Fibromyalgia Action UK

getting diagnosed

hi im fed up of going back and forward to my gp.he just keeps upping my pain that my care coordinator thinks I have fibromyalgia,im hoping to get things sorted and diagnoses soon with my gp.heres hoping.feels like im going round in circles with him and getting nowhere.heres hoping.very sore today and stiff,my shoulder blades feel like theres knives sticking in them.take care everyone

6 Replies

I am so sorry to read you are in so much pain Molind.

Sending you some peace and hope you can ask the GP for a referral to the rheumatologist to find out about other medications and support for you.

Have a better day if you can,

Best Wishes



I hope to have a better day my daughter and grandkids coming for tea.take care

1 like

hi there thought I was having a better day,untill now just been to shop 50yards eyes felt like they were going from side to side headache was getting worse,and everywhere killing annoying just getting to shop.I don't like having people do things for me when ive been very independent


I am so genuinely sorry to read of your suffering and struggling and I want to sincerely wish you all the best of luck.

Al my hopes and dreams for you



Hello Molind.

I am sorry to hear about the amount of pain that you are in.

It sounds like your care co-ordinator may have a point so it would do no harm asking your GP to refer you to a Rheumatologist. That way they can either give you a diagnosis or exclude it as a possibility.

My experience is that they exclude lots of things in order to establish that the last thing remaining is what you have got. In any event you do not have to be suffering from pain all the time.

If the meds are not working then speak to the GP about your options, is there a different pain killer or combination that you could try?

You could also ask if there are any other treatments that could help you. For example, physiotherapy, hydrotherapy or acupuncture.

Do you treat yourself at home, for example using warmth on the joint or icing it. Do you have a TENS machine that you could try?

The psychological aspect of living with pain in the long term should also be considered. For example, having a chat with a therapist or being referred to the pain clinic.

I really do hope that you will find a treatment or medication that works for you.

All the best.



hi dave thanks for replying,im on morphine and amytriptoline but not getting any relief,im waiting for an appointment for pain clinic,and I have to see pysio on 13th just so sick of no relief tried heat,cold etc,but nothing.and this headache and blurred vision in my left eye is so annoying.don't have to do much to get really tired and today feel awfull.been up and down trying to get going to try see my gp tomorrow,as really struggling now and feeling you again.linda


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