a car but supposedly you can't drive for 6 hours afterwards. He had said he would walk or go on the bus but he has had a busy day taking his brother for scans and then onto our new place as we are having to buy a bungalow because the stairs are becoming a problem for me and he had only just got back in when I returned and he looked shattered.

    Yes alot of us have found out that even close friends and family have difficulty in understanding fibro as many look quite well and it is what we say is an invisible illness. Someone the other day asked me why I was taking so many tablets with my food and when I told them they actually said "fibro I don't envy you one of my relatives has got it and she has turned from a high flying career woman to someone who can hardly manage to get out you have my sympathy" I would have dropped down on the floor with shock if I had not been sitting down.

    Must go and see what I can rustle up for tea afraid warming up rather than cooking as too tired. Take care, keep in touch.x

  • Welcome to the site. Today that's about all I can get out. Fog has decided to get really bad today and deslixia has joined in the fun! Another day I will right more. Administration here is great! The people here are awesome and I have made lots of friends! Please bear with me today. I am usually a bit of a jokester and make more sense when trying to help. Oh boy I will go now just rambling

  • Hi Joanna1973

    Welcome to the forum and it is wonderful to make your acquaintance. I genuinely hope that you find the forum useful, informative and loads of fun! I have pasted you a link below to our mother site, Fibromyalgia Action UK which hosts loads of useful Fibro information:

    I am so genuinely sorry to read of your suffering and struggling and I want to sincerely wish you all the best of luck.

    All my hopes and dreams for you


  • Hi again Joanna

    Rosewine is very kind :) I wouldn't say I'm that great, but having been on the forum for some years and having an IT background I kind of know my way around a bit.

    Navigating in simple terms just means using the forum or any parts of the internet and moving around.

    If there is anything specific you would like help with let me know. The forum does take a little bit of getting used to. You'll get there :)

    You can send private messages, look at your own profile and other people's, look at our mother site FibromyalgiaActionUk and respond to other people's posts. These are just some of the features. I would be more than happy to talk you through anything you'd like to learn.

    Best wishes

    Lu xx

  • Hi Joanne,

    Welcome to this wonderful site. I've only been on it since June this year But I've learned so much about my medical conditions from some of the very clever people on here that it has helped me cope better.

    You mention that 'people say depression makes your pain worse'.

    As I'm not depressed I was very reluctant, until this weekend, to take SSRI antidepressants but I had a good chat with my GP on Saturday and agreed to give them a try. He told me that he's had success treating two Fibromyalgia patients in particular with a rotation of three different SSRI medications.

    Are you taking antidepressants? Which one(s)?

    It may be that a different one will help you more so it's worth going back to your GP to try a change in medication.

    Read as much as you can cope with on this site. It will take you some time to get used to the mountain of information, but eventually you will start to understand what is going on.

    Make notes about the bits of info that you think relate to your symptoms, that way when you see your GP you will have the confidence to talk to them about improving your treatment/medication.

    Good luck and healing hugs, Maggie

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