Hi all, I don't even know where to start. My fiance has been getting progressively worse over the last 4 years. None of the doctors are helpful. It all started with exhaustion, mood swings and severe pain & tightness in his achilles tendon. His feet were so sore he could hardly walk. Over the last few years he's developed tremors, numbness, pain in his hips, legs & arms but the worst being down his spine in his neck. He often has attacks down his spine that make him almost collapse. Last year the only thing they could pick up was that he had scoliosis & that was causing the pain but then another doctor said it wasn't bad enough to cause pain. He was then put on folic acid because his folate levels were low despite him eating plent of greens with folic acid. After some arguments they referred him to a neuro but that was very disappointing as when we finally got to see the neuro it was only a 5 minute appointment where all he said was it wasn't MS but he'll send him for a brain scan anyway???? We were both really confused by this as we hadn't even thought it but apparently the doctor had implied that we had? If anything we wanted an MRI of his back because that seems to be where the issues are! This year he was referred to a rheumatologist who seemed great at first but our 2nd appointment with him was such a waste. He did loads of tests during the first appointment and we found out he had extremely low Vit D, abnormal liver function & some bone profile issue but they've decided it's all down to meds? He was told that they are putting it down to fibro because they can't find anything wrong & to eat healthy and exercise. I have no issue with the diagnosis as I have a few friends with that condition but I'm just wondering if anyone here saw a neuro & had a full MRI before being diagnosed with fibro? We just feel very let down and frustrated with the whole situation. Our doctors don't care and I'm just at a loss of what to do next. He has been eating healthy for the past year & exercising with regular walking since January but if anything he is worse afterwards & has to take painkillers as soon as we get home. He's currently on amitrityline as pregabalin and gabapentin didn't work.
I'm so sorry this is so long. I just don't know where else to go for help.