just a quick update in my journey

hi to those that have followed my story over the last couple of years and of course anyone else; ive just come back from 2 weeks in almeria in spain we were going to tunisia but had to change people said think the sun will do you good but they were wrong was in so much pain all holiday in tears every day,wents to docs yesterday as couldnt stand the pain any longer zapain ive been on for over 6 years has decided not to work anymore in the last few weeks i feel im getting worse so many symptoms feelinf of bladder being strangled violent thigh pain back ache been told i have severe endometreosis and i has a course of injections i see my surgeon in 3wks he is going to decide if he will do a hysterectomey i hope he decides to as i have this horrible fear that i have been in for over 11 years with no real answers and now im scarred i have all the symptoms of ovarian cancer i have it in my head im dying i feel so ill dont think my family realise how ill i am to fill some of you in i also have fibro/me,ibs,degeneration of the spine,arthritis in my knees,myalgia parasethia but to name a few ive had every med and injection or procedure you could have done been given that many differant diagnoises over the years im tired now to the point i dont know how much longer i can go on living in server pain day in day out is no joke, anyway ive got side tracked from my gp appointment he has put me on some med i tired and failed with 9months ago DHCcontinus 120mg woke up this morning without violent pain in thighs and pressing on bladder still a dull ache didnt get much sleep either and itched all night not sure if thats the new med fingers crossed my pain may be under control for once . i would just like to say thankyou to you for reading my post i dont post vry often so hope i havent waffled to much take care everyone and try and have a good day x joanne x

2 Replies

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  • You haven't waffled at all but given us a good view of where you are now and the journey you have been on. I had to have a hysterectomy when I was in my very early 30's and to be honest it was such a relief after the pain I had been in and was one of the best things that had happened to me if you could ever say an operation was the best thing. I had to have my ovaries removed as well, it had not been planned at the time but they found I had cysts all over them which was the reason I had been having violent shooting pains up my back and kidney area supposedly.

    I believe that itching skin can be a side effect of DHC Continus I must admit when I was on them I noticed my skin felt more itchy than normal especially at night so see how you go with that. Often these side effects happen within the first few weeks and then start to taper off.

    I can understand with all your problems the feeling that you might have Ovarian cancer I am sure that the Gyno will put your mind at rest on this issue. Often with that form of cancer there are very little symptoms so it could probably be cysts in your case with what you have said.

    It is difficult for families to understand how ill we feel sometimes. I actually said that to my lovely OH the other day as we are having to do so much because we are trying to move house and I was just at the end of my tether with fatigue and pain. He said he understood but of course unless you have actually gone through the process yourself it is difficult to do anything but emphathise so that is why this site is so valuable as fellow sufferers know where you are coming from.

    Please give us an update on how you are. Soft hugs.xxx

  • I am so genuinely sorry to read that and I want to sincerely wish you all the best of luck.

    All my hopes and dreams for you

    Ken x

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