Apologies if this is a repost - Fibromyalgia Acti...

Fibromyalgia Action UK

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Apologies if this is a repost

Mares46 profile image
12 Replies

Just come across this....... makes an interesting read.

What are everyone's thoughts?

m.huffpost.com/us/entry/477...

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Mares46 profile image
Mares46
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12 Replies
TheAuthor profile image
TheAuthor

Thank you so much for the link, I must admit that I have not read this before. I know many members can relate to the poor treatment from medical professionals, and doubt from loved ones about their Fibro, but it does not make Fibro any less real than any other illness.

I have been an insomniac for most of my adult life and I suffer with acute migraines and headaches. I am not saying this is the cause of Fibro but I am always happy when the medical profession researches medical conditions as the root cause of an illness can quite often lead to effective treatments.

A consultant I once had a consultation with in A&E after an accident, was adamant that Fibro was caused by signals being sent from the brain saying pain! And he was very open that he could not accept any other diagnosis than that! As a matter of course, this is the medical model of thinking for Fibro and this is how we are treated when we get taken seriously by our doctors. And in my opinion, being taken seriously by our doctors is half the battle against Fibro.

All my hopes and dreams for you

Ken

I've also been an insomniac since I can remember. Only sleep if I'm knocked out by anaesthetic! Doc won't give me specific sleeping tabs but says antidepressants should work. I'm sure I could cope with fibro better if I could only sleep. Have tried many natural remedies but nothing seems to work. Guess i,'m used to it now and just go on autopilot!

Lotus954 profile image
Lotus954 in reply to

When I can't sleep, I have found that sleep hypnosis tapes work. My particular favorite is one by Joseph Clough. I have downloaded the 35 minute session on my Kindle and keep it at bedside. When I realize I'm just not going to sleep, I turn on Joseph and I'm usually out before it's over. One of the good things he does is programs your subconscious to fall asleep easily and I found that if I listened to the tape every night for about a month, I didn't need it for a very long time. Then, when I start having problems again, I start listening again. Hope this helps you. You can also get him on your phone, I believe. There's a small charge for his session, but believe me, it's priceless.

in reply to Lotus954

Thanks for the recommendation. Will get on to it.

Mmmm Interesting It is good that research is taking place, But i think that eventualy it will turn out to be a mixture of things that sparks off the Fibro monster and not just one or another.Thanks i had not read this. :)

Lotus954 profile image
Lotus954

I believe that sleep disorder can be a product of Fibromyalgia, but I don't believe that Fibromyalgia is a product of sleep disorder. I never had any sleep disorder until I developed fibromyalgia. I sure do now. I also have a litany of other disorders that have come with the blessing of fibromyalgia. None of them existed before. I agree with you, Ken, when you say that the answer is for the medical profession to get educated about the condition and start taking it seriously.

Ginsing profile image
Ginsing

Excellent link- this is an area I greatly believe in -Sleep is so importANT AND THE RIGHT KIND!

We all suffer (well most of us) with sleep deprivation at night and most of us take catch up sleep in the day.

Ken has written a very interesting response .

I hope we all can practise relaxation before we go to sleep it does promote deeper better sleep.

Ginsing

Administrator

I never had any problems sleeping before Fibro. It was a family joke that i could sleep through thunder storms, fireworks, noisy neighbours and probably a bomb going off. Now i need my meds to get to sleep and still wake at the slightest noise.

in reply to

Likewise :) Fibro first then lack of sleep :)

Interesting article, I hadn't read that.

The only thing I would query is that for me I have never had problems sleeping or when I did I knew the cause, worry. My aches and pains came first then the not sleeping :)

I think this could well be a factor for some, maybe not all. Good to have some research done though :)

Reykua profile image
Reykua

Hi Mares46,

Thank you so very much for this insightful article. Like others, I've never seen it before and it struck so many nerves with me that by the end of the article, I was left tingling all over!

I'm going re-read it and make a note of some of the salient points and will definitely share it with family and friends as I think it'll also help them to understand this condition a little more.

Do share again if you come across any other interesting articles and don't worry if it's been shared before, some of us might have missed it the first time around anyway.

Thanks again. You've made my day.

Loads of fluffly lavender scented wishes to you to help you with your sleep.

clare_hart profile image
clare_hart

I am prone to believe that anyone writing what might be called an opinion article rather than a research article is going to slant their loosely organized research to fit their own beliefs. What really cements this for me is the last line:

"So for the four to six million Americans suffering from FMS, perhaps it's time to see a sleep specialist. A proper night's sleep just might cure what ails you."

Maybe I'm the only one who interprets it as a bit of a slam to FMs. It "feels" to me as if the author is saying 4 -6 million of you are too many to have FM so just go see a sleep specialist and get over it. Sigh. Maybe I'm just too sensitive to what I read as an insult.

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